Tin Soldiers FOP

Tin Soldiers shines a light on a debilitating condition - FOP - and the search for those still living in isolation to connect them to care.

[IFOPA @ifopa]

In this year's FOP Family Gathering, coming up November 19-21, we'll learn about the impact of stress on the FOP body, as well as helpful ways to react and adjust to limit impact and improve well-being. Register: https://t.co/OmB3tL2wHF #2021FOPGathering

[Tin Soldiers FOP @fop_tin]

We’ve been busy at Tin Soldiers HQ and can’t wait to share what we’ve been up to. Something is coming …
@ToyotaSA
#fopchallenge #raisealegforfop #helpusfindthemissing #tinsoldiersfoppatientsearch #raredisease #CareAboutRARE #rarewarriors

[Tin Soldiers FOP @fop_tin]

Tin Soldiers on the road to get word out to township clinics and communities about #FOP Big ups to @ToyotaSA for keeping us moving! 💓💓💓 #fopchallenge #raisealegforfop #helpusfindthemissing #tinsoldiersfoppatientsearch #raredisease #CareAboutRARE #patiensecurity #rarelife

[Tin Soldiers FOP @fop_tin]

Support from a knowledgeable FOP community can mean a healthier life for those living with the condition. Join the Raise-a-Leg challenge and spread the word.

#fopchallenge #raisealegforfop #helpusfindthemissing #tinsoldiersfoppatientsearch #raredisease #CareAboutRARE

[AllStripes @_allstripes]

We are thrilled to announce that AllStripes has raised $50M in Series B funding! These funds will enable us to add 100 new rare disease research programs and new platform features for patients, families and our research partners. Read more: https://t.co/EAFDzVbo9T

[Tin Soldiers FOP @fop_tin]

We can save a child from being locked into a world of immobility. Help us find them before their symptoms worsen. Raise a leg!

#fopchallenge #raisealegforfop #helpusfindthemissing #tinsoldiersfoppatientsearch #raredisease #CareAboutRARE #rarewarriors

[Tin Soldiers FOP @fop_tin]

The FOP community is in search of undiagnosed people who have the condition. Join the Raise-a-leg challenge and spread the word.

#fopchallenge #raisealegforfop #helpusfindthemissing #tinsoldiersfoppatientsearch #raredisease #CareAboutRARE #rarewarriors

[Tin Soldiers FOP @fop_tin]

Become part of the FOP ambassador network and help us find the missing. Raise a leg!
#fopchallenge #raisealegforfop #helpusfindthemissing #tinsoldiersfoppatientsearch #raredisease #CareAboutRARE #rarewarriors

[AllStripes @_allstripes]

Shout-out to all the incredible rare disease patient advocates on #NationalPatientAdvocacyDay! At AllStripes, we are honored to work alongside so many powerful advocates advancing awareness and treatments in their condition space.

[Tin Soldiers FOP @fop_tin]

FOP Flare ups are when painful swellings emerge and then bone is created in place of tissue. Join the Raise-A-Leg for FOP Challenge. Let’s find the missing!
#fopchallenge #raisealegforfop #helpusfindthemissing #tinsoldiersfoppatientsearch #raredisease #CareAboutRARE #rarewarriors

[Tin Soldiers FOP @fop_tin]

There are 7500 FOP Warriors in the world. We’ve found about 900 of them. Let’s find the missing.
#fopchallenge #raisealegforfop #helpusfindthemissing #tinsoldiersfoppatientsearch #raredisease #CareAboutRARE #rarewarriors

[Innovative Health Initiative @IHIEurope]

In #FibrodyplasiaOssificansProgressiva (#FOP), soft tissues slowly turn to bone. Our @STOPFOPEU project is trialling cancer drug #saracatinib as a treatment for this #RareDisease
Read more in today's #IMISummerReading: https://t.co/MGm71DS836
#IMICarryTheTorch #cureFOP

[FOP Friends @FOPFriends]

We're excited to share with you the latest edition of Together. Read it here: https://t.co/J0XHt62lvW If you'd like to be added to our mailing list, please get in touch!

[Tin Soldiers FOP @fop_tin]

Meet Lwandle. Lwandle is 1 in a million. She has FOP an ultra-rare condition affecting 1 in 1 million births globally. Join the challenge & raise awareness.
#fopchallenge #raisealegforfop #helpusfindthemissing #tinsoldiersfoppatientsearch #raredisease #CareAboutRARE #rarewarriors

[Tin Soldiers FOP @fop_tin]

Love and pride shine through for Kaylen and her dad. Every 44 hours a baby is born with FOP. Are you a rare parent? Help us find the missing!

#fopchallenge #raisealegforfop #helpusfindthemissing #tinsoldiersfoppatientsearch #raredisease #CareAboutRARE #rareparents #raredads

[Tin Soldiers FOP @fop_tin]

Jessica is an FOP warrior. Help us search for those who are missing, because you CAN!
#fopchallenge #raisealegforfop #helpusfindthemissing #tinsoldiersfoppatientsearch #raredisease #CareAboutRARE #patiensecurity #rarelife #fopdiagnosis #sealsighthealth #curefop #challengeyourself

[Tin Soldiers FOP @fop_tin]

Darling Haley loves singing and belongs to a choir. She also loves to draw & do crafts. Help us find other FOP warriors like her!

#fopchallenge #raisealegforfop #helpusfindthemissing #tinsoldiersfoppatientsearch #raredisease #CareAboutRARE

[Tin Soldiers FOP @fop_tin]

She may look shy, but warriors come in all shapes and sizes! Lwandele has FOP, and she’s one in a million.
#fopchallenge #raisealegforfop #helpusfindthemissing #tinsoldiersfoppatientsearch #raredisease #CareAboutRARE #patiensecurity #rarelife #fopdiagnosis #sealsighthealth

[Tin Soldiers FOP @fop_tin]

Malformed big toes + Lumps + Stiffness = FOP. Help us FIND the missing!
#fopchallenge #raisealegforfop #helpusfindthemissing #tinsoldiersfoppatientsearch #raredisease #CareAboutRARE