Erik Oliver

[Erik Oliver @elosf]

@SawyerBlatz Wondering if you are having any success?

[Erik Oliver @elosf]

@SawyerBlatz Hey wondering if you are starting to see more improvement?

[Erik Oliver @elosf]

@SawyerBlatz Fingers crossed

[Erik Oliver @elosf]

@SawyerBlatz Not listed but perhaps worth a try: modafinil (provigil is the brand name)

[Erik Oliver @elosf]

@SawyerBlatz Improved with medication significantly; however, w/o it pretty much all comes back

[Erik Oliver @elosf]

@SawyerBlatz I have other LC friends who have not gotten better. It can be quite rough.

[Erik Oliver @elosf]

@SawyerBlatz Dr. Grandis at UCSF - though I think he is retiring soon

[Erik Oliver @elosf]

@tuftythecat @longandy @threadreaderapp unroll

[Erik Oliver @elosf]

@SawyerBlatz Yeah the heart rate variability measurements as part of the morning check in are what I find more helpful; along with the trend.

The heart rate part when standing up puts me at 120 followed by you are over exerting warning while maybe just going to the bathroom less so

[Erik Oliver @elosf]

@SawyerBlatz I use the visible app and polar arm band it also gives over exertion warnings during the day. Not perfect but surprisingly helpful

[Erik Oliver @elosf]

@SawyerBlatz 👏👏👏

[Erik Oliver @elosf]

@SawyerBlatz I’ve been using the visible app and polar heart rate monitor and it has been a helpful indicator which days are going to be worse and also working on pacing.

[Erik Oliver @elosf]

@beowulf888 I pay attention and appreciate them

[Erik Oliver @elosf]

@zalaly @nytimes @PamBelluck Thanks for all the work you and your team are doing to understand this better!

[Erik Oliver @elosf]

@NatsunoYoru Sadly based on the cover of the NYT home page right now, the focus will be on Biden :(

[Erik Oliver @elosf]

@zalaly @FortuneMagazine @cbarbermd Thanks for all the work you do! Great research and hopefully we start finding treatments for #longcovid

[Erik Oliver @elosf]

Any folks who have tried a beta blocker for POTS-like issues arising from #longcovid ? Heard about it on @EricTopol ‘s ground truth podcast and it made me wonder what other people have experienced trying it

[Erik Oliver @elosf]

@NatsunoYoru I try to treat it a bit like a puzzle. But it was the designer’s way of setting a time limit for each scenario as well as managing the power level of different cards

[Erik Oliver @elosf]

@vipintukur @threadreaderapp unroll

[Erik Oliver @elosf]

@SawyerBlatz So so sorry man. Rest as best as you can. 🤗