Global Epilepsy Exchange

Our approach is designed to unite us all in the fight against epilepsy and help deliver promising results to the global community.

[Global Epilepsy Exchange @globalepilepsy]

Facts & Figures: 65+ million people worldwide have epilepsy. 2.4 million people globally are diagnosed with epilepsy each year. 70% of people living with epilepsy could live seizure free if properly diagnosed and treated.

[Global Epilepsy Exchange @globalepilepsy]

“I was diagnosed when I was a toddler with tonic clonic seizures. I’m now 15 and it hasn’t stopped me from achieving my dreams.”

[Global Epilepsy Exchange @globalepilepsy]

“Hi, my name is Line Kinnerup. I have had epilepsy all my life. I have tried a million different medicines and nothing works. So now the doctors want to see if they can give me the big surgery...”

[Global Epilepsy Exchange @globalepilepsy]

“In August 2019 my life took a turn for the worst. I had been fit and healthy and then suddenly my brain felt like it went pow!”

[Global Epilepsy Exchange @globalepilepsy]

“I developed late-onset epilepsy at 48 with immediate impacts on my life...”

[Global Epilepsy Exchange @globalepilepsy]

“Hi! I'm Elena from Germany. The journey to my epilepsy diagnosis took over 5 years...”

[Global Epilepsy Exchange @globalepilepsy]

“My name is Klara and I am from Zagreb, Croatia. I was diagnosed with epilepsy in January, 2017.”

[Global Epilepsy Exchange @globalepilepsy]

“Hello. My name is Lenja, I am 21 and from Germany. I had my first seizure almost two years ago. Only in May 2019 the reason was found: it’s called autoimmune encephalitis where the immune system produces antibodies against the brain...”

[Global Epilepsy Exchange @globalepilepsy]

“My name is María Gloria and I am 29 years old. I have had epilepsy for 15 years and I can describe this experience as a roller coaster.”

[Global Epilepsy Exchange @globalepilepsy]

“Hi, I'm Adi Keinan, 16 years old from Israel. At the age of 12 they discovered that I had epilepsy...”

[Global Epilepsy Exchange @globalepilepsy]

“It was the first day of the competition. I was engaged in this sport for 6 years. The pool was the second house, until the ambulance picked me up from the competition. Diagnosis: epilepsy.”

[Global Epilepsy Exchange @globalepilepsy]

“Today I am 24 years old and I have not had a seizure since July 2017 and I feel happy and healthy...”

[Global Epilepsy Exchange @globalepilepsy]

“Hello, I'm Vani Fernanda Wijaya. I was diagnosed with epilepsy about 9 or 10 years ago. I am currently 22 years old...”

[Global Epilepsy Exchange @globalepilepsy]

“In 2007 I was officially diagnosed with Epilepsy. I was diagnosed with having Tonic-Clonic and Partial Seizures...”

[Global Epilepsy Exchange @globalepilepsy]

“My biggest epilepsy struggle was the medication side effects that impeded me in school, work, and other ways. Despite that, I have been able to get my nursing degree and am a nurse on the acute pulmonary unit at the University of Utah hospital...”

[Global Epilepsy Exchange @globalepilepsy]

“Kevin was born with cortical dysplasia on his left temporal lobe which caused him to have infantile spasms, complex partial seizures, and tonic-clonic seizures. He had his first seizure at 7 mins old after birth...”

[Global Epilepsy Exchange @globalepilepsy]

“Hi I'm Eszter I was diagnosed at age 7 and now I'm 19 years old. At age 7 I lost my friends because of epilepsy so I couldn't speak about it. After that I learned I'm normal and I accept myself and my life became so much better...”

[Global Epilepsy Exchange @globalepilepsy]

“I got epilepsy from the age of 14 years old. Three months later I had a headache that was so painful and had a seizure. After 8 years later it became intractable epilepsy which was difficult to control by medication...”

[Global Epilepsy Exchange @globalepilepsy]

“Hello my name is Amelia, I’m 14 years old and live in Wisconsin. At the age of three months and 4 days I had a seizure in the morning and was taken to the emergency room...”

[Global Epilepsy Exchange @globalepilepsy]

“I was diagnosed with epilepsy in the third grade and continue to climb the epilepsy mountain...”

[Global Epilepsy Exchange @globalepilepsy]

“Hi there, my name is Aleksandra. I have been suffering from seizures since I was 12 years old (grand mal seizures mostly). Epilepsy appeared after surgery, because there was an unexpected hypoxia of the brain. It was not easy for me as a young girl...”