EHE Rare Cancer Charity UK

Bringing awareness and raising funds for research into EHE Sarcoma, a very rare cancer with no cure or standard treatment #eherccuk #ehesarcoma #rarecancer

[EHE Rare Cancer Charity UK @ehe_uk]

Welcome to the EHE Rare Cancer Charity (EHERCC) Facebook page. We are a charity that is focused on patient support, fundraising and research into one of the world's rarest cancers, a vascular sarcoma called Epithelioid Haemangioendothelioma, or EHE for short.

[EHE Rare Cancer Charity UK @ehe_uk]

Congratulations from all of us at EHERCC 🥂🥳❤️

[Sarcoma UK @Sarcoma_UK]

After their 1,000-mile cycle raising over £108,000 for Sarcoma UK, Gaz and Zoe got married over the weekend.

We're sure that you join with us to wish them every happiness together. 💙

[EHE Rare Cancer Charity UK @ehe_uk]

Congratulations @SilviaStacchia excellent choice for new President, full support of @ehe_uk with you all the way 🙌🏻🙌🏻🎗

[Alessandro Gronchi @alegronchi]

@SilviaStacchia is the new president of the #ItalianSarcomaGroup Congratulations! and good luck! @IstTumori @Rete_Sarcoma_It @DesmoidI @EORTC @sarcomapatients @myESMO @AIOMtweet @ASCO @ctosociety @TARPSWG @ChordomaFDN @LMSarcoma @EHEfoundation @ehe_uk @SarcomaAlliance @GrupoGeis

[Alessandro Gronchi @alegronchi]

@SilviaStacchia is the new president of the #ItalianSarcomaGroup Congratulations! and good luck! @IstTumori @Rete_Sarcoma_It @DesmoidI @EORTC @sarcomapatients @myESMO @AIOMtweet @ASCO @ctosociety @TARPSWG @ChordomaFDN @LMSarcoma @EHEfoundation @ehe_uk @SarcomaAlliance @GrupoGeis

[EHE Rare Cancer Charity UK @ehe_uk]

@alegronchi @SilviaStacchia @IstTumori @Rete_Sarcoma_It @DesmoidI @EORTC @sarcomapatients @myESMO @AIOMtweet @ASCO @ctosociety @TARPSWG @ChordomaFDN @LMSarcoma @EHEfoundation @SarcomaAlliance @GrupoGeis Congratulations from @ehe_uk, fantastic news! Great things to come 🙌🏻 🎗

[EHE Rare Cancer Charity UK @ehe_uk]

Marije Weidema presents at EHE 360 on January 22, 2021 https://t.co/B2p82N3Z11 via @YouTube

Following on from our previous post from the EHE 360, @OncoDoc2be Marije Weidema presents difference of quality of life in EHE patients around the world.

[EHE Rare Cancer Charity UK @ehe_uk]

Professor Robin Jones presents at EHE 360 on January 22, 2021 https://t.co/d2kOPiqxxO via @YouTube

Many leading doctors, scientist and other colleagues came together recently at the EHE 360 conference to discuss EHE. Today we are sharing @RobinL_Jones presentation.

[EHE Rare Cancer Charity UK @ehe_uk]

#ehe
#ehesarcoma
#sarcoma
#rarecancer
#cancerresearch

[EHE Rare Cancer Charity UK @ehe_uk]

Welcome to the EHE Rare Cancer Charity (EHERCC) Facebook page. We are a charity that is focused on patient support, fundraising and research into one of the world's rarest cancers, a vascular sarcoma called Epithelioid Haemangioendothelioma, or EHE for short.

[EHE Rare Cancer Charity UK @ehe_uk]

We thank you for your interest in EHE. We are on a mission and encourage you to join and help EHERCC continue its critical work. Come and be part of our exciting journey. #JustLive.

[EHE Rare Cancer Charity UK @ehe_uk]

In particular, we are determined to ensure that EHE patients are not the "forgotten part" of the fight against cancer, because rare cancers are not rare to those who have them. Our fundraising and research mantra is simple: RAISE THE FUNDS - DRIVE THE RESEARCH - FIND THE CURE.

[EHE Rare Cancer Charity UK @ehe_uk]

EHE is a relentless adversary, and we at EHERCC, together with our sister organisations are equally relentless in driving to deliver our core objective.

[EHE Rare Cancer Charity UK @ehe_uk]

We have also been able to reach out and connect over 2,000 people worldwide into our global EHE community, providing critical support for all EHE patients wherever they live, while also accessing an extraordinary database of EHE patient experience and information.

[EHE Rare Cancer Charity UK @ehe_uk]

Today we are funding multiple research projects in the USA, UK, Europe, Australia and Canada which together are producing exciting results.

[EHE Rare Cancer Charity UK @ehe_uk]

But the situation is changing fast. The EHERCC together with sister organisations in the USA and Australia all established in 2015, have so far jointly raised over 5 million dollars for EHE research. In 2015 there was one small research programme in the USA looking at EHE.

[EHE Rare Cancer Charity UK @ehe_uk]

EHE affects less than 1 person in every 1 million of the population. Very little is known about this rare disease, which in its aggressive form is highly destructive, and typically fatal. There is no known cure for EHE and no reliable treatment regime either.