DMD India

Duchenne muscular dystrophy (DMD) is a condition that causes skeletal and heart muscle weakness that quickly gets worse with time. There’s currently no cure.

[DMD India @dmdindiamom]

@bharathmdfound1 @rarediseases_in @MDAorg

[DMD India @dmdindiamom]

A bitter truth of schools. Most of the pvt school deny admission.
@PTI_News
what's your next step after this story? Can media help 1000 of kids sitting home ? it's a known issue which only being talked on Disability day and then a big silent till next year.
@aajtak @IndiaToday

[Press Trust of India @PTI_News]

VIDEO | "I want to send a message that though we celebrate these days every year, but the ground reality is that they are not treated well in the country. I want to say to everyone that we should talk about it. We should ensure inclusivity. They should get their fundamental rights. I have a 3-year-old son, who is suffering from Duchenne Muscular Dystrophy, in which 40-60 pc children have autism spectrum, epilepsy, and other cross disabilities, unfortunately my son has ASD, epilepsy. When he was small, there were developmental delays. We had taken him to a school for admission, he was not given admission, I did not get any written response. There are other schools which accommodate. When we had to put him in Nursery class, we understood that his cognitive skills were not matching that of other children, we then thought to admit him a year late. Special schools should be compassionate. One cannot deny admission. It's a shocking thing. They say they don't have the facilities, but they have to have it as it is a government directive. He should go to schools. I am facing this and I am wondering what other people would have been going through. I have complained at Child Dept. They asked me to file an FIR. I want to say that when they are specialised, then why it is happening, schools should take responsibility," says Madhuri Patle, Mrs Universe India 2023, on International Disability Day, who is also struggling to get her son admitted to school because he is suffering from Duchenne Muscular Dystrophy.

#InternationalDisabilityDay2024 #DuchenneMuscularDystrophy

[Press Trust of India @PTI_News]

VIDEO | "I want to send a message that though we celebrate these days every year, but the ground reality is that they are not treated well in the country. I want to say to everyone that we should talk about it. We should ensure inclusivity. They should get their fundamental rights. I have a 3-year-old son, who is suffering from Duchenne Muscular Dystrophy, in which 40-60 pc children have autism spectrum, epilepsy, and other cross disabilities, unfortunately my son has ASD, epilepsy. When he was small, there were developmental delays. We had taken him to a school for admission, he was not given admission, I did not get any written response. There are other schools which accommodate. When we had to put him in Nursery class, we understood that his cognitive skills were not matching that of other children, we then thought to admit him a year late. Special schools should be compassionate. One cannot deny admission. It's a shocking thing. They say they don't have the facilities, but they have to have it as it is a government directive. He should go to schools. I am facing this and I am wondering what other people would have been going through. I have complained at Child Dept. They asked me to file an FIR. I want to say that when they are specialised, then why it is happening, schools should take responsibility," says Madhuri Patle, Mrs Universe India 2023, on International Disability Day, who is also struggling to get her son admitted to school because he is suffering from Duchenne Muscular Dystrophy.

#InternationalDisabilityDay2024 #DuchenneMuscularDystrophy

[Vishal sharma @Dogra1973]

@PTI_News It is story everywhere . Govt scemes are laid but on ground it is zero. Faced similar treatment from all the schools.

[DMD India @dmdindiamom]

@PTI_News A bitter truth of schools. Most of the pvt school deny admission. @PTI_News what's your next step after this story? Can media help 1000 of kids sitting home ? it's a known issue which only being talked on Disability day and then a big silent till next year.

[DMD India @dmdindiamom]

@Advait_Prashant I would like you to invite to motivate DMD families suffering from rare disease named DMD (Duchenne Muscular Dystrophy). Your 1 hour session may enlighten many of them.

[Gitika Anand @GitikaAnand20]

https://t.co/ubsJW3AlTr

[DMD India @dmdindiamom]

https://t.co/SwQuDHUVA6

[DMD India @dmdindiamom]

#DuchenneMuscularDystrophyAwareness #DMDAwarenessDay #SupportDMDCommunity

[DMD India @dmdindiamom]

@bharathmdfound1 @rarediseases_in @MDAorg

[DMD India @dmdindiamom]

https://t.co/SwQuDHUVA6

#DuchenneMuscularDystrophyAwareness #DMDAwarenessDay #SupportDMDCommunity

[DMD India @dmdindiamom]

@INOXMovies

Please also publish a list of inox cinema which are wheelchair accessible. Our group has many Kids who would like to go and watch movies.

[DMD India @dmdindiamom]

@inoxmo
A DMD child on wheelchair deprived of simple joy of watching movie in a theatre in Indirapuram, pincode 201014, Ghaziabad due to lack of accessibility. Please let us know if your theatre is accessible, with ramps at entrance, to reach seat and wheelchair restrooms.

[DMD India @dmdindiamom]

@us_cinemas Please also publish a list of US cinema which are wheelchair accessible. Our group has many Kids who would like to go and watch movies.

[DMD India @dmdindiamom]

@us_cinemas
A DMD child on wheelchair deprived of simple joy of watching movie in a theatre in Indirapuram, pincode 201014, Ghaziabad due to lack of accessibility. Please let us know if your theatre is accessible, with ramps at entrance, to reach seat and wheelchair restrooms.

[DMD India @dmdindiamom]

@_PVRCinemas Thanks. Please also publish a list of PVR cinema which are wheelchair accessible. Our group has many Kids who would like to go and watch movies.

[DMD India @dmdindiamom]

@_PVRCinemas
A DMD child on wheelchair deprived of simple joy of watching movie in a theatre in Indirapuram, pincode 201014, Ghaziabad due to lack of accessibility. Please let us know if your theatre is accessible, with ramps at entrance, to reach seat and wheelchair restrooms.

[DMD India @dmdindiamom]

@us_cinemas
A DMD child on wheelchair deprived of simple joy of watching movie in a theatre in Indirapuram, pincode 201014, Ghaziabad due to lack of accessibility. Please let us know if your theatre is accessible, with ramps at entrance, to reach seat and wheelchair restrooms.

[DMD India @dmdindiamom]

@inoxmo
A DMD child on wheelchair deprived of simple joy of watching movie in a theatre in Indirapuram, pincode 201014, Ghaziabad due to lack of accessibility. Please let us know if your theatre is accessible, with ramps at entrance, to reach seat and wheelchair restrooms.

[DMD India @dmdindiamom]

@GulatiSheffali Please share the recording for others benefit who can not join it.

[Sheffali Gulati @GulatiSheffali]

Hi there,

You are invited to a Zoom webinar.
When: Apr 5, 2023 08:00 PM India
Topic: What do the experts say? - What can a pediatric neuropalliativist do?

Register in advance for this webinar:
https://t.co/ytU1X6acUd

After registering, you will receive a confirmation email

[shanthi @thiya369]

@Proud2BMENON @GajendraRawat7 @myogiadityanath @Uppolice @dgpup @Gen_VKSingh Entire Sunrise Greens is surrounded by Illegal encroachment which are unsafe for the life of children, sr.citizens and all the residents.A sincere action from the authorities on these illegal activities will set an example for the young generation.

[bharathmdfoundation @bharathmdfound1]

@ShashiTharoor @MSJE_AIC @socialpwds @PMOIndia @KTRTRS @SajjanarVC @wdscts @UHC4India @TMDA_TELANGANA @dmdindiamom
#accessible #public #transport #powerwheelchair #ramps #inclusive Sir please think of those with permanent disability like Muscular Dystrophy