Oksana Hlyva

Parent researcher w/ interest in health-related quality of life, inclusion, & accessibility; not neutral for blue & yellow: Ukraine and Down syndrome

[Oksana Hlyva @goDSresearch]

https://t.co/HAnMsCY8qD
"These papers clearly invite us to step forward into a new way of supporting people w/ #Downsyndrome to live their best lives. The papers urge us to design healthcare with people w/ DS, to meet their needs pro-actively & to integrate the evidence base"

[Oksana Hlyva @goDSresearch]

@LouiseKinross @NeilVickers2 So true....

[UK at the UN 🇬🇧🇺🇳 @UKUN_NewYork]

Not only is Putin destroying Ukrainian homes, schools, hospitals and energy infrastructure.

He's also stealing Ukraine's children.

The forced deportation of nearly 20,000 Ukrainian children to Russia shows his barbarism knows no bounds.

This is a war crime.

[ObserveConflict @ObserveConflict]

Under the direction of President Vladimir Putin, groups of children were taken from Ukraine and brought to Russia for placement. These children have been taken to at least 21 regions throughout Russia. The majority, if not all, are believed to have been made Russian citizens.

Read our report fro m @HRL_YaleSPH to learn more: https://t.co/CIksF3HDKB

[Oksana Hlyva @goDSresearch]

Great to see international collaboration @t21rs #Downsyndrome and #research should have no borders.
First memory as a parent, I was told to ignore different ranges for TSH because we are not in the US.

[sgzoo Calcutta University @sgzoocu]

A State Recognition of T21RS Indian Chaper for research and societal outreach activities for the people with Down syndrome
#State award 2024
#Down syndrome
# T21RS Indian Chapter

[Oksana Hlyva @goDSresearch]

@UofTNews @uoftmedicine Important research that can't be done fast enough for those diagnosed. Are there any studies/trials looking for participants? Asking of a dear friend of mine.

[Oksana Hlyva @goDSresearch]

@ChanKulatunga No, I am well aware of the inherent biases as a qualitative researcher ;) I hope more people do, esp those who have more power.

[Oksana Hlyva @goDSresearch]

So important... there is always risk of bias...

[Therapeutics Initiative (TI) @Drug_Evidence]

🚨Meta-analysts, don't miss our next #ResearchMethods webinar! 😍

Dr. Carole Lunny @carolelunny shares a new #RiskofBias tool for network meta-analysis

Register now: https://t.co/cWLxcLZ1WY

#systematicreviews #metaanalysis

[Oksana Hlyva @goDSresearch]

@Newsweek this is so typical of kremlin... first they invade and ravage a country (in the most recent case Ukraine), then they talk about decency 🤥growing up in soviet Ukraine, I remember very well how everything was blamed on the immoral decadent West... it hasn't changed a bit.

[Garry Kasparov @Kasparov63]

This is Putin's response to Scholz's phone call. Words show weakness and invite escalation, as always.

[Vatnik Soup @P_Kallioniemi]

I'm so happy that Scholz decided to de-escalate the war!

Today, Russia sent "only" 120 missiles and 90 drones towards Ukraine.

[Oksana Hlyva @goDSresearch]

@ElzHead @abc_ds_ @UCI_CFAR_DS @ucimind @UCIrvineHealth Very important to see #Downsyndrome and related research as integral to larger
health and mind systems--thank you!

[Garry Kasparov @Kasparov63]

Trump, a would-be autocrat, using Orban, an actual autocrat, as a character reference is too perfect. As with his praise for Xi and Putin as "strong," his naked envy of their unaccountable power is one of his few sincere expressions.

[Oksana Hlyva @goDSresearch]

@ScienceAlert "The fact that neuronal integrity breakdown was slowed in ppl randomized to omega-3 treatment who are also at high risk for #Alzheimers is remarkable, AND warrants a larger clinical trial in more DIVERSE populations," says neurologist.
Include #DownSyndrome

[ScienceAlert @ScienceAlert]

One Group of People Might Benefit From Taking Fish Oil to Slow Alzheimer's https://t.co/iVI74qGH6r

[Oksana Hlyva @goDSresearch]

@mreitzel1 Great evocative theme! Happy learning @mreitzel1 #AusCPDM2024! Please share w/ us parent researchers!

[Oksana Hlyva @goDSresearch]

@picardonhealth welcoming people w/ disabilities into the workforce is a win indeed; building up the mindset by welcoming children to inclusive classrooms, sports and recreation are important parts of the process.

[André Picard @picardonhealth]

Welcoming people with disabilities into the workforce is a win for everyone, by Chris Ryan https://t.co/YACFJnTlmC via @calgaryherald #disability #accessibility #inclusion

[André Picard @picardonhealth]

Welcoming people with disabilities into the workforce is a win for everyone, by Chris Ryan https://t.co/YACFJnTlmC via @calgaryherald #disability #accessibility #inclusion

[Oksana Hlyva @goDSresearch]

@VL_konona @FT @NATO Politics, I guess, and the fear of negotiating w/ the aggressor who didn't stop in 2014 and unlikely to stop in 2024 at the territories he invaded, aka "liberated"

100% agree on the world class issues...Sadly political violence is one of them...

[Oksana Hlyva @goDSresearch]

How about investing in designing for accessibility, inclusion and belonging, rather than locking them up? 🤔

[Inclusion Canada @InclusionCA]

Family members of students w/ disabilities are frustrated by Edmonton school board's plan to build 25 more seclusion rooms in the face of a promise to phase them out. These rooms are being used to involuntarily and unjustly seclude students. @InclusionAB

https://t.co/MSFVGvPuDi

[Oksana Hlyva @goDSresearch]

Importance of #Inclusiveresearch @WorldDSCongress, the last frontier in the inclusion of individuals w/ #DownSyndrome? Removing barriers can change lives of many AND benefit those w/out #Downsyndrome as health challenges overlap

[World DS Congress @WorldDSCongress]

Today's Congress sessions have been fantastic!

We're wrapping up today with outstanding panel sessions on medical research, inclusive research practices and the power of reading 📚

Looking forward to more great sessions tomorrow!

#WDSC2024
#WorldDownSyndromeCongress