FMD-EU

European Fibromuscular Dysplasia Patient Group

[International Society of Hypertension @ISHBP]

A short survey from the @ESHypertension is investigating global practice patterns in the screening and management of fibromuscular dysplasia (FMD).

We encourage ISH members with relevant experience to participate: https://t.co/cvN9eum9qz

Responses are requested by 31 July 2026

[VascularMedicine @VMJ_SVM]

Online first: Pitocco and colleagues present ultra-high-resolution photon-counting CT images of a case of focal renal fibromuscular dysplasia.
🔗 https://t.co/9fEiXL08Dl

[International Journal of Stroke @IntJStroke]

📈New study finds high prevalence (8.3%) of cervical fibromuscular dysplasia in aneurysmal subarachnoid hemorrhage patients

🧠⭕️No clear differences in aneurysm severity and internal carotid artery elongation compared to those without

https://t.co/plru7KJ29k

[FMD-EU @FmdBe]

@pdmace2 @FMDartery We are so sorry to hear this sad news. Our thoughts are with his family, friends and FMDSA colleagues.

[FMD-EU @FmdBe]

@FMDartery Happy Anniversary! 🎂

[FMDSA @FMDartery]

Join our Strand of Strength during the FMDSA's Annual Appeal! Every donation—big or small—adds a ‘bead’ to our Strand of Strength.
Add your bead today at https://t.co/b1fyLwsUqc and help us reach our goal to keep making an impact!

#StrandOfStrength
#FMDSAStrong
#fmdsa

[FMD-EU @FmdBe]

@HarringtonHVI @heatherlgornik @pdmace2 We are grateful to Dr Gornik and her team for these support group webinars, a fantastic educational resource for our FMD patient community worldwide! 💙❤️

Thank you to everyone involved in making them possible!
@heatherlgornik
@FMDartery
@pdmace2
@HarringtonHVI

[UH Harrington Heart & Vascular Institute @HarringtonHVI]

Virtual #FMD support group led by @heatherlgornik of @HarringtonHVI in collaboration with @pdmace2 of @FMDarteryis garnering the participation of patients worldwide.
https://t.co/sHpcn7w0iS

[FMDSA @FMDartery]

#FMDgenetics study update with @DrJeffreyWOlin1 and @kovacic_jason is available on our YouTube channel!

https://t.co/FCecRmnUBp

#fibromusculardysplasia
#fmdresearch
#supportfmdresearch
#geneticsoffmd

[FMD-EU @FmdBe]

@FMDartery @DrJeffreyWOlin1 @kovacic_jason @MountSinaiNYC @VictorChangInst Thank you @FMDartery @DrJeffreyWOlin1 and @kovacic_jason for sharing the video from this webinar and making the information accessible to FMD patients worldwide!

[FMDSA @FMDartery]

The research update webinar video is available on our YouTube channel.

Thank you @DrJeffreyWOlin1 and @kovacic_jason for updating our patient community on this research!

#FMD
#FibromuscularDysplasia
#mtsinainyc @MountSinaiNYC
@VictorChangInst

https://t.co/FCecRmnUBp

[FMDSA @FMDartery]

#fibromusculardysplasia #FMD included as a possible cause of chronic mesenteric ischemia in this @ClevelandClinic journal of medicine article.

https://t.co/eWNeD1q3dH

[Victor Chang Cardiac Research Institute @VictorChangInst]

A major driver of FMD has been identified by a team of scientists incl our Director Prof @Kovacic_Jason. The @NatureCVR study could help lead to new treatments for the disease which effects ~5% of adults and can cause stroke, heart attack + kidney failure: https://t.co/xj6Ptkv7RX

[FMDSA @FMDartery]

https://t.co/fF2WSW1glN

[FMDSA @FMDartery]

We're excited to share this @MountSinaiNYC
@IcahnMountSinai press release about the paper published today in
@Nature

https://t.co/O8Lzprsboa

"the team said changes in the gene UBR4 played an important role as a key driver of FMD"
@DrJeffreyWOlin1
@kovacic_jason

[FMDSA @FMDartery]

@UHhospitals FMD and Arterial Dissection support group webinar "Celebrating FMD Awareness Month and Misconceptions about Fibromuscular Dysplasia: The Most Important Facts Learned from the US Registry" with @heatherlgornik and @DrJeffreyWOlin1

https://t.co/5TvjrnEclz

[VascularMedicine @VMJ_SVM]

In honor of #WorldHypertensionDay, we share a classic Patient Information Page on #hypertension, including diagnostics, meds, and more!

Image shows correct positioning for measuring blood pressure
https://t.co/KNmmFE5X0i
Written by @shireen_khoury @evratchford

[VascularMedicine @VMJ_SVM]

In the latest issue: Dr. Kądziela and colleagues share short- and long-term outcomes of renal artery angioplasty versus stenting in patients with fibromuscular dysplasia.
#FibromuscularDysplasia
https://t.co/0czzXmSKxq

[VascularMedicine @VMJ_SVM]

#ImagesinVascMed - 68-year-old female with presented with chest/back pain. Imaging revealed 5.5cm abdominal aortic aneurysm. During endovascular repair, ‘string-of-pearls' renal arteries noted, consistent with fibromuscular dysplasia. @TobyRichardsUCL
https://t.co/w95ErV1Egq

[U-M Health Frankel CVC @umichCVC]

Fibromuscular dysplasia, or #FMD, is a condition in which abnormal cell development in the artery wall can lead to serious health consequences. The FMD registry, which is managed by @mcorrp at @umichmedicine, has now expanded to international centers:
https://t.co/1avL5Vh0Bn