People think it’s money.
People think it’s ‘just’ orthopaedics. It’s not.
It’s bad management and administration left right and centre in @CHI_Ireland
When the surgeon marks a pre-op MRI as urgent for my child … and the radiology department ‘re-assigns’ it as routine with a 12 month wait WITHIN 10 hours of it being submitted.
When genetics are needed and there’s a 15 month wait publicly or €1500 private in 2 days.
When sleep studies are needed and there’s a 6 month wait
When there is one special wheelchair to share between Crumlin and temple street for children in halo traction.
ONE.
When you try to go through the complaints process to make sure no other child is missed like our daughter was….and I have to then send in an 11 page rebuttal and objection as @CHIatCrumlin did not adhere to @HSELive framework policies.
That’s not the surgeons.
That’s not money.
That’s REALLY bad management by CHI senior management and staff.
Accountability is the only way to change things.
There is no point in a task force @SimonHarrisTD and of @DonnellyStephen meeting with surgeons when it’s the feed-in services that are broken all around orthopaedics also.
What they discuss and decide to change at those meetings DOES NOT filter down nor reflect on anything that the parents coming in the door are having to navigate. I acknowledge my privilege in being able to navigate that system. What hope have others?
#Spinaltaskforce @SimonHarrisTD @DonnellyStephen @BernardGloster will you meet me to discuss my experience and use it to change?
From someone who has experienced national and international standards of care for adults and paediatrics.
Research-led medicine where parents are fully informed and given truths. It’s when there is the absence of information that the void is filled with anxieties, misinformation and anger-all the while caring for a child disappearing before their eyes.
Good feed in services, accountable admin and supports so that orthopaedic surgeons, like our daughters, will be able to carry out life saving surgery.
Scoliosis isn’t just aesthetics.
It’s the twisting of every vertebrae.
It’s crushing lungs, heart and intestines.
There are amazing surgeons and staff in Ireland. They are being failed also.
@scolionetwork@Adam_Higgins27@rareireland@npsoIRL@ScolioIreland
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*TIP FOR MEN
study up on what the "mental load" is and why repeatedly asking your female partner what you, a grown-ass adult, should do is NOT healthy communication.
it's men infantilizing themselves to the point of requiring a chore chart, minus the elmo stickers.
I’m honored to have performed tonight, for the Paris 2024 Opening Ceremony, and so full of joy to be back in one of my very favorite cities! Most of all, I’m so happy to be celebrating these amazing athletes, with all their stories of sacrifice and determination, pain and perseverance. All of you have been so focused on your dream, and whether or not you take home a medal, I hope that being here means that it has come true for you! You should all be so proud, we know how hard you have worked to be the best of the best. Stay focused, keep going, my heart is with you! - Celine xx…
Photo: Laura Gilli
BREAKING: The Kamala Harris campaign just released their first ad. Retweet to make sure every American knows who Kamala Harris is and what is at stake this November.
PLEASE RT - Spinal Surgery - Spinal Review & Urology Interventions Denied to Most Complex, Sickest & Vulnerable #Disabled Children. Limb Reconstruction Also Curtailed -I’m Informed a 2 Year Old Child has had an Amputation. Let. That. Sink. In. IRELAND’s SHAME @CHI_Ireland
Alanis Morissette's daughter, Onyx, celebrated her eighth birthday by joining her mother on stage to sing "Ironic" in Nashville on Sunday night.
Credit: Wacky Swiftie
5 LONG HARD WEEKS AND 1 DAY OF LIVING IN A HOSPITAL CANT GO HOME CANT GET SURGERY CANT EVEN GET ORTHOPAEDICS TO REASSESS LIAM AND GIVE DATE ACCORDINGLY. PRELIMINARY DATE OF 30TH MAY IS TOO FAR AWAY IF HE GETS INFECTION WAITING OR ICU BED ISNT AVAILABLE WHAT DO WE DO THEN,ENOUGH !