Jane E. Powell

Chief Rainmaker, Sales Superhero, Networking Goddess, Advocate for PWN4PWN & Writer of my own story!

[Radha Tripathi @Radha_AI]

A man spends 50 years teaching at MIT.

He knows his time is running out.

So he records one last lecture — everything he knows, distilled into a single hour.

He died 5 months later.

This is that lecture.

The most important hour you'll watch this week. 👇
Bookmark it for later

[PWN4PWN @pwn4pwn]

A diagnosis is one moment.
Living with it is everything that follows.
Tomorrow: NapChat LIVE with Samantha Cassisi.

🕠 5:30 PM ET
Join the conversation: https://t.co/NLGUp2HlfP

#narcolepsyawareness

[PWN4PWN @pwn4pwn]

Strength doesn’t disappear during the holidays.
It just asks for meaning.
Tomorrow: Beyond the Sleep — A Season of Rest.

[PWN4PWN @pwn4pwn]

Happy Halloween from #PWN4PWN! 🎃

Some battles happen in the dark, but for people with narcolepsy, they happen every day.

This Halloween, we celebrate every dreamer still fighting to stay awake... literally and spiritually.

💙 Live #BeyondTheSleep → https://t.co/EZQlJtDNe5

[PWN4PWN @pwn4pwn]

💬 Next Week on #NapChat: Self-Advocacy in Action

What does it mean to speak up for your needs after a new diagnosis?

🗓 Mon Nov 3 | 6:30 PM ET
🎙 with Cecilia Marie Holland, Social Worker + IH Advocate
🧠 Join us → https://t.co/8w7uEKxbab

[PWN4PWN @pwn4pwn]

💙 At PWN4PWN, we're building a future where people with sleep disorders are seen, supported & celebrated.

From safer skies with our TSA Patient Toolkit, to new careers through the JOBS Project, our mission is alive in action, and the best is yet to come.

#PWN4PWN #Narcolepsy

[Jane E. Powell @fireflyjane]

@elonmusk I think it’s more than 5 mins 😂😂😂

[PWN4PWN @pwn4pwn]

⚖️ Can your boss deny you ADA rights if you have narcolepsy or IH? 👀
Join us for a live Q&A with Dr. Andrew Colsky.
📅 Mon, Oct 6 | 6:30 PM ET
🔗 Register: https://t.co/sFqOM1t1vc
#ADA #DisabilityRights #NarcolepsyAwareness

[PWN4PWN @pwn4pwn]

🔥 The Beyond the Sleep After-Party just dropped!
💜 Dan shared the heart behind the song. @fireflyjane & @AlanBarryBush brought laughs.
🙌 Thanks to all our volunteers + everyone who tuned in!
👉 Replay here: https://t.co/kefwYztPhx

#BeyondTheSleep #WorldNarcolepsyDay #pwn4pwn

[PWN4PWN @pwn4pwn]

🚀 From Space Needle → Beyond the Sleep galaxy. 💫
💜 Thanks to all who watched + volunteers!
TONIGHT 7pm ET: After-Party — Dan Liss on the song + bloopers and credits.
Join: https://t.co/kefwYztPhx

#BeyondTheSleep #AfterParty

[PWN4PWN @pwn4pwn]

🚀 TONIGHT 🚀
🎶 Beyond the Sleep premieres for World Narcolepsy Day.
🗓 Sept 22 | 7pm ET | YouTube
Foo Fighters energy. Purpose-driven heart. 💜
👉 Set a reminder now: https://t.co/8w7uEKxbab
#BeyondTheSleep #WorldNarcolepsyDay #pwn4pwn

[PWN4PWN @pwn4pwn]

Behind every anthem... there's a movement. 💜
You've seen the trailer. Now see how we made it happen. Spoiler alert: We had a lot of fun filming this 🎸💥 #BeyondTheSleep #Fight4Rest #PWN4PWN #Narcolepsy #Hypersomnia #BehindTheScenes #SneakPeek

[💪🎭..Rai ji..💪🎭 @Vinod_r108]

@realDonaldTrump 34 year old Donald trump being asked about running for president

[PWN4PWN @pwn4pwn]

🎬 Lights! Camera! Visibility!
The real faces of Beyond the Sleep. They’ve lived the fatigue, the misdiagnoses, the silence. Now they’re front & center with something to say.
💥 Premiering Sept 22
👉 Watch the trailer: https://t.co/sl841Y7n4e
#Fight4Rest #BeyondTheSleep #PWN4PWN

[PWN4PWN @pwn4pwn]

💜 The fight for rest has a soundtrack.
Meet the faces, voices & power behind Beyond the Sleep, the anthem for narcolepsy warriors everywhere.
🎧 Premieres Sept 22 | 🎬 Watch the trailer now:
👉 https://t.co/sl841Y6PeG
#Fight4Rest #WorldNarcolepsyDay #Hypersomnia #BeyondTheSleep

[PWN4PWN @pwn4pwn]

Teresa Durham wore the Superwoman cape… until burnout ripped it off.

So she paused.
Not because she failed — but because she finally listened.

Sometimes the bravest move isn’t doing more. It’s stopping. https://t.co/JazhysPqpz
#CareerPause #TeresaDurham #RestIsPower

[PWN4PWN @pwn4pwn]

Living with Narcolepsy or IH means starting every day with less in the tank—yet still being expected to run the same race.

What’s something you wish people understood about your “energy budget”?
Let’s talk about it.

#PWN4PWN #SpoonieLife #NarcolepsyAwareness #IHTruth

[PWN4PWN @pwn4pwn]

Happy 4th of July from @PWN4PWN 🇺🇸
Independence looks different for everyone — for us, it means advocating for better care, support, and visibility for people with Narcolepsy and IH.
Wishing you a restful and safe celebration. 💙
#IndependenceDay #4thofJuly #PWN4PWN

[PWN4PWN @pwn4pwn]

Brain fog blocking your resume mojo?
AI to the rescue. 🧠✨

Use tools like ChatGPT to draft resumes, fix your tone, or write cover letters when you’re too tired to think.
https://t.co/bULb02YlfB
Let tech do the heavy lifting.
#Narcolepsy #JobSearch #SpoonieLife #AItools

[PWN4PWN @pwn4pwn]

Which myth about narcolepsy or IH do you hear most?

“You’re just lazy”

“You don’t get enough sleep”

“It’s just regular tiredness”

“You can just push through it”