One of our friends #pwME is currently trying to survive a myasthenia gravis crisis with very severe ME in a wa.r zone. Please consider a rt and helping out, every bit helps (insta @ reakiro, people are posting on her behalf atm) PP: @ JBuckley485
#pwME@franhaddock_ is making really outstanding, powerful, important Instagram videos from her bed,
to raise awareness about #ME at *all* levels of severity.
So grateful to her for using her energy & expertise in this way
#MEAwarenessMonth
💙🩵💙
https://t.co/cU7sMuicgg
#pwME@franhaddock_ is making really outstanding, powerful, important Instagram videos from her bed,
to raise awareness about #ME at *all* levels of severity.
So grateful to her for using her energy & expertise in this way
#MEAwarenessMonth
💙🩵💙
https://t.co/cU7sMuicgg
New! eLearning: Supporting people with severe ME/CFS
Practical guidance for those living with severe ME/CFS. Perfect for carers & support teams. Free access. ⬇️
https://t.co/tFag8uWXY8
#MECSFSupport#SevereME#ElearningForCarers#MEAwareness
People are developing Long Covid after their third, fourth, fifth, etc infection.
It’s still circulating, still disabling and, in some cases still deadly.
You’ve gotta ask yourself what your ‘lucky’ number is going to be.
The profile of this issue needs to be raised considerably.
The economic and human impacts are devastating and should be informing policy.
Be bold! Invite someone on to @_BoldPolitics to discuss #LongCovid
Add guest suggestions below 💚
@ZackPolanski Thank you Zack, and ofc for ME which ~50% of people with long covid also have. Both diseases have destroyed my life and the life of millions of others
Would appreciate shares and support for my friend Mari who is enduring severe ME alongside DV and continues to deteriorate. We’ve launched a GFM so she can safely escape but we need help sharing it 💜
https://t.co/xwqLBXgHi1
#MEAwareness#SevereME#MECFS
Would appreciate support and shares for Mari!
Mari is someone I’ve known for >2 years who has severe ME. She is trapped within caregiver abuse. She has inadequate care which harms her, she is struggling to access food, & she desperately needs to escape.
https://t.co/9haKo6S7Fr
Severe #MECFS means you often need carers just to survive. But if your caregiver is your abuser, you’re trapped. Over exertion and stress can trigger a deterioration in your health lasting weeks or even months. I can’t imagine much worse. I’ve just donated to help Mari escape.
I'm sorry that disabled people make you uncomfortable, Autumn. But “your psyche will do insane things to try to sustain the illness” is the dumbest thing I’ve ever heard. Believing I wasn't sick in 2021 is what helped me become mostly bedridden. Take your ableism elsewhere.
If you like Halloween I’m also hosting a Halloween raffle on my IG page for Mari- if you donate you can enter by DMing me a screenshot of your donation!
https://t.co/z8rCUfOUbO
Funds will go towards Mari escaping DV and having her survival needs met before and after she escapes. Mari is someone I can completely vouch for but she has to stay anonymous for her own safety. Let’s show her our support as a community!