SICKLE CELL: NIGERIA’S SILENT NATIONAL EMERGENCY
Dear Tinubu,
131 days to go and Nigeria carries one of the world's heaviest sickle cell burdens under your administration, making Nigeria number 1 in the world, and the Federal Ministry of Health says approximately 150,000 Nigerian infants die from sickle cell disease every year. And about 25% of Nigerian adults carry the sickle cell gene.
So what is the response from a government that keeps telling Nigerians about Renewed Hope?
Yet look at how far medicine has moved.
The United States has approved Casgevy, the world’s first CRISPR gene editing treatment for sickle cell disease. And in July 2026, the FDA expanded its approval to children as young as 2 years old. Another one time gene therapy, Lyfgenia, is also approved. These treatments can potentially transform and in appropriately selected patients, effectively eliminate the devastating disease.
But for Nigeria, the country carrying the world’s greatest sickle cell burdens, these breakthroughs remain largely out of reach.
Why?
Because Nigeria does have bone-marrow-transplant centres, and even access is still limited, putting curative treatment beyond the reach of most Nigerian families.
This is where leadership matters, Mr. Tinubu
Why is the country with the world’s greatest sickle-cell burdens not able to make newborn screening, genotype testing, hydroxyurea, specialist care, affordable medicines, transplant services, research and partnerships for gene therapy national priorities.
The world is moving from managing sickle-cell disease to rewriting the biology behind it. Nigeria cannot continue to have a world leading burden and a third world response.
“Renewed Hope” should mean that a Nigerian child born with sickle cell disease has a chance to grow up, not simply a chance to survive another painful crisis.
131 DAYS TO GO and you’re still a failure💔.