Mai ♡

•25 year old ranting about ulcerative colitis•

[Mai ♡ @diaryymai]

long time no see but i still love my stoma💕 every single doc is trying to convince me to get it reversed since i’m so young but fuck that. my rectal stump is causing issues sometimes, so i don’t wanna risk life going back to how it was before

[Mai ♡ @diaryymai]

@sarixrefoh süße, glaub mir dass ist normal. du musst ja auch erst auf dein neues leben klarkommen und da helfen all die komplikationen null. es wird alles gut und die tränen helfen loszulassen was du durchmachen musstest🤍

[Mai ♡ @diaryymai]

@sarixrefoh ja klar!!

[Mai ♡ @diaryymai]

@sarixrefoh ich hab auch coloplast und bin zufrieden :) ich glaub das unterlaufen ist weil meine größe sich zurzeit immer ändert

[Mai ♡ @diaryymai]

@sarixrefoh stomamäßig ganz gut eigentlich! zur zeit hab ich probleme mit meiner versorgung, ständig unterläuft es mir 😪

[Mai ♡ @diaryymai]

@sarixrefoh wenn du irgendwelche herzprobleme hast oder hattest besprich xeljanz bitte ganz ausführlich mit deinem arzt, ich hatte richtige herzschmerzen davon

[Mai ♡ @diaryymai]

@sarixrefoh ich musste heulend betteln im heidelberg klinikum 😭

[Mai ♡ @diaryymai]

almost 4 months into ileostomy life and i love it.

i just came home from rehab that basically was useless but i start my new job on the 1st, i‘m meeting a long distance friend👀 soon, and in general everything’s better!!

surgery gave me my life back.

[Mai ♡ @diaryymai]

my little stoma is starting to look so cute and my cut next to it is almost completely closed too

[Mai ♡ @diaryymai]

mein euroschlüssel kam heute endlich an 🥳 und meine reha wurde auch bewilligt in der klinik die ich ausgesucht hab🥰

[Mai ♡ @diaryymai]

before i went to bed i googled how people prevent blowouts etc. just out of curiosity.

guess what happened that same night🥲

even though i got it all over my wound and spent an hour cleaning up, it’s so much better than shitting yourself

[Mai ♡ @diaryymai]

3 weeks post op today, cut is healing nicely but still not well enough to pull the stitch out.
stoma does good, has a little wound(?) from one of the stitches opening too soon but over all healing good.
oh and i am WEAK like tf?

[Mai ♡ @diaryymai]

also, bloating with a stoma??? kill me now???

[Mai ♡ @diaryymai]

i am dehydrated as fuck and my HB is super low too, fun times

[Mai ♡ @diaryymai]

i am going insane because i MYSELF smell my bag the whole fucking time but everyone around me claims to smell nothing.

[Mai ♡ @diaryymai]

so when does the overwhelmed crying stop after ostomy surgery because i cry about anything and everything 🥰🥰🥰🥰🥰

[Mai ♡ @diaryymai]

waiting for my stoma nurse to get here. i’m kinda nervous idk why, we’re just gonna practice and she’s gonna look at my wound. my dressing has been changed everyday this week, everyone wants to poke around in it😫😫😫😭

[Mai ♡ @diaryymai]

i cried on the drive home today because for the first time in forever i didn’t have to scan the streets for bathrooms, i didn’t have to hold back until im all cramped up, i didn’t have to have a panic attack. i just sat and drove home.

[Mai ♡ @diaryymai]

i’m taking getting up at 5am to empty my stoma over waking up every 2h to go
to the bathroom ANY DAY