El Em Aych

Just a nerdy mum trying to navigate prescription cannabis in the UK day to day. Epileptic, anxious as fuck but pretty rad.

[🇬🇧 MedBud® @MedBudUK]

🚨 Our #GrowYourOwn petition needs further support, we are 700 votes behind to be on-track for a government response at 10,000 signatures.

115 days have passed, 70 days remain.
~62% through (the golden ratio!)

Please sign, accept email, and share 💞
🔁 https://t.co/3LgjDbXn6l

[🇬🇧 MedBud® @MedBudUK]

📧 Contact your MP today and ask them to support 'EDM 1410', to allow GPs to prescribe #MedicalCannabis alongside specialist consultants.

Google Docs Template: https://t.co/mTvZ6wJve9
Find Your MP: https://t.co/0FVxmG4tey
EDM 1410: https://t.co/tnoTn6WKZc

🔁 #ProtectOurPatients

[El Em Aych @el_aych]

@CBP Hey! I’m just looking for information about travelling to the US from the UK with prescription cannabis oil, as I use it to treat epilepsy. Any advice welcome! Thanks! :)

[El Em Aych @el_aych]

@AskTSA Thank you!

[El Em Aych @el_aych]

@AskTSA Hey! I’m just looking for information about travelling to the US from the UK with prescription cannabis oil, as I use it to treat epilepsy. Any advice welcome! Thanks! :)

[El Em Aych @el_aych]

@mamedicauk Got it; am trying to put it in a DM.

[El Em Aych @el_aych]

@mamedicauk Again, have to be verified on that too; and paying to slide into DMs is just madness.

[El Em Aych @el_aych]

@mamedicauk I tried, I have to be a “verified user” but I will of my personal account!

[El Em Aych @el_aych]

For all my grumbling - without medical cannabis I wouldn’t be able to sit and enjoy a bit of solo time without having a panic attack or worrying I was going to have a seizure. I wouldn’t feel comfortable watching the world go by. @mamedicauk #CannabisCommunity

[Ruby Deevoy @RDeevoy]

Gardening is therapy (it’s actually prescribed).

Cannabis is therapy (…it’s actually prescribed).

It’s time we allowed people to combine the two.

[El Em Aych @el_aych]

Originally it felt patient centred and led, I felt listened to and respected, but the last few weeks have me worried. Over the last 2/3 weeks I’ve put in three repeat requests, received two invoices and one delivery of a fifth of my meds with the wrong invoice.

[El Em Aych @el_aych]

Trying to get through to @mamedicauk at the moment is feeling really difficult.
As an epilepsy and anxiety patient, I’ve found myself concerned that the first time I’ve had to sort my repeats it’s meant being without medication.

[El Em Aych @el_aych]

Now, I’m aware that there have been issues with stock and an influx of new patients but the quality of communication and accessibility have taken a sudden downturn, I can’t sit in phone queues for hours, not around work or parenting.
It’s not realistic.

[El Em Aych @el_aych]

@Jonlowe305 @bhx_official That’s the bit I think that’s being misunderstood- it’s prescribed medication, if it was my partners insulin, no problem.

[El Em Aych @el_aych]

Hullo @bhx_official! I’m travelling next month, but I have a cannabis prescription. As an anxious epileptic, how do I make this as smooth as possible? ✈️🍃

[El Em Aych @el_aych]

@robert3424 @phil_w888 Not that are prescribed - I’m prescribed thc containing flower, which is vaped only. Consultants orders, and obviously it being an airport its a touchy subject. I just may need to medicate in the hours between check in and being on a plane. (I wouldn’t do it on it!) 😂

[El Em Aych @el_aych]

@robert3424 @phil_w888 This is vaping cannabis based medication for epilepsy as prescribed, so it’s proving tricky!

[El Em Aych @el_aych]

@bhx_official I understand about “smoking and vaping” but should I need to medicate after check in, what are my options? Because it’s used to control seizure activity it’s required as and when.
I don’t smoke my medication, I have to vaporise it as directed by my dr.
@MEDCANSupport ? :/

[El Em Aych @el_aych]

@bhx_official I’m just concerned that there’s no provision to find somewhere for me to safely & securely take medication. It feels maybe discriminatory because of the type of meds?

[El Em Aych @el_aych]

@bhx_official Does being unable to use prescription medication count? Being disabled and unable to medicate for it could be a problem.

[El Em Aych @el_aych]

@bhx_official But it’s prescribed privately by a consultant, I have my prescription and can get a clinic letter, will it not be a problem? Will I be able to use it anywhere to medicate in the airport?