Casey Berna, MSW

Endometriosis and Infertility Advocate and Social Worker

[Kelly @broadwaybabyto]

Me in ER with severe dehydration & tachycardia from POTS flare (undiagnosed at time)

Dr: “How much did you drink last night?”

Me: “I don’t drink”

Dr: “Tell the truth - if you don’t we can’t help”

Me: “I’m allergic to alcohol. I’ve had nothing to drink.”

Dr: “Don’t lie” 🧵 /1

[Nancy Petersen RN retired @nancynursez637]

#endometriosis Dr Ma Li, endo surgeon in Singapore, just id'd bilateral kidney loss from endo obstructed ureters. Wondering in advanced endo not having surgery if we ought to US kidneys to monitor hydronephrosis before they fail? Nook survey 2 yrs ago id'd 18 lost, 2 lost both,

[Tatiana Prowell, MD @tmprowell]

If you are conducting clinical research, in any disease, it is always improved by involving patient #advocacy colleagues early & often. I will die on this hill.

#drugdevelopment #clinicaltrials #teamscience #MedTwitter #OncTwitter

[Casey Berna, MSW @EndoSocialWorkr]

@ErasTourResell Evermore. 💛

[Laura Jayne Halton @LauraJHalton]

This really rings true...the support we find in this community helps so much, especially in an emotional capacity, when so often many friends and family members just don't get it.

[Casey Berna, MSW @EndoSocialWorkr]

Thank you for sharing @Kathleen_M_King Grateful to @Healthline for letting me share my story. #endometriosis #diagnosisdiaries

[Casey Berna, MSW @EndoSocialWorkr]

@Kathleen_M_King @livingendolife Omg-epic quote!!! You need to start putting that quote on things and selling them! I think @BushmillsIRL needs to sponsor you!

[Casey Berna, MSW @EndoSocialWorkr]

I have admired and been inspired by @Kathleen_M_King for many years now. She makes our community a better place to be.

[ProPublica @propublica]

Doctors at a major US insurance company deny tens of thousands of claims a month without even looking at patients’ files.

“We literally click & submit,” a former Cigna doctor told @ProPublica & @Capitol_Forum. “It takes all of 10 seconds to do 50 at a time.”

The inside story 🧵

[Casey Berna, MSW @EndoSocialWorkr]

This is really really really awful @ABCGMA3 for multiple reasons but encouraging those suffering to remove their ovaries and uterus is bordering criminal.

[Casey Berna, MSW @EndoSocialWorkr]

@ErasTourResell Tickets sold just after listing. Thank you! 💜

[Allyson Bontempo, Ph.D. @acbontempo]

Just in time for #endometriosis awareness month! Please fill out the form if you're interested in helping us refine our survey! 🎗️ We are especially interested in hearing from those from underrepresented groups🎗️https://t.co/9NjRwPbbrL

[Casey Berna, MSW @EndoSocialWorkr]

@LeLeIsMe It was kind of hard to tell as at the time my whole body was falling apart. But my insurance covered them and because I had experience giving myself shots I was able to do them at home. I have heard it can make a big difference.

[Casey Berna, MSW @EndoSocialWorkr]

@LeLeIsMe I had given them to myself for a year or two many years back.

[Casey Berna, MSW @EndoSocialWorkr]

@Ready4MyMiracle 💛💛💛💛

[Casey Berna, MSW @EndoSocialWorkr]

@acbontempo I think the rational was they were in there to treat cyst. The provider didn’t feel the need to give diagnosis, felt presence of endo wasn’t relevant. Recently a patient had hyst for heavy periods/cancer risk. I saw endo in path/surgical report-wasn’t mentioned by surgeon postop

[Allyson Bontempo, Ph.D. @acbontempo]

#endo folks. I’m going through open-ended responses about your negative healthcare interactions. So many of you have mentioned that endo was never mentioned to you by your previous OB/GYN leading up to your diagnosis. Curious as to what your thoughts are as to why this may be?

[Casey Berna, MSW @EndoSocialWorkr]

Do you want to support #endometriosis and #infertility nonprofits and advocates this #givingtuesday Check out this list of my favorites: https://t.co/zPNY0RdUM8