Saturday I seizured which left me speechless, weak & been in bed since. The highs outweigh the lows. However lows hit hard.I can deal with pain but the speech is frustrating. I'm lucky to have the support I need and forever grateful for that.
#FND#FNDsetback#Bedbound
More prevalent than Multiple Sclerosis or Parkinson’s disease. Second only to migraines in reasons to be referred to a neurology clinic. Rare? I think not. The media classes #FND as 'rare' simply because it is more newsworthy than 'common'.
Rare brain disorder leaves sport-loving Dundee mum in unable to walk or speak… https://t.co/4WbesjCHI4 Functional Neurological Disorder can devastate a person's livelihood, as well as health. The #NHS need to invest more in services to help. #FND
Among our groups, FND Hope created Body, Mind and Soul for those with FND to go to when needing to relax or need uplifting.
https://t.co/bGk9eP1FQw
The Men's group came about 2 years ago when the need for men to have their own space was identified.
https://t.co/yQzeJ25UZA
Invite guests for a cup of tea or coffee. Patient, carers, family members or FND aware Practitioners, get involved by bringing people together to share FND Awareness!
https://t.co/KSZcNInpS7
Information from Jon Stone’s Twitter page
People with FND come up against a lot of these during diagnosis and treatment.
#FNDaware#FND2020#FND#LetstalkFND
What should we call psychogenic non-epileptic seizures?
This paper's been released by the International League Against Epilepsy (ILAE) including our very own Bridget Mildon
https://t.co/qI1ZRWA4vu
Together with research, we aim to push forward positively to delete Stigmatizing of FND. Make sure to do your part by signing up to be part of all research opportunities!
https://t.co/yKNvOmmuUz
HealthUnlocked, Twitter, Instagram and Facebook chat groups are a great way to meet others and discuss FND.
We encourage you to see if in-person or online support is right for you!
https://t.co/GP16qphP1N
#FNDaware#FND2021#LetsTalkFND
very proud to work alongside amazing people for this charity also feel less alone with this condition Thankyou @FNDHopeUK- Functional Neurological Disorder 🧡🧡🧡
@AlanCarson15@chris_sym I am 100% interested Chris symeon has my details as I took park in the Rehab at Queens Square Roehampton, Or Dawn Golder as I work with fndhope I have had fnd for almost 6 years
I really look forward to working with you x
@AlanCarson15@FNDHopeUK hi I have fnd and I work with fnd and and have spoken along side Chris symeon before he has all my details I would love love to get envolled.
many thanks
Jemma