Cindy Luxhoj

@danishgal19

Joined July 2013

23 Following

14 Followers

5 Posts

Cindy Luxhoj @danishgal19

about 10 years ago

Thrilled to be representing Alagille Syndrome Alliance at GG Summit! #2016GGSummit #ALGSWarrior

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Cindy Luxhoj @danishgal19

about 10 years ago

https://t.co/OiRQNgohkw via @ALGSAlliance

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Cindy Luxhoj @danishgal19

over 10 years ago

https://t.co/yR7FTumXU2 via @ALGSAlliance

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Cindy Luxhoj @danishgal19

over 10 years ago

https://t.co/yR7FTumXU2 via @ALGSAlliance

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Who to follow

We help children and families faced with a diagnosis of a Peroxisomal Biogenesis Disorder (in the Zellweger Spectrum of Disorders)

Wife•Mom•Grandma•State Capitol Co-Chairman over Rare Disease Day in Utah 2017•Advisory Board Member of Rare & Undiagnosed Network (RUN)Utah Contact

Cindy Luxhoj @danishgal19

over 10 years ago

Celebrate Rare Disease Day ALGS Warriors! Stay Strong. Press On. #RareDiseaseDay #AlagilleSyndrome #ALGSWarrior

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