@Paula_JKnight I’m staying with a friend who’s using the other set up and has explained it to me. Also a v useful thing on FB which I will DM a you on there in case it would be useful.
@did_40 @Paula_JKnight As an able-bodied person w a friend w severe ME I went to see what I did. My friend posted about a new insta acc. Then about her own situation. I commented on insta but only emojied on FB, shared a general post about Severe ME on my page. Will think about this, thx for challenge
After 8 months, we just received the news that @NIH WILL NOT be funding our #LongCovid microclot study. They declined to provide reviewer comments. I'm so sorry to everyone in the community who was counting on this work, I don't know what to say other than we will keep fighting
@MarieFleur3 @EG196411307@Dr2NisreenAlwan I have no significant underlying condition & stick with masks - don’t want long covid and don’t want to make other people ill either. You aren’t alone.
Really well worth a read. I have had a very privileged life but seen many others that haven’t been and felt how little difference and how huge a difference too.
@web_goddess@_DiningCar We’re on a train from Paris to Zurich! Not eating this time though because we had delicious food at Gare de Lyon’s (recommend le Train Bleu, extraordinary place!)
@Deborah62655228 Similar - sepsis & thanks to my partner, a medic, who works in ED, she drove me there, I was in resusc asap > HDU & out of hospital in 5 days, back at work in 5 weeks. But I too cld have easily died in the waiting room. (I also had EXCELLENT care from all, thanks @SwanseabayNHS )
A record amount is expected to be bet on the big race today, the Taibach Grand National gets under starters orders at 5:15 in Port Talbot. Bookies favourite Whose Jumpers That Pullover is currently 12/1 trained and ridden by local legend Dafad Iwan.