@jenbrea, ME advocate and creator of film, Unrest, has been reported missing by her adoring husband, @omarwasow Last seen at Miami Airport, 6/15 3:30 pm Gate D37. Any tips or if Jen contacts you, call Miami Missing Persons Dept. (305) 603-6350. Please be safe, Jen. Please share.
@BCBSIL, how can you deny coverage for an air ambulance for this desperately suffering patient? This patient can’t possibly take a commercial flight. This is an emergency. Cover it as such!
@EnergeticAquif2 @_BarringtonII @ChristianWalk1r He also keeps saying that his father was going to get in front of his atrocious behavior , which he didn’t do. It’s not hard to understand. Christian is tired if the lying. He says it over and over. Judy stop lying!
@_BarringtonII @ChristianWalk1r The democrats didn’t get to him. His father lying about the abortion receipts and get well card got to him. He’s sick of the lies. He says it over and over in the video.
#findJenBrea#findJenBrea From MEAction Network: We have an emergency in our community. Our founder, Jennifer Brea, has been missing for over 48 hours and was last seen in Miami, Florida. We are extremely concerned for Jen’s wellbeing. She has not digitally checked in since Wed.
@emily_rj@UntoNuggan Botox can be used successfully in EDS patients, but should be done only under EMG guidance, and it is advised to not inject it directly into the cervical area of the spine. I think it helps a lot of people with migraines, having it in the hairline. xo
@UntoNuggan There is a growing number of EDS patients that have generalized dystonia that responds to Carbidopa/Levodopa. A very keen French EDS specialist published his observations of treating thousands of his EDS patients with dopamine. Have you seen this? https://t.co/KImPzikkIt
Once upon a time I submitted paperwork to Dr. Burt for the same stem cell transplant Selma Blair had at Northwestern. My diagnosis was Stiff Person Syndrome. Hers was/is MS. I sought a 2nd opinion on my SPS diagnosis at Mayo, MN. I don’t have SPS. I have hEDS and dystonia. 1/4
@AkmCurtis My point it. It’s UNDERDIAGNOSED, and the longer the EDS community continues to identify hEDS and the comorbid dystonia that travels with it as RARE, when it’s RAMPANT, the longer patients suffer the ignorance of being misdiagnosed with diseases that are common and treatable.