Licenciado Ciencia y tecnología de los Alimentos, Biología. Prefiero que las multitudes estén en desacuerdo conmigo que no estar en armonía conmigo mismo
Yesterday, I stepped down as CEO of my company. Not because I wanted to, but because in mid-January, I became bedbound with Stage 4 ME.
For the past three months, I've watched my team run the company I built while I just lay here, unable to live the high-impact life I was used to.
At first, I vowed to get better so I could return to even part-time work. But as I gradually and inconsistently improved over months, I became radicalized for a different cause:
Not a single person deserves to live like this. But yet we do, and and no one will save us but ourselves.
So today, I begin a new role: I will dedicate the next year of my life - 18 waking hours a day - entirely to this community.
I suppose it's time I introduce myself (I've also attached a photo of me, in bed, feeling much worse than I look):
- Out of college, I co-founded a magazine that took me around the world doing sports journalism and broadcasting.
- Over the past 7 years, I have assembled the greatest team to build and run a sports tech company from the ground up
- In the early days of the pandemic, I co-founded and led @getusppe, a team of hundreds, to deliver 17 million+ pieces of PPE to healthcare workers.
- I specialize in acting with urgency, seeing gaps, and connecting people to fill them. And most of all, in uniting and building community.
I have accomplished a ton in my 35 years on earth before I got sick, but Long COVID and ME are, by an order of magnitude, the biggest challenges I have faced.
But when there are so many gaps, there's simply no time to complain. We must roll our compression-wear up and get to work. So here is what I have planned:
- Guides and essays:
- The Severe PEM Crash Survival Guide
- What's the Deal With Brain Retraining?
- So You Have Long COVID, Now What?
- ...and so many more!
- Treatment Experience Surveys to fill the gap between random Reddit anecdotes and slow clinical trials (GLP-1 data released in two weeks)
- The first comprehensive AI analysis of all publicly posted recovery stories to look for trends and correlations
- Helping a fellow patient and test expert publish the first interactive and comprehensive testing guide for ME
- Helping a fellow patient increase the visibility of Stage 4/5 patients as the faces of ME
- Creating a network of the highest agency patients working on these conditions to mutually share information, support, and unblock each other
- Creating Long COVID and ME microgrants to fund people to work on small but impactful projects
- Incubating and raising funding for founders who want to start non-profits and companies (let five more Amaticas flourish!)
- Overall, pouring my heart out to support every single person who is interested in working for the betterment of this community (especially where others are far better than me, like science and advocacy!)
No one is going to do this work for us. Not doctors, researchers, or government. This must be patient-led.
Want to join the movement? Send me a DM, and let's figure out what we can do together. Time to get to work.
@TodosElectricos El otro día tenía que aparcar en una ciudad a una hora que los parkings estaban saturados, en 1' sabía en qué parking había más plazas y me estimó que habría sitio a mí llegada, mientras,me ponía el navegador para calcular tiempo y darme indicaciones. Va a ser indispensable
I would like to discuss the follow-up plans for the project with everyone.
After AirFanta Wear, I’ve been thinking about a laminar flow device that can be clipped onto a cap. This way, when you turn your head, the air outlet moves with your head, ensuring better coverage accuracy. The challenge would be the unbalanced weight on one side. However, I’ve been slow to move forward with this project because the application of laminar flow devices is quite narrow — apart from Covid-cautious people, very few would buy it. Sales of AirFanta Wear have been poor. We haven’t even sold out our first batch yet, and the cash flow for this project remains significantly negative. Developing another new product would likely result in losses. As a small company, it’s quite tough for me. I want to wait until after the AirFanta 5 Pro(updated edition of 3Pro) launches to see how sales perform and whether cash flow improves. That home-use air purifier has a much broader audience and is likely to sell much better. I appreciate if you can help recommend our products.
‼️ EBV-95% of people carry this virus and scientists may have just found how to stop it
Scientists have taken a major step toward stopping Epstein-Barr virus (EBV), an extremely common infection linked to cancer and chronic disease. By using mice engineered with human antibody genes, researchers created powerful human-like antibodies that block the virus from attaching to and entering immune cells. One of these antibodies completely prevented infection in lab models with human immune systems, marking a breakthrough after years of difficulty tackling EBV’s ability to invade nearly all B cells.
@Bob_Blaylock@ModelAyshaMirza Ese es tu miedo, por eso sigues lo que hagan los demás como borrego que eres. Esa mujer con mascara usa su cerebro y tiene personalidad, los borregos siempre temeréis que os señalen por ser distinto. Me compadezco de tí.
@forocoches A mis 48 años, tras 42 años haciendo deporte, sé que hay dos cosas maravillosas en esta vida:
1. Correr, sobre todo por el monte, y mejor aún, por caminos nuevos cada vez que viajas, y
2. Hacer lo que decides y te hace feliz ignorando el qué hagan, piensen o digan los demás.
@javichu73 En un 1430 entrábamos 5 hermanos con mis padres y maletas, eso sí, no sobraba espacio, el de en medio era el único sin nadie encima de las piernas😂
Nuevas pruebas vinculan los autoanticuerpos con Long COVID👇
1/🚨Un nuevo estudio liderado por investigadores de los Países Bajos (UMC Utrecht y Amsterdam UMC) ha encontrado pruebas sólidas que vinculan los autoanticuerpos con los síntomas del COVID persistente #LongCovid#Salud