End of life planning and care are important, but I hope we can get beyond the point where we equate dementia care with end of life care. Looking past a person's final years, when they can still feel and return joy, is heart-breakingly tragic. #AlzChat
@DianaSheridan11 @emilyoliverdem @IRememberBetter Agreed. It can very hard to get these conversations started. We often suggest starting with listing seemingly little details of things that help you feel comfortable and cared for - and from there bigger conversations can develop #AlzChat
For perspective, dementia is a severe stage of cognitive impairment and, depending on the cause of the dementia, usually follows a long period of milder symptoms. It is during the mildly symptomatic stages (and earlier) that planning for dementia care should begin #AlzChat
This year, the need for connection and collective care is likely enormous no matter where you live. Here are some ideas for how you can give. https://t.co/psSWA5X7JX
Q5 If you are giving care, your perceptions fall away quickly and get replaced with clear truths about all the humanity that remains in a PWD. #diversealz
@CeciConnolly Nothing bothers me more by the way then when regulators point out they fear "overutilization" of #telemedicine. It's not possible in my view. Giving patients access to #Healthcare early & often is preventive & reduces acute costs down the road.
#telemednow
Given the well documented harm and expense caused by poor patient compliance w/prescribed self-care, it seems that reimbursement for "routine compliance oversight" would be a win-win-win. What group could lead such a charge? #TelemedNow
The ecosystem of every service industry has had to adapt to remote delivery. Payers, a key part of the healthcare ecosystem, must adapt as well. A "temporary adjustment" is not an "adaptation". They must embrace a permanent mutation for payment of remote care. #TelemedNow
After centuries of misunderstanding, research has finally tied the speech disorder to certain genes and brain alterations — and new treatments may be on the horizon. https://t.co/omYsjIzkYE
Important step forward in identifying the pre-symptomatic stages of Alzheimer's. This pragmatic approach will facilitate research on early stage subjects and accelerate efforts to develop disease modifying therapies: https://t.co/QJi7l3QW4M
Digital Cognitive biomarkers: Important step forward for pragmatically identifying subjects for early stage clinical trials, and for evaluating treatment effects in subjects with minimal cognitive deficits. https://t.co/cIW7AFOUTe
There is great tension between science and profit; and healthcare is the arena where the two collide every day. Science is often massaged in the name of greed so there will always be reason to mistrust scientific evidence in healthcare. #hcldr
T2: I'm optimistic about the generational ability to recognize political agendas embedded in every institution. I think solid science will still be respected while hype-science will remain an ongoing (but ineffective) foil to the truth. #hcldr
T1: Trust in science aside, the masses could use a good dose of skepticism about journalistic coverage of science, and about pseudo-science that abounds online. May be a sliver of benefit in this recent phenomenon of discrediting experts. #hcldr