Haematologist (of the red cell variety) and Deputy CMO. Loves London, the NHS, food & walking. Tweets are personal views, RT not necessarily endorsement.
Red Cell Day 2024 ✨ Our SWL Lead Mentor Patrish and Program Manager Addassa had a blast at St George's Hospital on July 22nd! The day was packed with insightful talks, great food, and fun activities. Huge thanks to the St George’s Haematology team for hosting us! ❤️ #SickleCell
Fantastic news for people living with transfusion dependent thalassaemia!
We await further news of NICE's separate decision on sickle cell. For up to date information about the ongoing SCD appraisal, we have an FAQ sheet https://t.co/mlEjb14Y54
The UK authorities have agreed to provide ex-vivo gene editing therapy as part of the National Health Service for Beta Thalassaemia. This is important because it demonstrates that good value innovative therapies will be funded, despite the cost. https://t.co/oX8KPdNDDb #NHS
We are thrilled to share some exciting news!
The NHS will soon offer gene therapy to patients over 12 with transfusion-dependent #Thalassaemia, thanks to NICE's groundbreaking recommendation under the managed access agreement! 🌟
🧵 Following recent incidents across the UK, our Group Chief Executive Jacqueline Totterdell has written the following to all staff:
Dear colleagues,
Like me, I know you will be horrified by the abhorrent racial violence we are seeing in towns across the UK 1/4
Aisha is an O positive blood donor, donating for the first time at Shepherd's Bush. ❤️
We still urgently need people with 🅾 positive or 🅾 negative blood to book in, donate and help us fill appointments and boost stocks. ➡️ https://t.co/o7unKOKu5u
Young individuals (10-24) with Sickle Cell in NWL, NCL & SWL London: Join our Peer to Peer Mentoring program! Our mentors with Sickle Cell can help you connect and manage your condition. Scan the QR code or ask a caregiver to refer you. #SickleCell#Mentoring#London
We are finally here! Today is our Red Cell Celebration day. We’ll be starting this afternoon at 3pm and we’re so excited to have this chance to get together. We can’t wait to see many of you there ❤️ See the poster below for details on where to meet @docesr
Thank you to the @BDA_Dietitians for sharing the EventBrite link to my upcoming inaugural Advancing Sickle Cell Nutrition Conference - I’m delighted to have @SusanPriceRD as a speaker representing our profession. Don’t delay in booking - nearly 50% of the tickets have sold.
The UK will become the first country in the world to roll out a national vaccination programme against Respiratory Syncytial Virus (RSV), protecting infants & older people from becoming seriously ill. RSV accounts for 39,000 hospitalisations each year.
https://t.co/Nom2xAVo02
Come and work with us! Part-time band 7 clinical/counselling/health psychology post in #sicklecell & #thalassaemia Creative and flexible work in a lovely team where psychology is really valued https://t.co/FwbthcXwXI @docesr @StGeorgesTrust @SickleCellUK@teamukts@HCCWestLondon
Come and work with us! Part-time band 7 clinical/counselling/health psychology post in #sicklecell & #thalassaemia Creative and flexible work in a lovely team where psychology is really valued https://t.co/FwbthcXwXI @docesr @StGeorgesTrust @SickleCellUK@teamukts@HCCWestLondon
*Supercell* is #1 globally! Our CEO John spoke with The Guardian about its impact on sickle cell awareness. "Sickle cell gets very little attention. This show portrays it differently." Thanks, @realrapman! Read more: https://t.co/YB1nRD8z0r
#SickleCell#Supercell#Netflix