Grace

this is now, unintentionally, a digital junk-journal of someone with #myalgicencephalomyelitis and #POTS

[癒しの動物 @animalkyat]

靴のせいで仲間だと思われて��っぽい

[fluttershy @hwrtyed]

some of u didn’t go insane at 15 and it shows

[Briana Mills, LMFT ♿️🏳️‍🌈🍉 @theBrianaMills]

People vehemently believe that there are safety nets in place if you become disabled. That no matter what, you have all your needs met. If you believe this, you’re in for a rude awakening if you ever become disabled.

[juli 8_8 ☀️ @hongjjong]

mexico vs korea tonight…. winner takes ateez

[Grace @gmcnigro]

@SurvivingCFS thank goodness!! you’ve been on my mind so much these last few days, i hope you’re doing well despite everything 🫂

[˖ Ridhima 𓂀 ݁˖ @ridhima_z]

i love when doctors say "avoid stress" like i can just unsubscribe from economy and become a decorative gargoyle.

[Omelette “The Rock” Johnson @omelettejohnson]

GUYS..

[kay in the tower @C0SMICDUSTS]

i’m so over medicaid being fucked with, disabled people need their healthcare to survive.

[Grace @gmcnigro]

@tink_ina ugh I’m so sorry Ina 🫂

[Grace @gmcnigro]

uuughhhhh

[Liam's LC/ME Journey @liamsLCjourney]

It needs to be stated how groundbreaking this WE&ME call for funding is.

This is the first time a research funder has written requirements that ensure so much that patients have been emphasizing for years:

- PEM-inclusive criteria are mandatory
- Meaningful patient involvement in projects is encouraged, and patient experts get paid
-Severe and bedbound patients are actively prioritized
- All data must be open and deposited in MAP ME/CFS in order to reuse the raw data for future meta analyses

It is abundantly clear that this was written by patients - this is what it looks like when standards are built with and by us instead of *about* us.

This will be a template for future projects, and, mark my words, we are going to hold the line until these criteria are the minimum standard.

[Grace @gmcnigro]

ever since my concussion a few months back my tolerance of screens has been low. i highly doubt they’d let me install flux on the work computer if i’m hired, but it’s always something i could ask about if i do get the job?

[Grace @gmcnigro]

maybe stupid of me to be doing this but i got a job offer for a receptionist position and i’m going in for the interview on thursday. as far as i know the office isn’t super busy, i’m worried about PEM + potential worsening obvi but i’m in a pretty desperate position financially

[noah kulwin @nkulw]

hatred of immigrants is a sign of moral weakness. one of the more obvious tells that you're just not a good person.

[Rhi @rhirhiarhii]

She is out of hospital which is for the best for now
If you can share and support the go fund me they have to get appropriate medical care please do

[kelliam | playing p4r @storyofrevival]

Of course persona 4 is always being revealed during june cause everyone in that game gay as fuck

[Official ATLUS West @Atlus_West]

You ever heard… of the Midnight Channel? 📺

Mark your calendars - Persona 4 Revival goes on air February 18th, 2027!

[Official ATLUS West @Atlus_West]

An entirely new story is about to unfold.

Persona 6 is officially announced for Xbox Series X|S, Xbox PC, Xbox Cloud, Steam, and PlayStation 5!

Wishlist now on Xbox: https://t.co/Qoo79L2yuN

[Grace @gmcnigro]

@rhirhiarhii happy birthday!! 🥳

[Grace @gmcnigro]

got my blood drawn yesterday so naturally i’m now in sick victorian woman mode again