DEBRA Canada

Creating awareness about EB & support for families and people suffering from EB.

[DEBRA Canada @DEBRACanada]

𝙰 𝚂𝚙𝚎𝚌𝚒𝚊𝚕 𝚃𝚑𝚊𝚗𝚔𝚜 𝚝𝚘 𝐎𝐮𝐫 𝐒𝐩𝐨𝐧𝐬𝐨𝐫𝐬 𝚊𝚝 𝙾𝚞𝚛 𝟐𝟒𝐭𝐡 𝐀𝐧𝐧𝐮𝐚𝐥 𝐂𝐡𝐚𝐫𝐢𝐭𝐲 𝐆𝐨𝐥𝐟 𝐂𝐥𝐚𝐬𝐬𝐢𝐜!⛳️❤️‍🩹🦋
𝙵𝚘𝚛 𝙼𝚘𝚛𝚎 𝙸𝚗𝚏𝚘 𝙿𝚕𝚎𝚊𝚜𝚎 𝚅𝚒𝚜𝚒𝚝: https://t.co/bYeR6RjKHq

#eb #golftournament #fightEB #epidermolysisbullossa #ebawareness

[DEBRA Canada @DEBRACanada]

A 𝐒𝐩𝐞𝐜𝐢𝐚𝐥 𝐓𝐡𝐚𝐧𝐤𝐬 to @UrgoMedical for their generous 𝐁𝐮𝐭𝐭𝐞𝐫𝐟𝐥𝐲 𝐒𝐩𝐨𝐧𝐬𝐨𝐫𝐬𝐡𝐢𝐩 at this year’s 𝟐𝟒𝐭𝐡 𝐀𝐧𝐧𝐮𝐚𝐥 𝐂𝐡𝐚𝐫𝐢𝐭𝐲 𝐆𝐨𝐥𝐟 𝐂𝐥𝐚𝐬𝐬𝐢𝐜!!!⛳️🦋❤️‍🩹
#debracanada #eb #charity #golftournament #epidermolysisbullossa #ebawareness

[DEBRA Canada @DEBRACanada]

𝙰 𝚂𝚙𝚎𝚌𝚒𝚊𝚕 𝚃𝚑𝚊𝚗𝚔𝚜 𝚝𝚘 𝐎𝐮𝐫 𝐒𝐩𝐨𝐧𝐬𝐨𝐫𝐬 𝚊𝚝 𝙾𝚞𝚛 𝟐𝟒𝐭𝐡 𝐀𝐧𝐧𝐮𝐚𝐥 𝐂𝐡𝐚𝐫𝐢𝐭𝐲 𝐆𝐨𝐥𝐟 𝐂𝐥𝐚𝐬𝐬𝐢𝐜!⛳️❤️‍🩹🦋
𝙵𝚘𝚛 𝙼𝚘𝚛𝚎 𝙸𝚗𝚏𝚘 𝙿𝚕𝚎𝚊𝚜𝚎 𝚅𝚒𝚜𝚒𝚝: https://t.co/bYeR6RjKHq

#eb #golftournament #fightEB #epidermolysisbullossa #ebawareness

[DEBRA Canada @DEBRACanada]

A 𝐒𝐩𝐞𝐜𝐢𝐚𝐥 𝐓𝐡𝐚𝐧𝐤𝐬 to @UnderArmourCA for providing generous 𝐩𝐫𝐢𝐳𝐞 𝐚𝐧𝐝 𝐆𝐢𝐟𝐭 𝐝𝐨𝐧𝐚𝐭𝐢𝐨𝐧𝐬 to all 𝐠𝐨𝐥𝐟𝐞𝐫𝐬 at 𝐎𝐮𝐫 𝟐𝟒𝐭𝐡 𝐀𝐧𝐧𝐮𝐚𝐥 𝐂𝐡𝐚𝐫𝐢𝐭𝐲 𝐆𝐨𝐥𝐟 𝐂𝐥𝐚𝐬𝐬𝐢𝐜!!!⛳️🦋❤️‍🩹

