Save Our Medicine

NPC is a neurodegenerative disease and every moment counts. @FDA please do not take away access to the medicines we need to survive and thrive. #saveourmedicine

[Save Our Medicine @dontgiveuponnpc]

@JasonWGeorge Thanks for helping create the momentum needed create change! Our kids are so grateful to you!!! 💓

[Jason Winston George @JasonWGeorge]

This situation breaks my heart

If bureaucracy is the only reason these sick kids can’t get the ONE medication that seems to prolong their life or give any quality of life….

….we have to change that

I hope, like me, you want to learn more

[Save Our Medicine @dontgiveuponnpc]

@CelebrityPageTV @HopeForMarian @kramergirl @PatientWorthy @US_FDA

[Save Our Medicine @dontgiveuponnpc]

@CelebrityPageTV @HopeForMarian @kramergirl @PatientWorthy Thank you @kramergirl is such a powerful advocate, thank you so much!

[Celebrity Page @CelebrityPageTV]

WATCH: @kramergirl is chatting all about her latest projects and the importance of the #SaveOurMedicine campaign. ❤️ Learn more at https://t.co/vYLucqdsWD. ⬇️
@HopeForMarian
@PatientWorthy https://t.co/UfKUXuIBHz

[Save Our Medicine @dontgiveuponnpc]

@koujaianunit1 @US_FDA @US_FDA

[Save Our Medicine @dontgiveuponnpc]

@koujaianunit1 @US_FDA Absolutely!!! #saveourmedicine

[Trueheart @wearetrueheart]

Proud to team up with @HopeForMarian Foundation for the #SaveOurMedicine campaign. Be a hero and help kids & adults with Niemann-Pick Type C (NPC) have access to their life-saving medicine by signing & sharing the @Change petition at https://t.co/TacYaZQXHY 💜

[Jana Kramer @kramergirl]

I’m so honored to team up with this fierce group of Mamas @HopeForMarian Foundation for the Save Our Medicine campaign. Be a hero and help kids with Niemann-Pick Type C (NPC) have access to their life-saving medicine by signing & sharing the petition at https://t.co/pVmrphAHGV

[Roy Philpott @RoyPhilpott]

A close friend of mine has a young daughter who is battling Niemann Pick Type C- a fatal disease. NPC is like Alzheimers/Parkinson’s/ALS all in one, causing declines in how we move/talk/think. Consider signing this petition and donating to this great cause
https://t.co/P6SFr2HFsr

[Save Our Medicine @dontgiveuponnpc]

@caraet Omg

[Save Our Medicine @dontgiveuponnpc]

The clock is ticking @US_FDA! When are you going to save access to life changing medication for families living with NPC (Niemann Pick Type C)?

Save these children’s lives.

#DontGiveUpOnNPC
https://t.co/RPqKkHe4nw