Jenny Downs

BAppSci, MSc, PhD, Principal Research Fellow at Telethon Kids Institute. I research child development and disability.

[Associate Professor Amy Finlay-Jones @amyfinlayjones]

Our SR of early #motorfunction as a transdiagnostic marker of atypical #neurodevelopment is now out in Pediatrics. Delighted to lead this with superstar Dr Lim!

Early Motor Function of Children With Autism Spectrum Disorder: A Systematic Review https://t.co/muYicQDc0o

[Jenny Downs @drjennydowns]

Well done for this report, untangling pathways for readier access to evidence in treatments!

[CliniKids @clinikids_au]

🆕 A landmark report launched today on interventions for children on the autism spectrum, commissioned by the National Disability Insurance Agency (NDIA), completed by a team of researchers with the @AutismCRC . Thread below 🧵⬇️

https://t.co/Ax2eZE7fE2

[Jenny Downs @drjennydowns]

Beautiful Charlotte and family, we need answers!

[The Kids Research Institute Australia @TheKids_AU]

No one has answers for what disease or condition Charlotte might have. No name, no prognosis, and no evidence-based therapies that could help her.

At Telethon Kids, we want to solve challenging medical mysteries like Charlotte's.
https://t.co/TPjDqNOw5f

[The Kids Research Institute Australia @TheKids_AU]

Telethon Kids researchers are calling for a greater focus on creating opportunities for children with disability to participate in the community, after finding a clear link between participation and better quality of life.
https://t.co/E6HNaohGcj

[CDKL5 - IFCR @CDKL5_IFCR]

ICCRN has received a NIH U01 grant to clinically validate #biomarkers & #clinical outcome assessment measures appropriate for use in upcoming #clinicaltrials. This is a major milestone for the #CDKL5 community. Thank you to everyone that made this possible
https://t.co/08fOsJyXLb

[Jenny Downs @drjennydowns]

Very proud to work with the International Foundation for CDKL5 Research who ran their family education and awareness conference online this year! Very honoured to start their conference talking about quality of life and living well at home! @CDKL5USA
https://t.co/gVcxZkD2C6

[Jenny Downs @drjennydowns]

Proud!!

[Jay Handlin @jayhandlin]

This is my daughter, Rachel Handlin. Tonight, she earned her full Bachelor of Fine Arts degree in Photography & Media from the prestigious California Institute of the Arts, @CalArts⁩. Rachel has #Downsyndrome.

I am officially the proudest father on the planet.

Fight me.

[Jenny Downs @drjennydowns]

Please watch, so gorgeous, so uplifting, so inspiring! Such a joyful ode to what we want back and a reminder to think and act to reform other things that we might to improve - post COVID-19!

[Stephen McDonell @StephenMcDonell]

If you need some uplifting in these dark times, have a look at this, with the sound turned up properly. That's some flashmob. Brings tears to your eyes. We'll get through this everyone!

[Jenny Downs @drjennydowns]

So pleased to work with therapist across the globe and with https://t.co/gMcEEliXX5 to support children with complex needs in home participation during social isolation - https://t.co/BEuzrdej5z

[International Rett Syndrome Foundation @Rettsyndrome]

We have mobilized our global therapy experts to put together practical enrichment therapy ideas to use at home. Check out all these ideas and let us know what’s working for you.
https://t.co/vP9sF7XB1x

[Jenny Downs @drjennydowns]

Well done Jack, great to be working with you and the others these last few years! Jenny

[Save Our Sons Duchenne Foundation @SaveOurSons]

Very impactful hearing directly from Jack in relation to using a standing wheelchair!

#sosduchennefoundation
#ACTTConference2020

[Schmidt Ocean @SchmidtOcean]

The pose at the beginning - w/ arms+web spread out like umbrella while drifting passively - is probably a feeding posture. When arms are spread, the long finger-like cirri ( 1 pair for each sucker along length of all arms inside its web) can be visible (Best glimpse in vid ~:28)

[Jenny Downs @drjennydowns]

We have just shown that children with severe disability who are given a gastrostomy then have fewer hospitalisations for all causes except chest illnesses, helping them to have stronger lives. https://t.co/m6xCOTRNbd #intellectualdisability #gastrostomy #qualityoflife

[RaineStudy @RaineStudy]

New Raine Study Research: The contributions of fetal growth restriction and gestational age to developmental outcomes at 12 months of age: A cohort study
https://t.co/ZNQUwX5bNi @telethonkids

[Jenny Downs @drjennydowns]

Quality of life researchers enjoying quality of life at the recent ASID 2019 conference in Adelaide #ASID2019

[Jenny Downs @drjennydowns]

Very excited to be a part of this important work!

[Associate Professor Amy Finlay-Jones @amyfinlayjones]

Our #ASCEND group @telethonkids is delighted to have received a WACHRF grant to examine biopsychosocial origins of neurodevelopmental risk and resilience. Excited to work with @KandiceJade @gailalvares @mellicTKI @DrNatashaReid and all our other brilliant collaborators on this!