Hearing that if a General Election is called today, the Victims & Prisoners Bill which sets up the Infected Blood Compensation Authority will not be included in the wash up.
Just appalling.
The PM said on Monday: Whatever it takes…
#ContaminatedBloodScandal
We always like to do a challenge to raise money for @HaemoSocUK on World Haemophilia Day, which is tomorrow. This year it was the girls' turn, doing their first junior parkrun (2k) in Exeter this morning and running every step #proud
https://t.co/vW669zm6Y4
Day three of #12DaysOfChristmas and we have reached the end of our series of blogs looking at von Willebrands Disease.
In the final blog, Carly realises what their new normal has become, and looks to the future to what challenges may lie ahead.
Read Now: https://t.co/BmZHfKAgMj
In part 5 of our ongoing blogs about living with von Willebrand disorder, Ella's mum Carly shares the story of an incident they knew would change all of their lives forever.
Warning: some readers may find this latest blog difficult to read.
https://t.co/4qZI5a1ZLU
My youngest did her first dance show in January with a cannula in her hand less than a week after her first major bleed. Three more big bleeds followed in the next two months as things escalated somewhat...
In part four of our ongoing series of blogs looking at living with von Willebrand Disorder, this week Ella's mum Carly talks about the changes she sees in her daughter and the challenges that come with them.
Read More: https://t.co/pegYS1Rvfi
In Part two of our series of blogs following Ella and her journey with von Willebrand's Disorder, Ella's mum Carly reflects on what it was like being apart from Ella for the first time as she joins pre-school.
Read More: https://t.co/yunrxuf7kH
“It’s the looks you get when your child is having a minor (for VWD standards) bleed and you have to continue life as normal with blood coming from their nose or mouth and both of you in blood-stained clothing."
Read part 2 of Carly’s blog series: https://t.co/F1Ea3cmLQb
My wife's insight into what it's like having a young child with a rare and severe bleeding disorder, with more blogs following over the next few weeks to bring people up to date with how things are now she's started school
Knowing how isolated you can sometimes feel when affected by a rare disorder, one of our members, Carly, is sharing her story with us in a series of blogs.
Read the first part here: https://t.co/gF7vHI06Jm
My youngest daughter's pre-school @Starcrossschool did a fun run yesterday to raise money to help people with a similar bleeding disorder. Already more than £500 donated. Note the expert drawing on the medal...
Ella, who has type 3 von Willebrand Disorder, has been working hard on a sponsored walk for her school and even produced some amazing medals with our mascot Buddy on them!
Great work Ella, and good luck with the walk!
DD No.4 chalked up today (32 miles on Dartmoor). Only started training 10 weeks ago after Ella's issues so just making the start line felt like an achievement!
The red cap returned to racing today, second race in 28 months. Did the Haldon 10k on home @tarmacdodgers territory and was 5th (out of 25!) in 57.45. Warming up (literally) for DD next month
Ella Warren was diagnosed with type 3 vWD at three weeks old. Her parents Carly and Nick talk about Ella's journey, challenges and hopes for the future.
https://t.co/PVemErWgkq
With World Haemophilia Day this weekend, my wife is running a half marathon this morning in aid of @HaemoSocUK so if you see a big group of people running in red between Kenton and Dawlish you know why https://t.co/Xg0tmxpXhp