November is #PHAwarenessMonth! Check out our Awareness Month toolkit to spread awareness and #LetYourLightShine. The toolkit includes social media graphics, downloadable fact sheets and a customizable press release. Download Now. https://t.co/huFFzMGvHH
Join us for the “Debunking myths about lung transplantation for PH,” webinar hosted by
@PVRI on Wednesday, Sept. 25 at noon EDT/4 p.m. UTC. Learn about #lungtransplantation from experts and patients who’ve received a lung transplant. Register now. https://t.co/ElHYfvHrZ3
The #PHA online pop-up store is now open! Secure your unique PHA merchandise such as totes, tumblers and men’s and women’s apparel. Don’t miss your chance to own these items. Order now. https://t.co/6tmu2bZsjm
Flying to Indianapolis for #PHA2024? Call the TSA Cares Help Line 72 hours before your flight and request a passenger support specialist at the TSA checkpoint for a smooth security experience. For more travel tips, visit the PHA 2024 website. https://t.co/P9qiOgFKpT
Today, #PHA and our coalition partners urge you to ensure the #SafeStepAct, which limits step therapy, stays in the PBM reform package by sending a message to your legislators. Act now for more accessible care tomorrow. https://t.co/QS6QNAOPcN
Join us tomorrow, July 18, at 7 p.m. EDT for our monthly virtual Caregiver Support Group meeting. Share strategies and experiences with other caregivers and learn how to prioritize your wellbeing while caring for someone with #PH. https://t.co/zrAPdo8oJU
Charlie Burger, medical director of the Pulmonary Vascular Center at Mayo Clinic, Jacksonville Florida, presents a poster on the #PHA Registry at the 7th World Symposium on Pulmonary Hypertension in Barcelona. His poster discusses #PHAR results and their significance to #PHCCs.
The voices of the patients need to be heard.📢
Hall Skaara, part of the Task Force on Patient Perspectives at the 7th World Symposium on #PulmonaryHypertension, amplifies patient voices, a key mission for PHA Europe. ⤵️
📣 PHA Europe at the #WorldSymposiumonPulmonaryHypertension 29.6-1.7! We warmly invite you to visit our booth, where six of our dedicated representatives will be present to connect with you. ⤵️
#PHA is partnering with @TBX4_Life and @fundacionhp for the upcoming “Fundamentals of Genetic Testing” #PHALive webinar on June 11. Speakers will discuss heritable #PAH and the benefits of receiving a genetic test. Register now. https://t.co/6KmJIcz4oP
Help #PHA boost attendance at the June 5 legislative briefing on Capitol Hill. This briefing is critical for addressing #treatmentaccess barriers for those with #pulmonaryhypertension. Use PHA’s template to invite your legislators today. https://t.co/tIsORmTS05
After a rocky road to diagnosis, no doctors gave Ayotunde Omitogun dietary, drug or therapy advice to help manage her #PH. Living in Lagos, Nigeria, she addresses treatment barriers and cultural stigmas she's experienced. Learn more. https://t.co/Z8fqGLGLJ2
Let's stay united in raising awareness about PH beyond May! 🌍✋ Raise your five fingers, symbolizing May 5th and the five PH groups, and the crucial things we fight for: early diagnosis, hope, access to care, patients, and finding a cure. ⤵️
Teresa Muller, patient and director of the Chilean Pulmonary Hypertension Association, said one difficulty for #PH patients is access to health care due to the lack of specialists and referral systems across the country. Learn more for #WorldPHDay2024. https://t.co/RCao9ytccl
#WorldPHDay2024 focuses on five global actions, one of them being “United for Access to Care.” We recognize the need for equal access to care and treatment no matter what. Learn more about World PH Day 2024. https://t.co/jlXcroNkBH