Danielle Szynkarski

Wearer of many hats. Marketing Manager. Board member of @cure_smc1a & advocate for inclusion. Born in 🇿🇦 Living in 🇫🇷

[Danielle Szynkarski @dani_szy]

Very exciting news!

#SMC1A #Epilepsy #RareDisease

[SMC1A Foundation @cure_smc1a]

🧬 Research Update:

Six months into the #SMC1A gene therapy project we're funding at @ucdavis, Davis, Dr. Julian Halmai and his team have news!

Want to dive deeper into the research or support the next phase of progress? Visit our website at https://t.co/S8yDfe3jsf

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[SMC1A Foundation @cure_smc1a]

This is early-stage lab research, not yet a treatment — but it's real, measurable progress.

This progress is only possible because of our incredible community — families, fundraisers, and donors. 🩷

Swipe through the slides to see the full update➡️

#SMC1A #epilepsy #rare

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[SMC1A Foundation @cure_smc1a]

🧬 Research Update:

Six months into the #SMC1A gene therapy project we're funding at @ucdavis, Davis, Dr. Julian Halmai and his team have news!

Want to dive deeper into the research or support the next phase of progress? Visit our website at https://t.co/S8yDfe3jsf

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[SMC1A Foundation @cure_smc1a]

🎉 AND THE WINNER IS...

To everyone who entered, shared, and believed in this campaign: THANK YOU 🩷

🎁 Congratulations to our winner — your $250 gift card is on its way in the mail!

Want to learn more about #SMC1A and the work we do? Visit us at: https://t.co/DUtpgEP7vH

[Danielle Szynkarski @dani_szy]

SMC1A is so rare that most families face it almost entirely alone. The @cure_smc1a community is changing that, one ticket at a time 🩷

🎟️ Enter here: https://t.co/f1JdoLLWO4 #SMC1A #RareDisease #BackToSchool

#Epilepsy #EpilepsyAwareness #RareDisease #BackToSchool

[SMC1A Foundation @cure_smc1a]

🎉 EXTENDED!

Our Back-to-School Giveaway is getting one more week 🩷

SMC1A is so rare that most families face it almost entirely alone. This community is changing that, one ticket at a time.

🎟️ Enter here: https://t.co/ftqmE2WlU1

#SMC1A #RareDisease #BackToSchool

[SMC1A Foundation @cure_smc1a]

🎉 EXTENDED!

Our Back-to-School Giveaway is getting one more week 🩷

SMC1A is so rare that most families face it almost entirely alone. This community is changing that, one ticket at a time.

🎟️ Enter here: https://t.co/ftqmE2WlU1

#SMC1A #RareDisease #BackToSchool

[Danielle Szynkarski @dani_szy]

@BrainAblaze Nothing to add here, five stars. Thanks so much for your advocacy!

[SMC1A Foundation @cure_smc1a]

⏳ One week left!

Our Back-to-School Giveaway closes on August 3rd, marking the final stretch.

🎟️ Enter to win: https://t.co/ftqmE2WTJz

#backtoschool #epilepsy

[SMC1A Foundation @cure_smc1a]

⏳ 3 WEEKS LEFT — Our Back-to-School Giveaway ends August 3rd!

Here's how you can help:
🎟️ Grab your tickets today
📣 Spread the word — share with family, friends, coworkers, and your networks
🏆 Win while giving

👉 Enter here: https://t.co/ftqmE2WTJz

#Epilepsy #BackToSchool

[SMC1A Foundation @cure_smc1a]

If you're a student (or know one!) passionate about making a difference, this session on July 7 is worth your time. 🩷

Visit our website for the latest research on SMC1A-DEE: https://t.co/DUtpgEOzG9

#SMC1A #RareDisease #StudentsforRare

[SMC1A Foundation @cure_smc1a]

☀️ Summer is just around the corner!

For many children with #SMC1A and #epilepsy, a little extra planning can help keep things safe, cool, and comfortable during warmer days.

🩷 Does your SMC1A Sunshine Sister have a favourite summer activity? Any tips?

#EpilepsyAwareness

[SMC1A Foundation @cure_smc1a]

We are excited to welcome Mary Lawrence to the #SMC1A Foundation team as our Data Manager. 💜

We are thrilled to have her join our team and share her expertise with our community! ☀️

Learn more about us here: https://t.co/DUtpgEP7vH

#Epilepsy #RareDisease

[SMC1A Foundation @cure_smc1a]

Welcome to the Board! 💙Based in Paris, Danielle joined the #SMC1A community after her daughter's diagnosis and brings deep personal commitment alongside a decade of expertise in marketing and communications. 🤝
🔗 https://t.co/nG8Q7kakPz
#RareDiseaseAwareness #Epilepsy

[SMC1A Foundation @cure_smc1a]

💜 #PurpleDay.

65M people live with epilepsy. For 1 in 3, nothing controls the seizures. For girls with #SMC1A-related epilepsy — it starts in infancy, and the fight never stops.🔗 https://t.co/DUtpgEOzG9

RT to raise awareness 🙏
@EpilepsyFoundation @epilepsysociety

[SMC1A Foundation @cure_smc1a]

🩷 The #SMC1A community is powered by extraordinary women — mothers, caregivers, researchers, advocates, and women living with SMC1A — working every day to support one another and push research forward.

Thank you for everything you do. #IWD2026 #RareDisease #GiveToGain

[SMC1A Foundation @cure_smc1a]

🧬 New research improving our understanding of #SMC1A-related developmental & epileptic encephalopathy.

Congrats to Maddalena Di Nardo and colleagues on their study published in @EpilepsiaJourn .

💗 Grateful to researchers advancing science for our community.

#Epilepsy #Rare

[Danielle Szynkarski @dani_szy]

Great to see new #SMC1A research published. @cure_smc1a

Every study helps move the science forward for rare disease families 💜

[SMC1A Foundation @cure_smc1a]

🧬 New research improving our understanding of #SMC1A-related developmental & epileptic encephalopathy.

Congrats to Maddalena Di Nardo and colleagues on their study published in @EpilepsiaJourn .

💗 Grateful to researchers advancing science for our community.

#Epilepsy #Rare

[NeoXam @neoxamsoftware]

🏆 NeoXam is proud to announce that our NeoXam DataHub solution was voted as Best Data Governance Solution in the WealthBriefingAsia Awards 2023!

Find out more about our DataHub solution here ➡️ https://t.co/YDSqo8igFv

[NeoXam @neoxamsoftware]

🛡🏎️ Great atmosphere here at @IMpowerplatform Incorporating #FundForum!

The #NeoXam #EMEAWest team is on the ground for Day 1, to welcome you on booth #6, today & tomorrow, at the Grimaldi Forum #Monaco.

👋Stop by to learn more about our wide range of financial solutions.

[NeoXam @neoxamsoftware]

Featured in https://t.co/FPtfh73eKu: 📖 “Right now, risk managers across the world are crunching an endless stream of numbers." - Tim Versteeg, Managing Director APAC at NeoXam.

Find out more here ➡️ https://t.co/Ncd9Y47xdU

#FRTB #RiskData #DataManagement #RiskManagement