Für viele Männer ist das intellektuelle Defizit wichtig und die Autonomie ist begrenzt.
Eine Integration in die Welt der gewöhnlichen Arbeit ist nicht möglich. #Mjemail
كشخص بالغ ، يمكن لمعظم الفتيات الحصول على حياة عمل عادية. لكن
يجب دعم العديد منها ودعمها في مشروعها المهني
(تعزيز ثقتهم بأنفسهم ، والحد من قلقهم بشأن بعض الحالات مثل
مقابلات العمل ...). #Mjemail
The consequences of the disease on daily life are usually heavy when the child
is suffering from a severe form. The organization of everyday life, the usual benchmarks,
the priorities within the family are disrupted. #Mjemail
Fragile X syndrome is often the cause of a severe disability, particularly in
intellectual, with a lack of autonomy in everyday life. As such, the disease can
sound deeply on the life of the patient and his family. #Mjemail
In childhood, daily medical monitoring is ensured, as for any child, by the
attending pediatrician or family doctor.This can take advice from specialists
(neuropediatrician, child psychiatrist, geneticist) in his region. #Mjemail