FND Connect

Practical UK support for Functional Neurological Disorder (FND): plain-English guides, tools & community. Independent info — not medical advice.

[FND Connect @fndconnect_uk]

FND Connect was never created to make one person visible.

It was created to make thousands of people with FND feel less invisible.

We don't want our community to revolve around a founder, a face or a personality.

We want it to revolve around you.

Your experiences.
Your questions.
Your friendships.
Your bad days.
Your wins.
Your voice.

The people running FND Connect aren't supposed to be the main characters.

The community is.

That's the kind of organisation we're trying to build.

Not a following.

A community. 💙🩷

#FNDConnect #FunctionalNeurologicalDisorder #FNDCommunity

[FND Connect @fndconnect_uk]

We’re pleased to welcome Amy, Tricia and Deborah as three new Trustees joining the FND Connect board.

Between them, they bring a valuable mix of experience, insight and expertise, adding to the strengths of our existing Board of Trustees as we continue to develop and grow FND Connect.

Each brings a different perspective, but a shared commitment to helping us move forward, strengthen what we do and continue supporting the FND community.

Please join us in giving Amy, Tricia and Deborah a warm welcome to FND Connect. 💙🩷

#FNDConnect #FND #FunctionalNeurologicalDisorder #Trustees #CharityTrustees #WelcomeToTheTeam

[FND Connect @fndconnect_uk]

The GP waiting room instantly deletes my memory. I go from having 50 unhinged FND symptoms to sounding like a conspiracy theorist connecting dots with red string. Now I just use the SeizeControl app and shove a graph in their face. Much easier.

#FND #BrainFog

[FND Connect @fndconnect_uk]

The most dangerous abuse often disguises itself as care. When a partner takes your bank card or blocks calls from family because you "aren't well enough," that isn't support. It is coercive control. True care empowers independence; it doesn't isolate.

Find out more: https://fnd…

[FND Connect @fndconnect_uk]

Googling for FND support shouldn't lead to dead ends. We got tired of seeing empty resource pages, so we built a CIC that actually does the work. If you need tangible help in the UK, the FND Connect grant is here. Stop searching, start applying.

#FND

[FND Connect @fndconnect_uk]

A 2-year waitlist and a paper bag isn't a treatment plan.

While the system makes you wait, FND Connect is actually doing something about it. We're dropping plain-English guides and funding real mobility grants for FND patients.

Get the cane, ditch the leaflet.

#FNDAwareness

[FND Connect @fndconnect_uk]

The worst game show on television is just me waking up with FND. Spinning the wheel to see if my nervous system chose 'run a 5k' or 'seizures' for the day. Send thoughts, prayers, and maybe a sparkly suit.

#FNDawareness

[FND Connect @fndconnect_uk]

Reading about FND shouldn't require a medical degree. We're ditching the confusing jargon for plain-English guides that actually make sense. Your nervous system is complicated enough, your reading material shouldn't be.

#FND #HealthLiteracy

[FND Connect @fndconnect_uk]

Trying to explain FND to a new doctor feels like trying to disarm a bomb while they ask if you've tried doing yoga. My nervous system is in chaos, I don't need a deep breath, I need someone to read my chart.

[FND Connect @fndconnect_uk]

Happy Assistance Dog Day! 🐾
Assistance dogs can offer some people with FND practical help, reassurance and greater independence.
Today we celebrate every remarkable dog—and the training, trust and partnership behind each working team. 💙
#AssistanceDogDay #FND #Disability

[FND Connect @fndconnect_uk]

Ever suddenly lose your words during an #FND episode?

Slurred speech. A sudden stutter. Words that won’t come out. Or sounds that make perfect sense to you, but nobody else can understand.

These symptoms are real, recognised in Functional Neurological Disorder, and can be one of the most frightening parts of an episode.

If people still think FND is “made up”, spend five minutes learning what people actually experience.

Read our latest article:
https://t.co/8FL5ZDveUQ

#FunctionalNeurologicalDisorder #FNDAwareness #Neurology #Disability #InvisibleDisability

[FND Connect @fndconnect_uk]

The biggest predictor of the care you receive for #FND shouldn’t be your postcode. Yet too often, it is.

Despite national guidance, many people with Functional Neurological Disorder still have no access to appropriate local services.

And for those claiming FND “isn’t real”—it’s recognised by the NHS and neurologists worldwide. The postcode lottery is about access to care, not whether the condition exists.

See the evidence, check your area, and help push for change:

https://t.co/Ee9BgdRp2y

#FunctionalNeurologicalDisorder #NHS #HealthInequality #FNDAwareness

[FND Connect @fndconnect_uk]

@Joshstilldey This is Amy, she is our Ambassador. Why are you using her content without any permission or credit to her? 🤨

[FND Connect @fndconnect_uk]

If only we could all sleep this well… 😴🐾
Sleep and FND don’t always make the easiest pair, and a difficult night can make an already challenging symptom day feel even harder.
So get snug, drop the guilt and remember: rest counts too. 💙
#FND #FNDAwareness

[FND Connect @fndconnect_uk]

They told you that you couldn’t.

Walk.
Work.
Travel.
Exercise.
Live independently.

Now it's time to prove them wrong.

Start your #FNDChallenge, get sponsored, raise money for FNDConnect & show that FND doesn’t get the final say.

Start today:
https://t.co/cCZkTVSdM4

#FND

[FND Connect @fndconnect_uk]

What gets you through the difficult days with FND? A grounding exercise, rest, music, distraction, or someone who gets it? Share the coping tool you reach for most. It might help someone else today. 💬 #FND #FNDawareness #ChronicIllness #Disability

[FND Connect @fndconnect_uk]

Do not feel guilty for needing to rest. Rest is an important part of pacing yourself to ensure that you can still bank those little wins! #FND #FunctionalNeurologicalDisorder #RestDay #FNDConnect

[FND Connect @fndconnect_uk]

Feel the thrill of adventure while making a real difference! Take on a challenge for FND warriors – run, cycle, swim or create your own fundraiser. Every pound changes lives!
https://t.co/OVeD8E7bFP
#FNDConnect #FND #Fundraise #StrongerTogether

[FND Connect @fndconnect_uk]

✈️ Can I fly with FND? Practical tips for flying: pressure triggers, airport prep & a free cabin crew letter tool!

📖 https://t.co/WQh4YezpRL

#FND #FunctionalNeurologicalDisorder #FlyingWithFND #ChronicIllness