EB-fella

My views are my own and I represent myself - images are allegedly GRAPHIC but sadly real #stopthepain - to help find a cure please donate to @CharityDebra

[EB-fella @EBawarenessUK]

@simonsquibb 💜💜💜 I have a dream, I know how to save the Highstreet! I need 20 minutes of your time to explain how! @simonsquibb What I need from you is not money!

[EB-fella @EBawarenessUK]

@JeremyVineOn5 @SylviaTidyHarri @FamilyLawGuruUK @theJeremyVine There’s a difference between becoming disabled later in life and being born disabled and facing disadvantage from childhood, through education, work and adult life. That lifelong disadvantage should be considered more when assessing benefits.

[EB-fella @EBawarenessUK]

@simonsquibb Simon, I genuinely believe I’ve got a scalable way to help revive UK high streets & create work-from-home franchise opportunities at the same time.

Not looking for investment, just a little advice from someone who understands building movements that help communities.

[EB-fella @EBawarenessUK]

@simonsquibb Simon, I genuinely believe I’ve got a scalable way to help revive UK high streets & create work-from-home franchise opportunities at the same time.

Not looking for investment, just a little advice from someone who understands building movements that help communities.

[EB-fella @EBawarenessUK]

@simonsquibb Simon, I genuinely believe I’ve got a scalable way to help revive UK high streets & create work from home franchise opportunities at the same time.

Not looking for investment, just a little advice from someone who understands building movements that help communities.

[EB-fella @EBawarenessUK]

@simonsquibb I have a dream... & its a great business! We can save the highstreet!

[Simon Squibb @simonsquibb]

I am funding one dream a day.

Today’s challenge; help someone with their dream and I will help one of you with yours! Go go go! 👇🏻

[EB-fella @EBawarenessUK]

@_prodigal_guy @simonsquibb https://t.co/Av4tPZGze1

[EB-fella @EBawarenessUK]

@block9ine @simonsquibb You don't need to buy 50 hoodies, just create an online shop showing your merch, ai can create stock images, say free delivery within 14 days, order from your supplier as things roll in, get a 7 day agreement with them & dispatch.

[EB-fella @EBawarenessUK]

@kingmeko_ @simonsquibb Dude use a free logo making app to produce your logo, if you already have an app don't let just a logo stop you from launching

[EB-fella @EBawarenessUK]

@westerby1 Service & repairs under warranty as cars are shiny and new but I'll give you the insurance, although does that not come out of the 4 grand a year we surrender to pay motability ?

[GENPHARM @genpharmmena]

It’s #EBAwarenessWeek.
Epidermolysis Bullosa is rare, painful, and often misunderstood.
We stand with the EB community, raising awareness and pushing for better access to care.

#ButterflySkin #RareDisease #Genpharm

[Thebrotherstrust @Tbrotherstrust]

This week is EB Awareness Week 💙

The Brothers Trust proudly supports three incredible charities — DEBRA, EBRP, and Cure EB — all working tirelessly to help families affected by the devastating condition Epidermolysis Bullosa (EB) and to fund vital research for a cure.

Thanks to your amazing support, we’ve been able to grant over £1,050,000 to help in the fight against EB.
You can make a difference too — for this week only, our Brothers Trust mugs are half price! Grab yours (just like Tom’s!) via the link below — every purchase helps shine a light on EB.

https://t.co/ISuVJrGOVH

#EpidermolysisBullosa #MissionEB #ShineALight #Research #CureEB #EBAwarenessWeek @CharityDEBRA @EBResearch @CureEBorg

[EB-fella @EBawarenessUK]

@abrigroup At the heart of decisions? More like being squeezed dry by your incompetence. Doubling service charges overnight to cover your subcontractor mismanagement is unacceptable. Try looking after your tenants instead of blatantly paying OTT money for overpriced contractors.

[EB-fella @EBawarenessUK]

Making disability benefit cuts will simply result in costing the NHS more money.
Poor health with a poor diet & poor living environment only leads one way 🚑

[EB-fella @EBawarenessUK]

@abrigroup If accountability matters, how have abri spent over 5k in 12 months to maintain at treatment plant for just 3 houses - that's mis managment & incompetence at best. @johngaryorr #ripoff

[EB-fella @EBawarenessUK]

Being cold over the winter certainly slowed my healing. I found wounds turned into ulcers, I did, however, eventually heal the biggest one by applying medi manuka honey and pound shop heat patches, the heat increased blood flow & the honey created a clean environment for healing

[EB-fella @EBawarenessUK]

@johngaryorr @abrigroup Then charge stupid over the top prices for your service charges, £1200+ to flush a toilet is literally a joke.

[EB-fella @EBawarenessUK]

@abrigroup Abri charging in excess of £1200 service charges this year, not very affordable #garyorr

[EB-fella @EBawarenessUK]

@johngaryorr @abrigroup @weareoctavia No consultation on treatment plant installation only told would be cheaper for us, initially tried to pass thousands of installation costs onto us but we proved there was no consultation so got small refund of depreciation charges, now its up to £1200 per year to flush a toilet

[EB-fella @EBawarenessUK]

@johngaryorr @abrigroup @weareoctavia Abri say the fault on the treatment plant was rope in the pit, we all know it was there from installation, nothing to do with us residents (3 houses) the fee to us for abri to remove a piece of rope from a pit was CAPPED at £750!! Dynorod say the plant was at fault not us #unfair