If there was any doubt left that #ALS is fatally broken, it doesn't exist after today. Now, No More Excuses asks all ALS patients, are you ready to accept that ALS MUST RISE UP AND REVOLT? Let us know if you're ready. We're here and are ready to give you a voice. #ALSA#ACTUP NME
I have an ask:
If you know someone on Twitter with a chronic, rare or terminal disease, @ them in a reply or retweet so I and hopefully others can follow them.
Our fights, our struggles, our experiences and our hopes share so many similarities. It’s time to come together.
It might take another COVID or deeper analysis of our response to it before repair of our broken health system itself becomes a priority. Follow the $. #EndALS
Fixing a broken system is never easy. History, however, shows us it can be done. Our health care system for ALS is broken. It is no one person’s fault, but it is time for all to admit this. Time to boldly to reimagine it. The millions who have fought this disease deserve no less.
Pls don’t forget some of us are battling #ALS as well, another terminal disease. We could benefit from a similar sense of urgency, eg #NurOwn now?
#endals
It is an honor and privilege to serve as Acting @US_FDA Commissioner. The FDA’s public health work is more critical than ever as we continue to fight this global pandemic.
Starting 2021 work week with this quote from Shawn Anchor’s #TheHappinessAdvantage “The people we interviewed from good to great companies clearly loved what they did largely because they loved who they did it with” #MondayMotivation
@bsw5020@alextoussaint25 Inspirational! Here am I with Bulbar ALS selling my bikes, yet you continue to mount up. You have an unstoppable attitude and a wonderful supportive family, as do I. Your daily updates are the benchmark in managing this cursed disease. Please keep it up, thanks and God bless.
We're all familiar with 'The clock of Life', but as pALS and cALS know all too well the 'tic-toc' moves faster when you're given two years at best (gulp) #ENDALS , #ALS
The #STEM fields need diverse students more than ever. When a student tells you they want to be or do something, tell them they will be amazing, then make it your mission to find them a role model. As tennis legend Billie Jean King said, “You have to see it to be it.” #Diversity
I couldn’t sleep last night. These numbers kept echoing in my head:
129 million Americans have pre-existing conditions.
61 million are living with a disability.
I am one. And I plan to vote like my healthcare depends on it. Because it does.
Retweet if you are one as well.
Lately, my ALS body feels like it’s being beaten like a pinãta without any treatment to save me! Every day there is more muscle loss, @realDonaldTrump@POTUS@SteveFDA !
Do for ALS what you’re doing for COVID!
#NurOwn#EOforALS
Management expert Peter Drucker once said, “The greatest danger in times of turbulence is not the turbulence—it is to act with yesterday’s logic.” Being a leader in these times of uncertainty isn’t about having all the answers—it’s about learning how to adapt. #Leadership