EDS Northwest

EDS Northwest- coming soon-nonprofit 4 Ehlers-Danlos Syndrome Patients 2 advocate, awareness,educate, fundraise,research & treatment. Also @Sarestbearest

[EDS Northwest @EDSNW]

What a fantastic #RareDiseaseWeek2020 & plenty more posts & pictures to come when I’m home & can recover my left hand function. 💕🦓 #EDSZebraLife Thanks 2 @RareAdvocates @EveryLifeOrg and my excellent fellow #RDLAPatientAdvocatesWashingtonState #RareDC2020 #LobbyDayRDLA2020

[Jade Barclay 😷🌈♿️MPH MBA @JadeBarclay]

Disabling pain this week. Unable to do the tiny initiating movement to get myself up off a chair. Had to sleep on floor. Fun.

Seems easier to talk about surgery, ambulance, cancer. But the stuff that actually cripples me… is easier to downplay than to explain. #NEISVoid #EDS

[Ms Wheelchair USA @MsWheelchairUSA]

Sarah Tompkins, Ms. Wheelchair Washington USA, communes with nature as a form of #selfcare. Learn more at https://t.co/xCElnRYkgV #MWUSA #MWWAUSA #DisabilityPageants

[Ms Wheelchair USA @MsWheelchairUSA]

Sarah Tompkins, @SarestBearest Ms. Wheelchair Pacific Coast USA, shares about her time at the Akron Zoo during #MsWheelchairUSA!#DisabilityPageants #DisabilityPrideMonth #MWPCUSA @DaneFoundation @MsWheelUSA @_MatthewDHunt_ @taiskates @JeremyParsonsTV @dis_redefined @johncstorey

[Ms Wheelchair USA @MsWheelchairUSA]

We are so extremely excited to have Erica Myron as our 2021 titleholder! Thank you @people and @JeremyParsonsTV for featuring Erica’s incredibly story and the #MWUSA pageant, which celebrates the achievements of women with disabilities! #DisabilityPrideMonth

[Lowery D Lockard @MsWheelUSA]

Honored to have Erica Myron as our new @MsWheelchairUSA The 1st Native American, from Fort McDowell Yavapai Nation, to wear the crown!Erica’s determination to win MWUSA was evidenced in dedication & determination. #groundbreaking https://t.co/qh2boKoH8i

[Rooted in Rights @RootedInRights]

When people reach out to developers and corporations to advocate for accessibility features, we are often met with push back or silence in response. It’s frustrating but sometimes our community finds creative ways to create access in the meantime.

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[Stephanie Fischer @RarePOV]

Great suggestion by @jamiemango for patient advocacy professionals to join nonprofit boards & to encourage colleagues across departments (including finance) to do so as well. Industry reps can learn challenges of nonprofits & the orgs can benefit from their guidance #DGEVENTS

[EDS Northwest @EDSNW]

So grateful for this nomination! Thank you so much for this moving honor & nomination! 🙏🏻🦓❤���

[Social Health Network @socialhealthnet]

@edsnw �� Congrats, you've been nominated for Patient Leader Hero award! Check your email to claim your #WEGOHealthAwards nomination.

[Ambre @Living_With_Dys]

Working on a Gastroparesis awareness project! #gastroparesis #gastroparesisawareness

[Ms Wheelchair USA @MsWheelchairUSA]

Here are the current standings for the People’s Choice Award. Keep voting for your favorite contestant. https://t.co/Xvi57Snbir #MWUSA #DisabilityPrideMonth #DisabilityTwitter #disabilitypageant

[Ms Wheelchair USA @MsWheelchairUSA]

Support your favorite contestant with a video shout out. https://t.co/mbTDnLRp4a #MWUSA #MsWheelchairUSA @DaneFoundation @MsWheelUSA @dis_redefined @_MatthewDHunt_ @KyleDHester @SACSconsulting @JeremyParsonsTV @peopletv @taiskates @1BrookeTaylor @PermobilCares @EllenDubinActor

[Ms Wheelchair USA @MsWheelchairUSA]

Happy #ResponsiblePetOwnersMonth! Sarah Tompkins, #MsWheelchairPacificCoastUSA, shares what her pet means to her on our latest Facebook post. Be sure to check out the lovely pics of Sarah and Wilson on their Roll ‘n Stroll. #DisabilityPageant #MWUSA

[Ms Wheelchair USA @MsWheelchairUSA]

It’s #RareDiseaseDay! Be sure to visit our Facebook page to read the stories of our contestants with rare diseases #ShowYourStripes #MWUSA #MWPCUSA #MWTXUSA

[Ms Wheelchair USA @MsWheelchairUSA]

We must help create the changes we want to see take place. Sarah Tompkins, Ms. Wheelchair Pacific Coast USA, is doing just that! Visit our Facebook page to read more @StricklandforWA @RepAdamSmith @RepKimSchrier @RepJayapal @SenatorCantwell @MurrayCampaign

#MWUSA #MWPCUSA

[Ms Wheelchair USA @MsWheelchairUSA]

Happy Certified Nurses Day! Visit our
Facebook page to read about how nurses have
affected Sarah Tompkins’, Ms. Wheelchair Pacific
Coast USA, life!

#MWUSA #MWPCUSA #DisabilityPageants
#CertifiedNursesDay

[Ms Wheelchair USA @MsWheelchairUSA]

Happy #EqualPayDay. Visit our Facebook page to read about why Sarah Tompkins, Ms. Wheelchair Pacific Coast USA, is sharing her experiences as a women with a disability on this day! #MWUSA #MWPCUSA #disabilities

[Ms Wheelchair USA @MsWheelchairUSA]

Happy #NationalSpanishPaellaDay! Visit our Facebook page to read all about Sarah Tompkins’, Ms. Wheelchair Pacific Coast USA, love for cooking!
#MWUSA #MWPCUSA #AccessibleCooking

[Ms Wheelchair USA @MsWheelchairUSA]

Sarah Tompkins, Ms. Wheelchair Pacific Coast USA, says, “Finding rainbows after a storm is such a beautiful metaphor for living with Ehlers-Danlos Syndrome and disabilities.” Read more on our Facebook page. #NationalFindARainbowDay #MWUSA #MWPCUSA #EDS #disabilitypageants