This new clinical statement is definitely worth checking out, alongside one about aspiration pneumonia. Really useful evidence based guidance. I'm proud to have been involved in the process. @TheAPPMuk#pedpc
BTS Clinical Statement on the prevention and management of community-acquired pneumonia in people with learning disability https://t.co/7OIwAseP5N
@BTSrespiratory
HCP insights emphasize the need for a standardised tool to assess breakthrough pain in paediatric palliative care, to enhance patients’ pain related diagnosis, management, and quality of life https://t.co/BoDEFPgJNT #mdpichildren via @MDPIOpenAccess
@HelenTurnham@EmilyHarrop9@NeonatalEthics
Great to join the Decision-making and Long Term Ventilation seminar in Oxford for a thought provoking afternoon. So good to have face-to-face seminars like this again. #pedpc
Totally awesome to hear the incredibly hard work put in by the @TheAPPMuk guidelines groups... Though the evidence base in #pedpc is growing, their literature searches highlights that sparsity remains.
1) Show how children's palliative care is at its best
2) Show how children get to be children
3) Focus on the quality and range of relationships that make for great care.
@OnRoadMedia present on their role in changing the story for #pedpc at the @TheAPPMuk study day. Importance of framing the story:
centring the child, teamwork, all-encompassing care
Are you a health professional in a Neonatal Unit?
*WE NEED YOUR HELP*
...on study design, outcome measures + recruitment for our end-of-life care research
Join us for an online meeting on Wednesday 22 June, 1-3pm (via Zoom)
Contact: [email protected]@BAPM_Official
Dr Yifan Liang talks us through an NIV decision making tool to guide fully informed decision making. Importance of goal settting from the outset to avoid technology creep.
@IsobelMB talks @TheAPPMuk study day about the importance of full MDT discussion when thinking about initiating non-invasive ventilation in children with LLC. Really thinking about benefits/burdens and discussing this with patients/parents/carers #pedpc
The latest version of Basic Symptom Control in #pedpc is now out. Please do download (but be mindful of printing this gardgantuan volume!):
https://t.co/M8m4iCWD95
@LucyCoombes7 highlights the importance of her PhD research on C-POS (Children's Palliative care Outcome Scale) @TheAPPMuk research day -> we need to ensure we hear from children. This is such an exciting proposition and so needed! #pedpc
I understand that nurse coordinators have been effective in Ireland. It would be great to know how this has improved the parent/carer experience. @FionaMcElligott
Really powerful data from @lornafraser10 in the @TheAPPMuk research day regarding the health of mothers of CYP with LLC: associated with poorer physical health outcomes (eg. cardiovascular disease) as well as worse mental health compared to mothers of well children. #pedpc
We must acknowledge this and work towards better provision to support the mothers (and fathers/carers) of children we care for. Support in coordinating their child's care would be a start...