Desmoid Tumor Research Foundation

DTRF is the only 501(c)3 in the U.S. solely dedicated to finding a cure for desmoid tumors, a rare, intermediate (locally aggressive), soft tissue sarcoma.

[Desmoid Tumor Research Foundation @DTRFoundation]

📣 Register today to attend the 2026 DTRF Int'l Desmoid Tumor Research Workshop in-person or virtually on Friday, Sept. 25th in Philadelphia!

🔗 Learn more: https://t.co/RG1yueaz0S

[Desmoid Tumor Research Foundation @DTRFoundation]

⭐️ Register today: https://t.co/2UZFnBPMSA

[Desmoid Tumor Research Foundation @DTRFoundation]

📣 According to the @WHO - World Health Organization, desmoid tumors are classified as intermediate, locally aggressive soft tissue tumors.

Like. Share. #SpreadTheWord
Learn more: https://t.co/MtojNoZX2Y

#DTRF #desmoid #desmoidtumor

[Desmoid Tumor Research Foundation @DTRFoundation]

🆕 25+ new articles from September to mid-December have been posted on the Published Research page of the DTRF website. Thank you to @mgkumar82 - Maneesh Kumar, MD, PhD, for helping us collect these important articles.
🔗 https://t.co/SZFmyFRSJ3
#desmoid #DTRF #desmoidtumors

[Desmoid Tumor Research Foundation @DTRFoundation]

✨️ When desmoid tumor patients speak, the world needs to listen. Their experiences are real and their voices are courageous.

👉️ Be sure to watch until the end and let their strength inspire you. Fill the Gap today: https://t.co/q5lUg9TCtp

#DTRF #desmoidtumor

[Desmoid Tumor Research Foundation @DTRFoundation]

Today's the day! Giving Tuesday is here, and it's your chance to make a real difference for desmoid tumor patients.

⭐️ Give now: https://t.co/q5lUg9TCtp

#DTRF #desmoid #desmoidtumors

[Desmoid Tumor Research Foundation @DTRFoundation]

⭐️When Jason, desmoid tumor patient & DTRF Board Member, shared part of his story at the 2025 DTRF Annual Patient Meeting, his message was simple — and powerful.

Together, we can Fill the Gap: https://t.co/q5lUg9TCtp

#desmoid #DTRF

[Desmoid Tumor Research Foundation @DTRFoundation]

⭐️ The DTRF's Incoming Executive Director, Katie Doyle Myers and Executive Director, Lynne Hernandez, were on-site at the CTOS Annual Meeting connecting with clinical experts and industry partners who are driving progress in #desmoid tumor research.

#DTRF #desmoidtumor

[Desmoid Tumor Research Foundation @DTRFoundation]

Every day, desmoid tumor patients live in the gap—
between diagnosis & answers, outdated care & new possibilities, research & the funding it needs.

✨ This is where you come in. You can #FillTheGap.

Donate today: https://t.co/SU9ec00gdk
#DTRF #DesmoidTumorAwareness

[Desmoid Tumor Research Foundation @DTRFoundation]

🎥 Watch the video of the week “Desmoid Tumor Patient Panel on Lived Experience” with three patient panelists from the 2025 Int'l Research Workshop: https://t.co/yuz28s21QU

#DTRF #desmoid #desmoidtumor

[Desmoid Tumor Research Foundation @DTRFoundation]

🎥 Watch the video of the week “The Association of Pain With Function for Adult Patients With #Desmoid Tumor: Findings From the Desmoid Tumor Research Foundation Natural History Study” with Kelly Mercier, PhD from the 2025 Int'l Research Workshop: https://t.co/jiPbJxtbns

#DTRF

[Desmoid Tumor Research Foundation @DTRFoundation]

🆕 25+ new articles from June, July, and August have been posted on the Published Research page on our website at https://t.co/9mMDn8IWaa.

Thank you to @mgkumar82 for helping us collect these important articles. 🔗 https://t.co/SZFmyFRSJ3

#desmoid #DTRF

[Desmoid Tumor Research Foundation @DTRFoundation]

📢 We’re proud to share that the Desmoid Tumor Research Foundation (DTRF) is featured in Newsweek's article: “Research Moves Slowly. Rare Diseases Don't—So Patients Aren't Waiting.”

Share and read the full article here: https://t.co/pyvMhwSFB6

#DesmoidTumors #DTRF #desmoid

[Desmoid Tumor Research Foundation @DTRFoundation]

Register for our upcoming education webinar entitled, “Pregnancy and Desmoid Tumors." This webinar is hosted by the DTRF with expert guests from @DanaFarber and @BrighamWomens.

Register here: https://t.co/JI5T0I3MzA
#desmoidtumorawareness #DTRF

[Desmoid Tumor Research Foundation @DTRFoundation]

✨Thank you for an incredible Desmoid Tumor Awareness Month (DTAM)!

Keep DTRF's efforts going for years to come by making a donation today: https://t.co/wgaLdCTGlg

Thank you again to our Desmoid Tumor Awareness Month sponsor, @Immunome , for their ongoing support!

[Desmoid Tumor Research Foundation @DTRFoundation]

Special thank you to @NorthwesternMed for hosting us!

[Desmoid Tumor Research Foundation @DTRFoundation]

💜 Thank you to everyone who attended and participated in the 2025 DTRF “Together We Will” Weekend in Chicago!

We are grateful to our Presenting Sponsor, @SpringWorksTx , for supporting this incredible Weekend.⁠

#desmoid #DYTRF #desmoidtumors

[Desmoid Tumor Research Foundation @DTRFoundation]

📣Did you know? Desmoid tumors are NOT benign.

🔗 Learn more about their classification here: https://t.co/cPK5bW6TQI

Special thank you to our Desmoid Tumor Awareness Month sponsor, @Immunome, for their support.

#DTAM #DTRF #desmoidtumors #desmoid⁠

[Desmoid Tumor Research Foundation @DTRFoundation]

📢 We’re proud to share that the Desmoid Tumor Research Foundation (DTRF) is featured in Newsweek's article: “Research Moves Slowly. Rare Diseases Don't—So Patients Aren't Waiting.”

📰 Share and read the full article here: https://t.co/1nsjvOtf0N

#DesmoidTumors #DTRF #desmoid

[Desmoid Tumor Research Foundation @DTRFoundation]

✨️ We are getting so close to our favorite weekend of the year! Online registration closes in 5 days on Sept. 7th.

🎟️ Register for the "Together We Will" Weekend to attend the Int'l Research Workshop in Chicago, IL on Sept. 12th here: https://t.co/byvf60qL1P.

#desmoid #DTRF