Dan Walter

[HPS Network @HPSNetwork]

Thank you for your support.

Thank you for reading and sharing today’s posts.

Thank you in believing in US, this COMMUNITY, and our MEMBERS.

Our members are parents, friends, children, and so much more.

And they deserve to be able to breathe.

They deserve a cure.

[HPS Network @HPSNetwork]

Is that Donna I spy back there?

Where would the HPS Network be without her?

She is our hero, but even heroes need help! Our organization is on the brink of some major things and we are so very grateful for the continued support! #curehps

[HPS Network @HPSNetwork]

Donna and our Medical Affairs Team met with our gene therapy team last month. Research is progressing positively, but we are still a bit of ways away. Funding a cure and keeping this going is crucial! #curehps #fundingacure

[Dan Walter @dwalter08]

@M_Vernon In

[Dan Walter @dwalter08]

@M_Vernon In

[HPS Network @HPSNetwork]

Member Monday! How cute is William in his first day of school pic? Members, the Symptom Scale study will be closing soon, if you haven’t completed yours please reach out to us asap! Let’s keep the research going, especially for our younger members like William. #curehps

[HPS Network @HPSNetwork]

The Network would like to wish a Happy Easter to all who celebrate. William says make sure to check out our website to stay up to date!

[HPS Network @HPSNetwork]

Have you started your #LotsofDots challenge yet? Be a part of HPS Awareness Day and complete the challenge! Don’t forget to tag 3 people! We want these dots to travel!

[HPS Network @HPSNetwork]

“Having a child who is rare means living with the burden of not knowing what the future holds for him, but it has also introduced us to an amazing network of others who are fighting the same battle. Nobody fights alone!”

[HPS Network @HPSNetwork]

We are still recruiting for the HPS Symptom Scale. Patients, parents, and caregivers are welcome. The path to the cure is research. Let’s get this done for the next generation. Our nurse, Val, would love to help you in this process. Email [email protected] #curehps

[HPS Network @HPSNetwork]

The Walter family celebrated HPS Awareness Day in a big way! Well done Beth and William!

https://t.co/qcuRGK421g

[Dan Walter @dwalter08]

@BigGemFlowers I did finally cave in, I had to follow what Sylvester Stallone was up to! Its going good, are you in Boulder yet?