Chronically Fatigued

Queer, demisexual, disabled, nonbinary, nerd, librarian, cat parent, crafter (she/her).

My opinions are my own.

[Inflow | The ADHD App @get_inflow]

ADHD: DO SOMETHING

Me: Should I shower? Go outside for a walk?

ADHD: No, too much energy

Me: So what then?

ADHD: IDK JUST DO SOMETHING RIGHT NOW NOW NOW

[Chronically Fatigued @disabled_nerd]

My cat Frog just walked up to me with two puzzle pieces stuck to her side. From the puzzle I finished and put away more than an hour ago!

[Nia | The Chronic Notebook @chronicnotebook]

Imagine not being able to do tiny things without feeling sick. Dancing to music? Now you're sleepy. Reaching for something on a high shelf? Now you're dizzy. Went to get groceries? Now you're achy. Sent an email? Now you're exhausted. That's what being chronically ill is like.

[The Tweedy Mutant @the_tweedy]

I want to talk about the *accessibility* mental load. 🧵

[Chronically Fatigued @disabled_nerd]

Spoke to property manager. Told to submit written maintenance request to super's (unattended) office in our complex. She'll get in touch with super who will follow up with me. So now my brain won't let me do anything except sit here and WAIT!

Did i mention im in a ME/CFS crash?!

[Chronically Fatigued @disabled_nerd]

Making phone calls is a neurodiverent nightmare for me. My toilet is broken so i call the super. Neither number works. Call head office, get new number. Doesnt work. Call office again, talk to new person.
I just used up my annual tolerance for phone calls & its still not solved

[Candace D. @DiaryofaSickGrl]

If disabled people are telling you that “disabled” isn’t a bad word, then it’s not a bad word.

[Nia | The Chronic Notebook @chronicnotebook]

One chronic illness thing we don't talk about enough is how difficult it makes it to express your emotions. You could be feeling the deepest hurt, anger, grief or frustration but if you release it, if you cry or yell, it makes your symptoms worse. Feeling your feelings costs you.

[Chronically Fatigued @disabled_nerd]

This sums it up perfectly. And on the day I made the decision to take medical from work too. Gotta get better at not letting my enthusiasm trick me into overdoing it, but it's so damn hard when just want to live my life.

[Whitney Dafoe @DafoeWhitney]

I’m too sick to do anything but I’m so fucking excited to do everything.

#MECFS #chronicillness

[Callum Stephen (He/Him) @AutisticCallum_]

The autistic/ADHD desperation to hold a thought until you can action it or write it down, because if you stop thinking about it for even a *second*, it may vanish, never to return.

[Hell on Wheels🔥♿🔥 @rollwthepunches]

Pro tip when writing image descriptions for folks: You're not writing a professional newspaper caption of a stock photo.

Just let blind and low vision users know what they might wanna see! For example:

[@[email protected] @Imani_Barbarin]

I’ve said it before and I’ll say it again:

NEVER HIDE A DIAGNOSIS FROM YOUR CHILD. You are setting them up for so much I can’t even unfurl it all.