@wfhemophilia Victor was a major force for patients and health care providers in many countries around the world. His vision will be greatly
missed but the good he has done remains for all.
๐จ Time's running out to submit your #BleedingDisorders research to the #WFHCongress2024! Don't miss this opportunity to showcase your work on a global stage, win prestigious awards, and connect with global experts. Deadline: Nov 15, 2023. Submit now:https://t.co/lIzneA35Ei ๐ฉธ
World Federation of Hemophilia (@wfhemophilia) and (@EHC_Haemophilia) statement on vaccine thrombosis thrombocytopenia. Persons with bleeding disorders not at increased risk from very rare event, should get vaccinated. Risks of COVID-19 greater https://t.co/NyK6lY0NaX
On Dec 11 at 10 a.m. the WFH will host a session to explore patient perspectives related to the scientific inquiry of gene therapy. The panelists will discuss the quest to answer the unknowns around safety, variability and durability of response. Register: https://t.co/hkxW49wk2C
The #WFHVirtualSummit Committee understands the importance of sharing knowledge of #VWD and the Summit program reflects this. Glenn Pierce, MD, PhD, WFH Vice-President, Medical, highlights the importance of bringing awareness to VWD. Watch the video here: https://t.co/pmlq7cWXst
assuming specific activity of the transgene protein is same as pd or recombinant. Ag levels are not the solution unless specific activity is previously validated.
@Brianhaemophil1 @NHF_Hemophilia @HaemophiliaIRL This recombinant FX manufactured to treat hemA and hemB dogs who have inhibitors. Effective replacement to manage dogs
The WFH WBDR has reached another milestone โ over 2,500 patients! We are well on our way to our goal of enrolling 10,000 patients #patientvoice.The WFH would like to thank everyone involved for helping us to grow the WBDR #bleedingdisorders#hemophilia https://t.co/opUeL4zEUz
Join us at #WFH2020WorldCongress for the largest congress for the #bleedingdisorders community! While there, take the time to explore the Batu Caves, said to be around 400 million years old. https://t.co/AejeRbpwUe #TreatmentforAll
St. Jude Childrenโs Research Hospital and the World Federation of Hemophilia announce collaboration
New arrangement will establish gene therapy clinical trial for hemophilia patients in low- and middle-income countries
https://t.co/YBI5QgRe0y #genetherapy#WorldHemophiliaDay2019
We are pleased to announce our acquisition of @Bioverativ, a biopharma company focused on therapies for hemophilia and other rare blood disorders, expanding our presence in specialty care and strengthening our leadership in rare diseases #Bioverativ https://t.co/BDraaabnDf