#debracanada #eb #golftournament #epidermolysisbullossa

[Todd Keirstead @toddkgolf]

Looking forward to being Pro to the Pros at this incredible event May 1-4 in Las Vegas. @bernienicholls9 Celebrity Charity Golf & Poker Event. @DEBRACanada @betregal

[DEBRA Canada @DEBRACanada]

@InterDEBRA It was our pleasure 🫶🏼

[DEBRA International @InterDEBRA]

📣 The Consensus guidelines for diagnosis & management of anemia in EB have been published! 🎊 Congratulations to the development team on their sterling work. Thanks to DEBRA Canada for funding their production & to everyone who completed the surveys.

https://t.co/19aiDI8Bc6

[DEBRA Canada @DEBRACanada]

Order your #Nike #Butterfly #Cap 🦋🧢 today and GET A FREE Butterfly Pin🦋🧷!! #freeshipping on all #canadawide #orders. #clickhere —https://t.co/ce9J3xcy0l

[DEBRA Canada @DEBRACanada]

Get DEBRA Canada’s NEW Nike Butterfly Ball Caps!🦋🧢🦋🧢

Order yours now at our #OnlineStore! Our #Nike #Butterfly #BallCaps are a great way to show your #support and help us raise #awareness for #eb. https://t.co/ce9J3xd5PT

[InMed Pharmaceuticals @inmedpharma]

#EBAwarenessWeek - Let's continue to advocate for #EB patients & caregivers, help to foster research & development of treatments & eventually a cure. Raise awareness, donate, host an event, fundraise, advocate.

More:
@debraOfAmerica @DEBRACanada @EBResearch @EpiBullosaNews

[DEBRA International @InterDEBRA]

🦋Wings for EB🦋Take on the @DEBRACanada challenge this #EBAwarenessWeek by wearing a #ButterflyPin or #ButterflyTattoo & posting a photo on social media using hashtags #WingsForEB, #EB, #ebawareness. Don’t forget to tag @debracanada for a chance to be on their website!

[DEBRA Canada @DEBRACanada]

EB Awareness Week Oct 25-31, 2022. We challenge YOU to wear a DEBRA butterfly pin or tattoo. Share to social media with #wingsforEB, #EpidermolysisBullosa, #EB, #EBAwarenessWeek, and tag us @DEBRACanada. @InterDEBRA. Request a FREE pin or tattoo at https://t.co/mJQXg5D9Vm

[Deanna Molinaro @DeannaMolinaro]

@THEVIVIENNEUK please share.

[Deanna Molinaro @DeannaMolinaro]

I Challenge You My Friends! To partake in this #WingsForEB Awareness Campaign with with me in lou of #EBawarenessweek And guess what?! It’s absolutely #Free!!

[DEBRA Canada @DEBRACanada]

For #EBAwarenessWeek Oct 25 - 31. We Challenge you to Post A Photo wearing one of our Butterfly Tattoo’s & share using the hashtags #WingsForEB, #EpidermolysisBullosa, #EB, & #debracanada. Tag us @DEBRACanada Get your #Free #Tattoo now! https://t.co/t4sGgf3HjK

[DEBRA Canada @DEBRACanada]

Global EB Awareness Week is this week Oct 25-31. We are asking all our DEBRA Canada Supporters to help raise awareness for families affected by Epidermolysis Bullosa (EB) by downloading and sharing our digital EB Awareness Ribbon. To download visit: https://t.co/ft9kIBxXHV.

[DEBRA Canada @DEBRACanada]

A BIG thank you to @MarilynDenisCTV and the @TheMarilynShow crew for featuring DEBRA Canada Patient Ambassador Deanna Molinaro on today's show- we can't wait to see the transformation and makeover of Deanna's art studio. #EBawareness #makeover #debracanada #EBAmbassador

[DEBRA Canada @DEBRACanada]

A BIG thank you to @MarilynDenisCTV and the @TheMarilynShow crew for featuring DEBRA Canada Patient Ambassador Deanna Molinaro on today's show- we can't wait to see the transformation and makeover of Deanna's art studio. #EBawareness #makeover #debracanada #EBAmbassador