thetangledhead

Dementia Advocate & Caregiver

[thetangledhead @garvined]

Few dementia caregivers are able to ‘get I the deep water’ w/their spouses w/dementia. Most are ‘placed.’ #inhomedementiacare is very difficult. To those doing it, you are giving the best possible care there is.

[thetangledhead @garvined]

As a caregiver I long for a dinner time without indigestion.

[thetangledhead @garvined]

Some caregivers talk to people w/dementia like they're 2 yrs old.They're not.They are fully formed adults who all have stories and feelings.

[thetangledhead @garvined]

If Medicaid is cut by $850B its likely my wife w/dementia and I will die sooner than later. Longterm care is critical to us. #Resist

[thetangledhead @garvined]

These drugs like #Namzaric are useless. Shame on their deceptive ads for giving false hope. Its all about $$$$. Snake oil.

[thetangledhead @garvined]

Dementia afflicts the entire family. My caregiver thinking often is distorted and I have to rely on my friends to bring me back to reality.

[thetangledhead @garvined]

Golden oldies is powerful medicine for my wife w/#dementia

[thetangledhead @garvined]

Computer sketch my wife (w/#dementia) and I completed this PM. She has garbled speech but named it "You Can Cry." Joyful moments.

[thetangledhead @garvined]

Its our job as caregivers to help maintain our loved ones sense of self and their history.

[Caregiving.com @caregiving]

Advocates: Family #caregivers need financial support https://t.co/acj3q5c68L via @postandcourier #caregiving

[Alzheimer's Association @alzassociation]

In the 2 weeks between now and the election, Alzheimer’s will cost taxpayers $6.15B #ENDALZ

[Daniel C. Potts, MD, FAAN @DanielCPotts]

We can, we must, restore persons w/dementia back into the circle of human relationships through compassionately honoring their personhood.

[thetangledhead @garvined]

Great Alzheimers video by my ex-classmate Patti Davis and Maria Shriver https://t.co/BBNKnUCyeK

[thetangledhead @garvined]

Its like alcoholics talking to alcoholics, if you haven't been an active #dementia caregiver you really don't understand it and never will.

[thetangledhead @garvined]

Lives that are touched by profound forms of #dementia have meaning and continuing purpose.

[thetangledhead @garvined]

#Dementia doesn’t cause a loss of self.Understd properly,the self remains intact in #dementia.Loss of self relates to a failure of community

[thetangledhead @garvined]

The ease with which people w/#dementia lose friends raises a dark question:What is it that we actually love in those we claim to love?

[thetangledhead @garvined]

#Dementia seems to act as a very powerful solvent on many kinds of social ties. I doubt that many friendships survive its onset.

[thetangledhead @garvined]

As our loved one's #dementia progresses we discover that human beings are much more than just bundles of memories. Much, much more.