Living with Frontaltemporal Degenreration/Cortical Basal Degeneration. Passionate crusader and advocate to increase awareness of #FTD and early intervention!
Please take a moment to read and share. FTD strikes more individuals in the prime of life than you realize! #AFTD is a wealth of support and resources! May God bless each and everyone of you! https://t.co/xGt6r112wG
Here is the article I referenced in my print Twitter post! I know serve on the #AFTD Advisory council along Keith my amazing colleagues to educate, bring awareness and advocate for those of us living this! #FTD#AFTD#frontaltemporaldegeneration https://t.co/XcE0kF3u3I
Did you know that 17% of individual diagnosed with Frontal Temporal Degeneration, an artistic side emerges! This happened to me! Read the article in the June/July issue of Brain and Life Magazine @BrainandLifeMag to learn more and see pieces I have created with no prior talent!
Demi Lovato - Skyscraper (Official Video) https://t.co/J1YyxLEOPz via @YouTube
As one living with Semantic Frontotemporal Degeneration, this is my FIGHT SONG! I will strive to live each day with strength, courage and grace from Our Lord! #FTD, #DementiaCare, #alz , #AFTD
Today @CMSGov announced a test model to improve the way dementia care is delivered for people living with Alzheimer’s & other dementia, consistent with our #AlzCareAct. Thank you advocates for working so hard to build bipartisan support for this policy. https://t.co/4ap8tvqi6D
All of our hard work paid off! Thank you to our legislators who supported our efforts and to all the many advocates for continuously raising your voices! Our VOICE MADE A DIFFERENCE!
A promising, new Alzheimer’s drug just received full approval from the FDA. @mariashriver takes a deeper look at how it slows cognitive decline and shares everything you need to know.
2,000 more people will become ineligible for FDA-approved Alzheimer’s treatments today—and 2,000 more tomorrow. Every day @CMSGov continues to deny coverage, thousands more will lose out on #MoreTime. Enough is enough: https://t.co/Dt3y7XxE2f #AccessNow
Raise your voice for people living with Alzheimer’s! Ask @POTUS to support reversing @CMSGov’s unfair decision that blocks access to FDA-approved Alzheimer’s treatments. https://t.co/Dt3y7XybRN #AccessNow
Thank you @SenatorCollins for sharing the importance of continuing to preserve & strengthen the #AcceleratedApproval pathway and ensuring those living w/ unmet medical needs have access to @US_FDA-approved therapies during today's @SenateApprops@AppropsGOP Subcommittee hearing.
Yes, @CMSGov must remain consistent in the way it covers any drug. So be consistent and stop blocking access to FDA-approved Alzheimer’s treatments. https://t.co/Dt3y7XxE2f #AccessNow
Sooo … @SecBecerra Are you saying that it is not “reasonable and necessary” for people who could see real benefits from FDA-approved Alzheimer’s treatments to have #AccessNow ? I know a few people in this room here today and thousands across the country who beg to differ.
It's time for the last @HHSGov budget hearing of the week, and our advocates are making their prescence known. RETWEET to show you stand with them in support for #AccessNow to FDA-approved Alzheimer's drugs!