EFA Patients

We are a federation of 45 associations representing allergy, atopic eczema, asthma and COPD patients in 27 European countries. Our pillars: #InformPreventCare

[SANT Committee Press @EP_PublicHealth]

🗓️🗓️3/06 - debates in @EP_PublicHealth 2/2

🇬🇧EU-UK Trade & Cooperation Agreement (amendments)
🫁Lung health & chronic obstructive pulmonary disease @EFA_Patients @EuroRespSoc

🎥Watch live: https://t.co/JUUWP4rOGk

[GlobalSkin @IADPO]

🌍#WorldAtopicEczemaDay is coming up on September 14 & we’re thrilled to launch the 2025 Toolkit - a collaborated effort with @EFA_Patients!

This year’s theme is, “Our Skin, Our Journey,” highlights the lived experiences of people with #atopiceczema: https://t.co/33FKugkV5W

[PHAEUROPE @EuropePHA]

PHAEUROPE celebrates a historic step for lung health! 🙌📣 At the 78th World Health Assembly, the first-ever global Lung Health Resolution was adopted. This marks a major milestone in improving care, tackling air pollution, and boosting support for lung diseases like PH. ⤵️

[European Lung Health Group @EuroLungHealth]

Living with a rare lung disease means fighting every day to #KeepBreathing.

🚨 Over 1M patients in Europe face delays in treatments & lack of support.

🫁🌍 On #RareDiseaseDay, we stand with our ELHG communities and call for stronger EU policy on #lunghealth.

Support us: https://t.co/oYNXSsWTcp

[European Lung Foundation @EuropeanLung]

We attended the 'Raising the Standards of Care for COPD in Europe' event today at the @Europarl_EN ! 🫁💬 An important discussion on improving #COPD care!

Great to see progress and efforts to put lung health at the forefront! #LungHealth #PublicHealth

[EFA Patients @EFA_Patients]

New report on #COPD care & event at the European Parliament! 🚨

Join us on 5 Feb to discuss #COPDStandardsofCare 🫁

MEPs & experts will discuss prevention, care and the urgent need for stronger #lunghealth policy.

📅Register here: https://t.co/I2nMypLI9q

[EFA Patients @EFA_Patients]

Want to make a big impact on #lunghealth in 2025?

Join the #LungHealth4Life Community of Practice to promote lung function testing and health education in schools. 🏫

Sign up now 👉 https://t.co/Ugxga3RZ0L
#LH4L#EU4Health

[EFA Patients @EFA_Patients]

📣 Join us on 5 Feb 2025 at the European Parliament for a discussion on #COPDStandardsofCare!

High-level speakers will come together to address early #diagnosis, access to #care and stronger #lunghealth policies for 36M Europeans 🫁

🔗Register by 24 Jan: https://t.co/I2nMypLI9q

[EFA Patients @EFA_Patients]

New event! 🚨 EFA is organising a key discussion at the European Parliament, hosted by MEPs @JerkovicRomana, András Kulja and Tilly Metz.

Join us to raise #COPDStandardOfCare and put #lunghealth at the forefront of Europe’s agenda.

📅 5 Feb, register➡️ https://t.co/I2nMypLI9q

[EFA Patients @EFA_Patients]

🚨EFA raises concerns over EMA new guidelines on competing interests for #patient experts.

Stricter rules may limit patient input in EU #health decisions.

Policymakers must protect patient expertise while ensuring transparency.

Read more 🔗 https://t.co/3JrCm5qEcs

[EFA Patients @EFA_Patients]

EFA community responded to EMA's public consultation on competing interests. 🛠️💬

While we support transparency, stricter rules could limit patient collaboration in research.

Patients expertise is vital and deserves fair recognition!

Read more: https://t.co/3JrCm5q6mU

[EFA Patients @EFA_Patients]

We joined the EU Health Policy Platform annual meeting, inspired by the input from thematic network leaders!

EFA calls for stronger support for #allergy & airways disease #patients and looks forward to continuing collaboration with the @EU_Commission.

Thank you @EU_Health!
#EU4Health #HealthUnion

[EFA Patients @EFA_Patients]

Safe treats for #foodallergy patients! 🍬✅

At the @CAOBISCO_EU Congress, EFA highlighted the need for harmonised EU-wide precautionary allergen labelling #PAL regulations based on science.

Clear, reliable food labels are crucial for protecting public #health!

📷Romain Triollet

[EFA Patients @EFA_Patients]

Join us in promoting #LungHealth for kids!

If you are a health expert, teacher or policymaker, collaborate with us by joining the #LH4H Community of Practice to share your knowledge and expertise.

🔗 https://t.co/Ugxga3Rrbd
#RespiratoryHealth #LH4L #EU4Health

[European Lung Health Group @EuroLungHealth]

36M Europeans live with #COPD and struggle to #KeepBreathing. #WorldCOPDDay 🫁

We can change this because COPD is preventable.

Early diagnosis and #lung testing like #spirometry save lives.

🎯Act upon our call for better #lunghealth policy in the EU: https://t.co/fUqSmNRUso

[EFA Patients @EFA_Patients]

On #WorldCOPDDay, our message is clear: #COPDPatients deserve better care, timely diagnoses & access to treatment.

The EU must raise the bar on #COPDStandardsofCare with a strong #lunghealth policy to ensure millions can #KeepBreathing 🫁

#ActOnCOPD ➡️ https://t.co/KOjvXViRY5

[EFA Patients @EFA_Patients]

#COPD disrupts life, but Joan Alonso (75) stays active to fight back 💪🫁

His story shows how holistic care, pulmonary rehabilitation and emotional support can improve the quality of life. #COPDStandardsOfCare

📺 more #EFACommunity patient stories: https://t.co/9zNAU1hJSR

[EFA Patients @EFA_Patients]

Early diagnosis is critical to prevent #COPD progression and save lives. #WorldCOPDDay

Millions go undiagnosed due to limited access to #spirometry and care.

#Lung testing and timely care must be routine.

Read more in our #COPDStandardsOfCare Report: https://t.co/c2lj7k4tx2

[Armando Ruiz @ideasensalud]

This work is truly strategic and the immense work is reflected in excellence. The standards of care for COPD patients in Europe in our perspective. Excellent @fenaer2 in our involvement, and @EFA_Patients in leadership.
Read our press release: https://t.co/JEMnjxOiHz

#ActOnCOPD

[EFA Patients @EFA_Patients]

COPD is a leading cause of death and disability, with 49M Europeans at risk by 2025.

The good news? It’s preventable 🫁

Early diagnosis, timely care and national #lunghealth plans can reduce the burden. #WorldCOPDDay

🗞️Press release & the new report ➡️ https://t.co/FvC3n0XfF8