Courtney Johnson

Real. Blunt. Passionate. Soft heart and loud mouth. I tell ya how it is, straight up. Mostly peace, love, and light & a little go fuck yourself😘

[Courtney Johnson @dntbesensitive]

@DruryOutdoors Good luck! You've got this!

[Tabitha Moe MD, FACC @achdoctmoe]

Today I just can't. Today the world lost a bright, Sandy, angel light. The world is darker for it. #achdsucks #achd

[HeterotaxyConnection @HeterotaxyOrg]

Sneak peek at what we’re working on at our board meeting. Stay tuned for a big announcement sometime really soon!

[HeterotaxyConnection @HeterotaxyOrg]

Our board is getting an early start this morning; it’s omelettes and brainstorming for breakfast. #heterotaxyconnection #HCboardretreat2018

[HeterotaxyConnection @HeterotaxyOrg]

Our board members are converging on St. George, Utah as we tweet! It’s time for the annual board retreat and planning weekend! #heterotaxyconnection

[Hopeful Hearts Foundation @Hopeful__Hearts]

“Dear Momma,

I have seen you in many waiting rooms with a smile on your face for your nervous child. It’s so convincing that anyone would have to look twice to see the sadness underneath.” #chd

https://t.co/YYPte49Gyc

[HeterotaxyConnection @HeterotaxyOrg]

Board member @aliranger29 is on Capitol Hill this morning attending the Rare Disease Congressional Briefing, learning about different rare diseases and how legislation can be useful in accelerating treatment and innovation.

[Courtney Johnson @dntbesensitive]

@DruryOutdoors You see that face of hers? That's pure elation. No worry about meds, pain, fatigue, doctors. Just bliss.

[Courtney Johnson @dntbesensitive]

So amazing! Look at my girl's smile! https://t.co/xVMsZeaVJ6

[Drury Outdoors 🦌 @DruryOutdoors]

Kaylee tags her first TWO deer, Terry gets a birthday surprise, Mark has son great encounters and even more happens in Phase 1. Check out THIRTEEN’s Cutting Room Floor: https://t.co/4maIaGThm1

[Drury Outdoors 🦌 @DruryOutdoors]

Deer reveal?!? 🦌 Tonight is the season premiere of THIRTEEN and our Catch-A-Dream family is in Iowa! A week we will never forget or take for granted 🙏🏻

To donate/help fund a child’s hunt: Text DOD to 71777 - Every penny is greatly appreciated & supports a wonderful cause!

[Courtney Johnson @dntbesensitive]

We LOVE Traditions! https://t.co/v9JVwWvxeC

[Traditions Firearms @TraditionsPF]

You do not want to miss this special episode of @druryoutdoors THIRTEEN tonight at 10 PM EST on Outdoor Channel!

The Catch-A-Dream Foundation and Mark Drury take Kaylee Wilson on this… https://t.co/5f7GOWyHOV

[Courtney Johnson @dntbesensitive]

Tonight my kid will be on the show THIRTEEN with The Drury family thanks to Catch-A-Dream! https://t.co/nXLqMeEB5R

[Taylor Drury Land @taylordruryland]

TONIGHT IS THE NIGHT!!!! Season 5 of THIRTEEN premieres then the debut of Critical Mass on @OUTDChannel — Back to back awesomeness 👊🏼💃🏻

I’ll be LIVE on @druryoutdoors Instagram at 8:30pm CST (leading up to the shows) so tune in for even more exciting news!!

[Alison Chandra @aliranger29]

You know when they need two large envelopes to send you your EOBs from one day's worth of procedures that it's going to be a big one.

Total bill: $20,962
My responsibility: $1,620

This is why access to AFFORDABLE care matters. 20K isn't affordable. 1.6K I can do.

[HeterotaxyConnection @HeterotaxyOrg]

Whatever today bring to you, we want you to know that you are not alone.

You are seen, you are heard, you are loved. Happy Mother's Day.

#mothersday

[HeterotaxyConnection @HeterotaxyOrg]

A beautiful read from a heterotaxy mama, @AnnVoskamp, that we know will resonate so deeply with our community. https://t.co/aMpSd3w5Rk

[HeterotaxyConnection @HeterotaxyOrg]

This thread! This is why we're so passionate about raising awareness. #HAD2018 https://t.co/ZnOgMAslP0

[Courtney Johnson @dntbesensitive]

@HeterotaxyOrg @ButWhyKids @aliranger29 Amazing!!!

[Courtney Johnson @dntbesensitive]

SO cool! https://t.co/JvIeae07Rd

[HeterotaxyConnection @HeterotaxyOrg]

Podcast fans: check out this super-cool mini episode from @ButWhyKids to hear from one of our very own heterotaxy families, @aliranger29 and her kids, Ethan and Zoe.

[Courtney Johnson @dntbesensitive]

@HeterotaxyOrg @threadless ALL OF THEM😆!