Donating red blood cells and platelets today, hoping to save some lives. Please consider donating, and you can save some lives also.
Sending hugs and much love to all my friends and family. I hope you have a blessed weekend 🙏❤️
@VinoNStrosGal I can definitely understand, as I know I remember you before during and after. And as you know, fighting my own health issues. Sending hugs to you and much love ❤️🙏
I swear God looked down at me today and said, “You know what? She’s suffered enough.
Send in the Nicholas Sparks HVAC technician.”
This man walked into my house looking like the ruggedly handsome lead in a movie where he owns a boat, fixes things with his hands, and somehow teaches a chronically ill woman to love life again by the second act.
Meanwhile, I’m standing there discussing cold showers and tap water safety in front of my parents and this man, while internally reacting like a middle school girl suddenly forgetting how to function in the presence of an extremely attractive human being.
And to make matters worse, this man kept making direct eye contact with me, smiling, and very clearly flirting, which my chronically ill, housebound nervous system was absolutely not prepared to process today.
Anyway, I have now retreated to my room to recover emotionally with Patrick Swayze in Road House (1989) playing in the background. ☺️😂
How often do clinicians actually ask how you’re doing and mean it?
Just a few minutes ago an RN looked me in the eyes and said,
“I don’t believe you. I see pain behind your eyes.”
I broke down on the spot.
It made me realize how much I keep locked away just to get through the day.
For those of you living this, what happens when someone finally sees you?
This could be a turning point.
A member of Congress, Buddy Carter, attended our event and listened directly to patients.
Now, we’ve secured a meeting at the federal level.
For millions of pain patients who’ve been ignored, this matters.
I slept three hours and woke up feeling like I got hit by a truck.
Not just from the pain, from the whiplash.
Last Thursday, I was sitting in a spinal surgeon’s clinic, right in front of him, while he scrolled through slices of my Sacral MRI.
He stopped on a few images.
Enhanced them.
Then he turned the screen toward me and said,
Do you see this?
This isn’t a Tarlov cyst. This is a pelvic mass.
And almost immediately after, he said,
This is a zebra finding.
What makes this worse is that he wasn’t saying this in a vacuum.
Leading up to that appointment, I already had imaging, a sacral MRI, a lumbosacral MRI, and a CT scan, all from the same hospital system.
Every single one pointed to the same thing, a large Tarlov cyst, roughly golf ball sized at the S1, S2 region, with osseous remodeling of the sacrum, in the exact region tied to my symptoms.
He looked at all of it.
All the slices.
All the reports.
And still said,
No, they’re all wrong.
This is a pelvic mass.
He was going directly against everything that had already been documented.
And he didn’t just say it and send me on my way, he worked it up.
He pulled a list of hospitals he’s affiliated with, where he operates, consults, has connections, and told me to pick one.
He gave me instructions like this was already in motion,
When you’re on the road, call my office, I’ll make calls, I’ll make sure the right people see you, surgical teams, whoever needs to be involved.
This wasn’t casual.
This was coordinated.
So I did exactly what I was told.
My mom, my dad, and I got in the car, over an hour drive, and the second we were on the road, I called.
As soon as we arrived, they were already notified, and within minutes I was triaged and moved straight into a room.
For five days, I lived inside that word, mass.
My mom thought she might lose me.
I didn’t sleep. I spiraled.
Every symptom felt like confirmation.
Then yesterday, after hours in a hospital room, after waiting to see who would take ownership of it,
They came back with this,
We’re not admitting you.
Just like that.
No urgency, no plan, no ownership, just a quiet retreat back into the chart.
And suddenly the story changed.
Now it’s dural ectasia.
Now it’s foraminal involvement.
Now it’s nothing we can do here.
Same body.
Same symptoms.
Two completely different narratives.
So I said it out loud, sitting there with my parents watching this unfold, PA present.
This is what happens when you’re a zebra.
They teach it in medicine, when you hear hoofbeats, think horses, not zebras.
Except some of us were never horses to begin with.
And when you’re a zebra, you can feel the moment they start backing away.
The questions get shorter.
The room gets quiet
And somehow you’re the one walking out without answers.
Because once it stops being straightforward, once it doesn’t fit cleanly into a box, you can feel them start to let go of it.
That’s when you’re on your own.
Not because anyone is trying to hurt you.
But because no one wants to be the one to take it on.
On my way out, the PA said something she tried to walk back,
You might want to find a hospital that… cares about this stuff.
I stopped her.
Cares about this stuff?
She stumbled, tried to soften it, but it was already out there.
So let me translate it,
Find a place that doesn’t flinch when the case isn’t easy.
Find a place that doesn’t back away when it’s not a horse.
Find a place that doesn’t discharge zebras and send them home like this.
Then she said it,
Try the Mayo Clinic, get a third opinion.
A third.
Not because I haven’t tried.
Not because I haven’t shown up.
But because nobody here was willing to go any further with it.
So it gets passed along.
Again.
And again.
I’m not giving up.
I don’t have that luxury.
This is my body, my life, and I already carry enough.
I’m not going to spend the next few years being passed around until something gets worse.
I’m going to find someone who actually understands cases like mine.
This should be headline news EVERYWHERE.
A Pfizer insider who was former head of toxicology in Europe has just come out and said something that many "conspiracy theorists" suspected.
He estimates that 20 000 to 60 000 people in Germany have died from the c*vid vaccine.
This was said at a parliamentary enquiry commission in Germany.
So why isn't this massive news being reported everywhere?
Is the mainstream media that has recieved millions in funding from Bill Gates deliberately covering this up... 🤔
@VinoNStrosGal This is sad to watch, providers completely ignoring patients, as if they are not even there, as if they are not even care providers. Sad, just so sad!!
Astros offense has been the major storyline.
1st in MLB in runs: 39
1st in WAR: 2.2
1st in doubles: 17
Tied for hits: 55
2nd in OPS: .829
2nd in wRC+: 142
6th in AVG: .271
Something is happening here.
This evening we stepped outside and looked up, and for a moment, the whole neighborhood stood still.
Clear sky, quiet air, people gathering in the street like something bigger than all of us was passing overhead.
And it was.
Artemis II
After more than five decades, we’re reaching back toward the Moon again, and we just watched it with our own eyes.
No filters. No screens. Just history moving across the sky.
You could feel it, that shared pause, neighbors pointing, voices soft, everyone knowing this wasn’t ordinary.
Some moments remind you we’re still capable of wonder.
Tonight was one of them. 🌕 ✨
There’s a part of chronic pain people don’t talk about.
It’s not just what it does to your body.
It’s what it does to how people see you.
You can feel the shift.
Their patience gets shorter.
Their understanding gets thinner.
Their expectations don’t adjust, they just turn into disappointment.
People don’t always say it out loud.
But you can hear it in the tone.
In the way they look at you when you can’t do what you used to.
In the way they stop asking.
In the way they quietly start seeing you as less.
It’s subtle.
Until it isn’t.
And you’re left carrying two things at once:
A body that doesn’t cooperate,
and the realization that your value to some people was tied to what you could do.
Not who you are.
Not what you’ve endured.
Just… what you could produce.
The pain is real.
But so is that shift.
And one day you realize
you didn’t just lose parts of your body you could rely on…
you lost the illusion of who was really in your corner.
CB Bucknor is an inside job. Im convinced he has been tasked by MLB to screw up so much that we will have no choice but to fully accept robot umpires. No one man can be this bad