FACES of Narcolepsy

We are a 501(c)(3) nonprofit dedicated to providing connection, information and guidance to children and adolescents with narcolepsy and their families.

[FACES of Narcolepsy @FACESNarcolepsy]

2019 FACES of Narcolepsy was a huge success!

[FACES of Narcolepsy @FACESNarcolepsy]

Today is Narcolepsy Awareness Day. Please help spread awareness

[FACES of Narcolepsy @FACESNarcolepsy]

@BedRaceforN Thank you Dr. Patterson for the work you do spreading pediatric narcolepsy awareness!

[FACES of Narcolepsy @FACESNarcolepsy]

#narcolepsyawareness

[FACES of Narcolepsy @FACESNarcolepsy]

Register today: https://t.co/dXTj4WNXBQ

[FACES of Narcolepsy @FACESNarcolepsy]

Part of our mission is to bring these children’s voices to foreground, allowing them to feel heard, understood and supported.

[FACES of Narcolepsy @FACESNarcolepsy]

Do you know a family who has a child/adolescent with narcolepsy? Make sure they don’t miss out on this upcoming event! https://t.co/PmqovFarps

[FACES of Narcolepsy @FACESNarcolepsy]

@Txsleepmedicine please help us support adolescents with narcolepsy and their families. We are hosting Campference in New Braunfels, TX in March. https://t.co/PmqovFarps

[FACES of Narcolepsy @FACESNarcolepsy]

@SaratSusarlaMD please share @FACESNarcolepsy with your families who have children/adolescents with narcolepsy. Our mission is to support them through the Narcolepsy journey. We are hosting Campference this March in New Braunfels, TX. https://t.co/PmqovFarps

[FACES of Narcolepsy @FACESNarcolepsy]

@PowerofSleep please help us connect and come alongside with families who have children and adolescents with narcolepsy. We will be hosting a Campference this March. https://t.co/PmqovFarps

[FACES of Narcolepsy @FACESNarcolepsy]

So excited that research has been completed to help others find safe, effective treatment for their children/adolescents.

[Terry Cralle, M.S., R.N., CCSH @PowerofSleep]

Baclofen Improves Excessive Daytime Sleepiness in Narcolepsy https://t.co/yKaufpkuX9 via @neuroadvisor

[FACES of Narcolepsy @FACESNarcolepsy]

Narcolepsy is hard, but kids with narcolepsy are strong and can achieve anything!

[FACES of Narcolepsy @FACESNarcolepsy]

I can’t believe our time together is almost over. Our Board work retreat has been so valuable and productive. We are so excited to bring our program to life at FACES of Narcolepsy’s… https://t.co/hYzky20k8y

[FACES of Narcolepsy @FACESNarcolepsy]

Our kids with narcolepsy fight SO hard. They battle to stay awake, to stay focused in school, and to keep up with their peers. They are true superheros.

[FACES of Narcolepsy @FACESNarcolepsy]

@golfnjeray Nicole Jeray joins campference as the key note speaker! Check out her website - (https://t.co/hyE427rmRu) for more information about her life and her foundation!
Register for campference today! We still have a few spots! https://t.co/PmqovFarps

[FACES of Narcolepsy @FACESNarcolepsy]

70 days until FACES of Narcolepsy Campference. Registration is open to children and adolescents with narcolepsy and their families. https://t.co/PmqovFarps

[FACES of Narcolepsy @FACESNarcolepsy]

Narcolepsy is HARD.
💤Imagine you have been awake for 72 hours.
💤Imagine you are plagued with terrifying nightmares.
💤Imagine you literally fall over laughing when something is funny. 💤 Imagine nobody understands what you feel.
THIS is narcolepsy.
And there is NO cure.

[FACES of Narcolepsy @FACESNarcolepsy]

@mitdoc please share our exciting news with your pediatric patients with narcolepsy and their families. We are hosting Campference (camp for kids, conference for parents) this March in Texas. https://t.co/xNcUajItGc

[FACES of Narcolepsy @FACESNarcolepsy]

@neurology_live @harvardmed Thank you for sharing this important information. @FACESNarcolepsy strives to spread awareness about pediatric narcolepsy while supporting children and families.

[FACES of Narcolepsy @FACESNarcolepsy]

Who are we? 5 moms all who have kids with Narcolepsy sharing the same mission: to connect other kids and families so nobody has to ever feel alone.