Christopher DeFelice

[Christopher DeFelice @defo550]

Facing my child's #RareDisease diagnosis was isolating, but during #RareDiseasMonth, we find solace in the strength of rare disease communities. To those navigating health challenges, warm wishes for a joyous month. May hope, happiness, and community surround you always!

[TREND Community @trendcommunity]

Today kicks off #RareDiseaseMonth! Swipe through our carousel to get familiar with a few of the disease states we're working in and why more progress is needed to address unmet needs. TREND will attend Rare Disease Day on Capitol Hill on Feb. 29, join us if you're in the DC area!

[Christopher DeFelice @defo550]

Cheers, @YouTube, for simplifying my parenting strategy! Installing adblockers on all their devices, so it's YOU, not me, hindering their video time. 🙌📺 #ParentingHacks #YouTube

[Christopher DeFelice @defo550]

🚀📅 "To serverless or not to serverless!" 🤔 Time to reconsider your architecture? 😄💡

#serverless #serverlessarchitecture

https://t.co/08ZnkOSUTx

[Christopher DeFelice @defo550]

I am thrilled to share our upcoming #TRENDCommunity Workshop at #EULAR2023 in beautiful Milan, Italy! Where we will be hosting an interactive presentation and discussion at the TREND Community event.

#MentalHealth #SleepResearch

[Christopher DeFelice @defo550]

I am looking forward to moderating a panel at World Orphan Drug Congress with respected leaders from the International Fibrodysplasia Ossificans Progressiva Association, OpenTreatments Foundation, and MDA. Learn more: https://t.co/z0rkuhg5n7

#WorldOrphanUSA #WODCUSA

[Christopher DeFelice @defo550]

🔥🌍 Is it finally game on?! Is this the dawn of a new #SearchEngineWars ? 🚀💥

https://t.co/LDh6Ba4aJv

#google #bing #microsoft

[Christopher DeFelice @defo550]

Well, I guess it's official - Elon Musk is trying to build a better truth-seeker! 🤖🕵️‍♂️ With his upcoming #TruthGPT #chatbot, we can rest easy knowing that an #ai is out there seeking the ultimate truth about the universe - and not plotting our demise!

https://t.co/Z3UP1IA1F0

[TREND Community @trendcommunity]

Join TREND Community in recognizing #NarcolepsyAwarenessDay its friends and partners in the #narcolepsy community. Please take a moment to support with our friends at @HypersomniaNews, @PWN4PWN, @Project_Sleep, and @wakenarcolepsy. Learn more: https://t.co/Cp4aloga7b

[Christopher DeFelice @defo550]

"#ChatGPT exhibits something like the banality of evil," Noam Chomsky: The False Promise of ChatGPT.

That is one way to say you hate something!

https://t.co/j0eFGNEzxT

[TREND Community @trendcommunity]

Meet our next #TRENDSetter, Lauryn! She was diagnosed with Idiopathic Hypersomnia (IH) and started advocating about this #RareDisease, hoping to bring more awareness to #SleepDisorders. Learn more about Trend here: https://t.co/nYB9r5zUqU

[TREND Community @trendcommunity]

We had an amazing week hanging out with our #RareDisease Family. Here are some highlights from our visit to DC. Thanks National Institutes of Health (NIH) and EveryLife Foundation for Rare Diseases for hosting us!
#TRENDSetters #raredc2023 #TRENDIsRare #RareDiseaseWeek

[Christopher DeFelice @defo550]

Feel free to enjoy and share the demo: https://t.co/rlohKtcPBX

#trendcommunity #TRENDIsRare

[Christopher DeFelice @defo550]

📣Exciting news on #RareDiseaseDay! @trendcommunity has seen an overwhelming response on social media, with #RareDiseaseDay tweeted 6,129 times. Other trending hashtags include #LightUpForRare with 742 tweets, #ShowYourStripes with 709 tweets, and #MND with 377 tweets.

[Christopher DeFelice @defo550]

Join us in supporting #RareDiseaseDay2023 & Day @trendcommunity with our Twitter visualization. Enjoy the visualization and share to raise awareness & make a difference for those living with rare diseases.

https://t.co/rlohKtcPBX

#rdd2023 #TRENDIsRare

[TREND Community @trendcommunity]

TREND wants to help recognize the citizen scientists making a difference in the rare disease space. Read our blog to learn more.

#RareDisease #DrugDiscovery #HealthCare #MEDTECH #Pharma #LifeSciences #BioPharma #Pharmaceuticals #CitizenScience

https://t.co/3yF1rGQQb7

[Christopher DeFelice @defo550]

So excited to see #Yankees prospect Severino pitching!

[Mozzo Analytics @Mozzorazzi]

Data data everywhere, but ... https://t.co/4qLiKthHac

[TREND Community @trendcommunity]

In 19 days: a great event supporting the 30 million in the US with a #raredisease http://t.co/kP4XI4XQBU | @giverare #crowdfunding #health

[Christopher DeFelice @defo550]

@mderedita Awesome write up, u da man, Mike!