Gem

I'm just a lady who loves her family and baking! Living with #eds and taking each day as it comes!!💖

[Ellis Buckley @ellisbuckley1]

My poor sister recorded this from the hospital while waiting for her husband to come back from 5 1/2 hrs of gammaknife surgery 💔💔💔💔😪😭😭😭https://t.co/ItwtIX0aLp

[Ellis Buckley @ellisbuckley1]

This is very important to me. Watching my sister and her husband go through this is heartbreaking, if the wonderful world of the Internet can do it things and help these people, please share and make their journey a little easier ❤️
https://t.co/J8I5TqbFWb

[Gem @gembuckley5]

@GTWorldChEu @Brands_Hatch @ellisbuckley1

[Henry Watt @Charlie_Dimmock]

NEW RESEARCH has linked hypermobility to a deficiency of folate—the natural form of vitamin B9—caused by a variation of the MTHFR gene.

The folate deficiency may prevent key proteins from binding collagen to the extracellular matrix.

https://t.co/9JGQ1HLYHv

[Isobel Knight @IsobelKnight2]

Experience: I have to spend my life lying horizontally https://t.co/u0gzMqO2Na

[SEDSConnective @SEDSConnective]

Today is #RareDiseaseDay2023
There are 13 named types of Ehlers-Danlos syndromes.

Some people have very rare types of Ehlers-Danlos syndromes
Here are the ones with a confirmed genetic basis from @TheEDSociety

[Sky News @SkyNews]

A woman who has been a midwife for more than 20 years tells Sky News she's been told that she is going to lose her job in the NHS because she refuses to get vaccinated against #COVID19.

Around 80,000 NHS staff could face the same fate - full story here: https://t.co/xTxLQz3GL8

[Gem @gembuckley5]

@ellisbuckley1 This could be my opportunity for the career change I was talking about!!!🤣

[Sky News @SkyNews]

HGV driving tests will be relaxed to allow 50,000 more to be taken in an attempt to tackle the shortage of lorry drivers ahead of Christmas, the transport secretary has announced https://t.co/W2RcMTXJ0y

[PoTS UK @UKPoTS]

Thank you to everyone who has supported our #TakeAStandForPoTS campaign this month. We have seen huge engagement & we truly appreciate your support💜
Please continue to educate about #PoTS

Attached is our downloadable '10 Facts about PoTS' leaflet:
https://t.co/rp3B0gi0ft

[Giles Paley-Phillips @eliistender10]

Physics is incredible

[Standing Up to POTS @POTSActivist]

It is impossible to know what someone else is going through until you walk a mile in their shoes. POTS is a chronic invisible illness. While you may not be able to see the depth of the illness at a glance, that doesn't mean that the person is not suffering. Always be kind! #SUTP

[Gem @gembuckley5]

@ellisbuckley1 Thank you my darling😘x

[OhTWIST.bsky.social now too @H2OhTwist]

Many with Irritable Bowel Syndrome #IBS find they really have food sensitivities and a form of #MCAD https://t.co/77upBQ3Zs0 #EDS #HMS #EhlersDanlos #hypermobility #fibro #fibromyalgia #NEISvoid

[Wonder of Science @wonderofscience]

The web of the spiny orb-weaver spider is an amazing feat of engineering, built from multiple types of silk, each with a particular function. Credit: Rachel Barry

[BBC News (UK) @BBCNews]

Coronavirus 'like Russian roulette' for young and healthy https://t.co/2VEie5eZgz

[Ehlers-Danlos Support UK @ehlersdanlosuk]

#Midwives & obstetricians must be informed of a #classicalEDS diagnosis in pregnancy. Additional care is needed during delivery due to higher risk of tearing. There is increased risk of early rupture of membranes & premature delivery https://t.co/Ay5pNOg7Re #Midwives2020

[SEDSConnective @SEDSConnective]

Today is PoTS, Postural Tachycardia syndrome awareness day!

Typical symptoms are dizziness, fainting, headaches, low high blood pressure, nervous anxiety and shakiness to name a few #PoTS #EDS #Dysautonomia

[Ehlers-Danlos Support UK @ehlersdanlosuk]

Schools need to be more aware of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) to better support pupils diagnosed with the conditions, argues @JGjanegreen https://t.co/fTmUVHBsBh #education #EhlersDanlos #hypermobilityspectrumdisorders

[Tom Bellingham @TomP1Bellingham]

Oh man this is really something. Lando’s final lap with the uncensored team radio too 🤯👏 https://t.co/5baEvLSOrt

[Wonder of Science @wonderofscience]

Sunrise and sunset viewed from space.