Dalila

Interested in research ethics and all about #lupus | Running support group | Views my own | We need a cure for Lupus 🦋 Follow #cSLE ➡️ @PReSLupusWP

[Dalila @dalilatm]

@lupuscyclopedia @oyemamautoimmun Wonderful to hear about the great success 👏🏻 That’s a lovely pic! With @DalilahK though ☺️🦋 Take care everyone.

[Dr Jo Daniels @DrJoDaniels]

It was a pleasure to speak @birdbathcharity on #Raynauds particularly at this time of year when people with Raynauds will be struggling with symptoms. Interested? Give it a listen👇🎧

@WeAreSRUK @raynaudsorg @Raynauds_UK @scleroderma

Research studies posted below ⬇️

[nature @Nature]

The skin — once thought to be a mainly passive barrier — can produce its own antibodies that fight off infections

https://t.co/7JH5sAIVFJ

[Dalila @dalilatm]

Positive step forward to see #Lupus mentioned in the first #Wales Women’s Health Plan. The complexity of this disease and the resulting health inequalities make advances like this key for those living with lupus. ➡️On to the next steps!
🔗https://t.co/07cQyWMwiY

[RAIRDA @RAIRDA_org]

It was great to hear @AlisonEBennett share the story of one of her constituents who lives with multiple RAIRDs in Parliament today #RAIRDaware

[CEDAR @CEDAR_Cardiff]

We are conducting a study looking at how AI should be implemented in healthcare in Wales. 🖥️

If you live in Wales or work as a healthcare professional in Wales, then we want to hear from you.

https://t.co/GD1hthVhYi

@Valuein_Health @DHCWales @BCS_South_Wales @lshubwales

[Dalila @dalilatm]

@evemdsmith_eve @Maria @EATC4Children Congrats! 👏🏻🎓

[BBC Wales News @BBCWalesNews]

Women's health hubs for 'every part of Wales' https://t.co/7UF2RIYrqU

[Ricky Chotai (he/him) @ricky_chotai]

🦋 Important #Lupus debate in Westminster Hall - Tues 10th Dec, 9:30am!Jim Shannon MP is raising rare autoimmune rheumatic diseases. This is our chance to be heard!📝 Want your MP to attend?https://t.co/UGvUNGDhCk .Let's make our voices count! 💜#LupusAwareness #RareDisease

[Dalila @dalilatm]

Detection of subtle changes #eyetest and powerful sourcing- this sounds very promising, especially if gets to #lupus and leads to damage prevention and early detection 🙏

[INSIGHTeyehub @INSIGHTeyehub]

In the latest @BBCClick episode, @LaraLewington reports from @Moorfields and @UCLeye on how INSIGHT's large-scale datasets are enabling #Oculomics - the science of using the eye as a window to the body.

With @pearsekeane and @sktywagner
#ophthalmology
https://t.co/YLubB9Q3Ix

[Dalila @dalilatm]

From my #lupus experience, having access to a brand of hydroxychloroquine that you can tolerate is a key issue here too
"Rheumatology patients seriously impacted by drug shortages, BSR warns" @limbicrheumUK @RheumatologyUK
https://t.co/lG1MhQbpTM

[Akhil Sood MD, MS @AkhilSoodMD]

What is the impact of social connections on lupus?

Abstract #1503: In an NYC SLE cohort, greater social integration and support correlated with less pain, depression, disability, and frailty, while loneliness was linked to worse outcomes.
@RheumNow #ACR24 #SDoH

[Dalila @dalilatm]

@MyStateline 🙏 Beautiful news

[Cheryl Crow, Arthritis Life @realcc]

Really important research on shared decision making in rheumatology! Many patients still don’t feel it’s a two way conversation @chroniceileen @ACRheum #acr24

[Lupus Foundation of America @LupusOrg]

🚨 @ACRheum's new summary guideline for screening, treating & managing #lupusnephritis (lupus-related #kidneydisease) offers evidence-based recommendations to help adults & children w/ #lupus receive the most effective care. Read more on our blog: https://t.co/JijsRA9TLM #ACR24

[Dalila @dalilatm]

@CreakyJoints @chroniceileen Congrats! 👏🏻‘100 more to go’

[Ing Lee @IngLee17]

Join #Mumpredict dissemination event

📣updates on research findings
🤰#MultipleLongTermConditions in #pregnancy
🖥️online event
🗓️26 Feb 2025
🕙1000am to 1530pm (GMT)
👉register https://t.co/BIXbk0CUrU

[Dalila @dalilatm]

💡Informative! Great learning from Prof. Valerie Sparks about the latest arthritis research at the Biomechanics and Bioengineering Research Centre VA @cardiffuni 💻🧬🤝using AI, genetics & virtual reality. Patient advisory reps have played a key role in shaping research🌟

[Arthritis UK Cymru @CymruArthritis]

💙 Thank you to everyone who joined our Arthritis Engagement Events—and an extra shoutout to Prof. Valerie Sparkes for her inspiring talks! 💙

We explored ground-breaking research on arthritis treatments, infection prevention, and back pain relief.

[Dr Ai Lyn Tan @DrAiLynTan]

✅Are you healthy?
✅Do you have autoimmune or rheumatic disease?
✅Are you over 18 yrs old?
✅Do you have 15 min?

If you fulfil any of the above, please fill in this anonymous survey to help improve lives of people living with chronic diseases, thanks
👉🏽https://t.co/Bcfezl6Ush

[Dalila @dalilatm]

@Lupusreference @LupusResearch Exciting! 🦋🚀