Holly Gerring

Family, health, nature, dogs, birds & books are what make my world go round.

[Holly Gerring @GerringHolly]

TY to Ben from
@RepShriThanedar
's office for taking the time to meet virtually with us today at @AHDAorg's Virtual #HOH2024. We especially appreciate that Rep. Thanedar is co-sponsoring the CONNECT Act! How others can help: https://t.co/MthMvCqVvM
@tazz918
@MichelleAMayer

[Holly Gerring @GerringHolly]

Proud to represent the Michigan delegation at this year’s Fall Virtual #HeadacheOnTheHill. We have been busy advocating for better access to care and research for those living with headache disorders. #HOH2024 @AHDAOrg Here's how you can help: https://t.co/MthMvCqVvM

[ThePOTSPostman @ThePOTSPostman]

When someone with chronic illness tells you they are fatigued please understand that it is different from ordinary tiredness.

Our fatigue means we are drained, physically, mentally, and emotionally to our core .

We have nothing left in us .

Trying to function with fatigue is similar to a healthy person having stayed awake for a week straight and then expected to run a marathon.

For some of us, this fatigue is every day, all day, 24/7.

No amount of rest will fix it.

This is our reality.

Pushing through this fatigue can have consequences, sending us deeper and deeper into a flare state, lowering our immune system, lowering our baseline.

So please, when someone with the chronic illness, tells you they need rest, don’t ask why, don’t ask what they have been doing, just allow them to rest.

[Holly Gerring @GerringHolly]

A heartfelt thank you to Victoria from Senator Peters' office for taking the time to hear our concerns as people living with debilitating migraine & headache disorders during @AHDAorg's Headache on the Hill #HOH2024 advocacy day! @SenGaryPeters @jdehlin @MichelleAMayer

[Holly Gerring @GerringHolly]

Getting to meet Dr. Riggins with @MichelleAMayer in person was so cool! Experts like her who medically review Migraine Again articles are what makes them such reliable resources in a sea of old wives tales about migraine treatments!

[Nina Riggins, MD, PhD, FAAN, FAHS, UCNS Diplomate @NinaRiggins]

#HOH2024 ⁦@AHDAorg⁩ ⁦@MigraineAgain⁩ Advocacy ⁦@ahsheadache⁩ ⁦@AANmember⁩ ⁦@WNGtweets⁩ #AANAdvocacy ⁦@miles4migraine⁩ 💜

[Holly Gerring @GerringHolly]

Thank you to Sarah from Representative Thanedar's office for meeting with us on Tuesday to talk about reducing #migraine stigma & finding new treatments to improve the lives of the countless Americans like me living with headache disorders 💜 ##HOH2024 @AHDAorg @RepShriThanedar

[AHDA/THA @AHDAorg]

Important news heading into #HOH2024 next week! With @ahsheadache's new recommendation it's more important than ever that we pass the #SafeStepAct so #migraine patients can access the care they need to live their fullest lives.

[Holly Gerring @GerringHolly]

Thank you @RepShriThanedar for signing on to a Dear Colleague letter to be sent to the Dept of Education to ensure that students everywhere who are disabled by migraine and other headache conditions have access to the education services they need to succeed!!!! #HOH2023

[Migraine Again @MigraineAgain]

Our friends at the @AHDAorg are doing great work for people with severe headache diseases & they need some help. To ensure equal access to special education services for all who need it, consider helping out by contacting your representative: https://t.co/IVq0x6XHc4 #HOH2023

[Migraine Again @MigraineAgain]

If you're at #RetreatMigraine2023 this weekend, Holly is there from our team! This year's theme is #MINDYourMigraine because of how much this disease affects our mental health. To everyone struggling with invisible illness, you're not alone💜 @CoalitionCHAMP

[Holly Gerring @GerringHolly]

"Some of the physical symptoms associated with taking care of someone with dementia include higher levels of depression and anxiety, worse self-reported physical health, compromised immune function and increased risk of early death" - CDC

Yep, 1000% https://t.co/t115MUyHqE

[Holly Gerring @GerringHolly]

If reliable news and information is behind a paywall, are we doomed to let misinformation spread forever?

[Holly Gerring @GerringHolly]

Can't wait for this, have had the pleasure to volunteer with Gillean - she's awesome!!!

[American Migraine Foundation @amfmigraine]

Following #ClusterHeadacheAwarenessDay, we’re spreading more awareness for cluster headache in this month’s webinar! Learn about the basics of cluster headache and ways to advocate for yourself and others on Wednesday, March 29 at 8 p.m. ET. Register now:

https://t.co/eobnWdFKRu

[nate schreck @nate_schreck]

Really proud to be a part of #teammitten through the AHDA’s advocacy day! Big thanks to my team for pushing through on this difficult day #HOH2023 @AHDAorg @GerringHolly @jdehlin

[Holly Gerring @GerringHolly]

@tazz918 @nate_schreck So proud to work alongside you!

[Holly Gerring @GerringHolly]

Thank you for taking the time to meet with us to hear my #migraine story & talk about improving the lives of people with migraine & other severe headache diseases, Michael & Chi from @RepShriThanedar's office! #HOH2023 #TeamMitten #advocacy

[Migraine Again @MigraineAgain00]

Hope: listening to
@stephanieJnahas's talk about refractory #migraine treatment options. If you think you've tried everything, there are almost ALWAYS other options out there 💜 #AHSAZ #refractorymigraine

[Migraine Again @MigraineAgain00]

A6. 1 - believe us
2 - offer to drive us
3 - offer to pick up groceries
4 - be understanding if we have to postpone or cancel
5 - accommodate our needs (no loud bars or late nights)
6 - offer childcare
7 - learn about migraine https://t.co/oGFxrr6otP #AbbVieMigraine2022

[Holly Gerring @GerringHolly]

Just had a high school acquaintance reach out for the first time in over a decade asking about migraine resources for a friend because she saw I'm an advocate on social & my heart is so full! Love being able to help others 💜 #migraine #advocacy