Bunny Berry

Social media curator. Creative force of nature. Entrepreneur wrangler. Your wish is my command!

[Bunny Berry @darnlucky]

@jenbrea, ME advocate and creator of film, Unrest, has been reported missing by her adoring husband, @omarwasow Last seen at Miami Airport, 6/15 3:30 pm Gate D37. Any tips or if Jen contacts you, call Miami Missing Persons Dept. [phone]. Please be safe, Jen. Please share.

[Bunny Berry @darnlucky]

Mast cells degranulating. via @CortDoesScience

[Bunny Berry @darnlucky]

https://t.co/f8Uo1bZus2

[Bunny Berry @darnlucky]

@CortDoesScience Oops! There goes my dopamine! Come back, dopamine! Come back! Lol @MeganMoodie10

[Bunny Berry @darnlucky]

https://t.co/MIOPTrFvoQ

[Bunny Berry @darnlucky]

@BCBSIL, how can you deny coverage for an air ambulance for this desperately suffering patient? This patient can’t possibly take a commercial flight. This is an emergency. Cover it as such!

[Julie Rehmeyer @julierehmeyer]

I’m having convulsions like this many times a day. Warning: these are upsetting to watch, so skip it if you’re feeling fragile.

[Bunny Berry @darnlucky]

@pattonoswalt Don’t you mess around, no no no!!

[Bunny Berry @darnlucky]

@VABVOX @Acyn Squad goals!

[Bunny Berry @darnlucky]

@D_Nasty_252 @MrJMunz @_BarringtonII @ChristianWalk1r You’re saying Christian is lying for attention. You have seriously lost the plot.

[Bunny Berry @darnlucky]

@EnergeticAquif2 @_BarringtonII @ChristianWalk1r He also keeps saying that his father was going to get in front of his atrocious behavior , which he didn’t do. It’s not hard to understand. Christian is tired if the lying. He says it over and over. Judy stop lying!

[Bunny Berry @darnlucky]

@_BarringtonII @ChristianWalk1r The democrats didn’t get to him. His father lying about the abortion receipts and get well card got to him. He’s sick of the lies. He says it over and over in the video.

[Bunny Berry @darnlucky]

@TjCow1979 @ChristianWalk1r @robsmithonline He says why now in the video.

[Bunny Berry @darnlucky]

@StevieVanZandt Sorry for the loss of your good friend, Stevie. Tony was beloved, and will forever live in our hearts. Long live, Paulie!

[Bunny Berry @darnlucky]

JEN BREA HAS BEEN FOUND, and is SAFE! Thank you to everyone who shared and spread the message so swiftly out to your networks and friends! #findjenbrea #mecfs #millionsmissing #pwme #spoonie #unrestfilm #unrest

[Bunny Berry @darnlucky]

#findJenBrea #findJenBrea From MEAction Network: We have an emergency in our community. Our founder, Jennifer Brea, has been missing for over 48 hours and was last seen in Miami, Florida. We are extremely concerned for Jen’s wellbeing. She has not digitally checked in since Wed.

[Bunny Berry @darnlucky]

@emily_rj @UntoNuggan Botox can be used successfully in EDS patients, but should be done only under EMG guidance, and it is advised to not inject it directly into the cervical area of the spine. I think it helps a lot of people with migraines, having it in the hairline. xo

[Bunny Berry @darnlucky]

@UntoNuggan There is a growing number of EDS patients that have generalized dystonia that responds to Carbidopa/Levodopa. A very keen French EDS specialist published his observations of treating thousands of his EDS patients with dopamine. Have you seen this? https://t.co/KImPzikkIt

[Bunny Berry @darnlucky]

@AshHultman Lolol

[Bunny Berry @darnlucky]

@AkmCurtis In my opinion, hEDS is a HORSE, not a Zebra, and so is dystonia in the hEDS patient population!

[Bunny Berry @darnlucky]

Once upon a time I submitted paperwork to Dr. Burt for the same stem cell transplant Selma Blair had at Northwestern. My diagnosis was Stiff Person Syndrome. Hers was/is MS. I sought a 2nd opinion on my SPS diagnosis at Mayo, MN. I don’t have SPS. I have hEDS and dystonia. 1/4

[Bunny Berry @darnlucky]

@AkmCurtis My point it. It’s UNDERDIAGNOSED, and the longer the EDS community continues to identify hEDS and the comorbid dystonia that travels with it as RARE, when it’s RAMPANT, the longer patients suffer the ignorance of being misdiagnosed with diseases that are common and treatable.