Daniel B

#longcovid

[Daniel B @daniel__b8]

I wasn’t going to share this but here goes. I am the Daniel in this Article. Thank you to everyone who has reached out with their support.
LC has been an incredibly eye opening experience, one that has completely changed how I view the world, how I see people and how they see me

[Anna- @annatime94]

Over the past year, Daniel* has calculated he has racked up more than $100,000 in bills from hospital visits, medical tests, specialist appointments and medication — all because of Long COVID. | SBS News.

Sounds mild. https://t.co/poc8tDApOd

[Daniel B @daniel__b8]

Sore throat has entered the chat 😭
I had been completely asymptomatic until I went for a walk in the cold air last night and instantly my throat started hurting and still does. This is still my only symptom at the moment. Plan to test again tomorrow.

[Daniel B @daniel__b8]

Very close call this week.
Mum brought covid home. I moved to an Airbnb and so far managed to avoid it.
This was at a cost equivalent to my fortnightly jobseekeer payment though.
Really couldn’t afford to do this but also couldn’t afford not to. Extremely stressed

[Daniel B @daniel__b8]

@plumskyjam Oh no, so sorry to hear that Plum😞 Thinking of you!

[Daniel B @daniel__b8]

Very close call this week.
Mum brought covid home. I moved to an Airbnb and so far managed to avoid it.
This was at a cost equivalent to my fortnightly jobseekeer payment though.
Really couldn’t afford to do this but also couldn’t afford not to. Extremely stressed

[Daniel B @daniel__b8]

It’s been a year since this interview.
I’m doing much better, but Long Covid still profoundly affects my life. Sending support to those also navigating this on Long Covid Awareness Day.

[Daniel B @daniel__b8]

I wasn’t going to share this but here goes. I am the Daniel in this Article. Thank you to everyone who has reached out with their support.
LC has been an incredibly eye opening experience, one that has completely changed how I view the world, how I see people and how they see me

[Daniel B @daniel__b8]

@NeurologistMom Almost all of my complement blood tests came back significantly elevated. Some were close to or more then double the upper reference range.

[Daniel B @daniel__b8]

@NeurologistMom I’ve always found this fascinating.Before LC if i had a bad night sleep I’d be tired the next day but could manage. Now if I don’t sleep well my brain is literally on fire the next day, worse then a migraine don’t know hot to describe it, always wonder if it’s the built up toxins

[Daniel B @daniel__b8]

I hate weekends 😭😭 Just want my life back. Don’t think anything could prepare you for the isolation and abandonment that comes with this illness, it really gives you so much time to think and can send you to the darkest of places.

[Daniel B @daniel__b8]

@NeurologistMom Haven’t seen any Parkinson’s statistic’s but I know @DavidJoffe64 has seen a big increase in REM behaviour disorder in the sleep lab.

[Daniel B @daniel__b8]

2/2 First step, start reading!!!
This shouldn’t be up to your patients, there are things you can do today to help a large number of patients with symptom relief while we wait for ongoing research. There are far to many patients being left to suffer with no assistance whatsoever.

[Daniel B @daniel__b8]

1/2 Dear health practitioners, please stop telling #LongCovid patients that this illness is so new that there is nothing you can do for them. We may not have a cure but we are not where we were three years ago. There are thousands of papers on Long Covid in peer reviewed journals

[Abraham @AbrahamAubry]

This is how a chronic illness can steal your life when it strikes at 27. In the first months after diagnosis, you're shocked by the new and terrifying symptoms, but you remain optimistic, trusting that doctors will help with various treatments. However, after several years pass without improvement, and even with progression, you cling to hope because, despite the lack of approved treatments, there are still options.

Then, the government tells you that these options are not funded because they lack evidence-based medicine (EBM) approval. So, you work tirelessly to find ways to collect money. With that money, you buy treatments that help only about 10%. Meanwhile, you've virtually lost all your friends because, in reality, people don’t want to associate with someone who is always sick.

As a man, you realize you'll probably never have a family of your own; no woman wants a sick partner, and no children either. So, when your parents pass away, you'll be completely alone. Today marks the 10th year of my illness. I am now 37 years old, and the future has never looked bleaker. For my condition, there are no promising drugs in development. And even if there were, I'm excluded from trials due to biased classifications.

Here I am, 37 years old, still very sick and homebound, with no prospect of a better life. What would you do?

[David It Up! @Dave_it_up]

The National Academy of Sciences have officially adopted the name Long Covid.

The series of disease states, resulting from a Covid infection have gone by several names, but the national Academy of sciences has now adopted the name Long Covid as the official name.

[Céline @healingfromlc]

It’s so funny that some doctors think #LongCovid patients are pretending to be sick for sympathy. What sympathy? I have never been treated with more disdain and obvious dislike in my entire life.

[Jennifer Hulme @jenniferhulme]

I diagnose #POTS every emergency shift, a condition that I didn’t know existed before two years ago.

MDs/PAs/NPs: do orthostatic HR for everyone with unexplained tachycardia.

#POTS #LongCOVID

[Daniel B @daniel__b8]

Honestly it’s like watching how the world goes on after you die but you’re alive and get to watch it all unfold.

[Daniel B @daniel__b8]

The worst thing about this illness is watching the world go on without you, like you never existed or mattered to anyone, nothing could prepare you for this 😞