Mother of girls, grandmother of boys - one lost to DIPG. Advocate for DIPG and childhood cancers awareness & research funding, Scottish Independence
& Remain
From Logan's 2nd mum:
We went to Rothesay today to remember Logan on the day before his 4 year anniversary. 4 years since he died aged 3. He’s been dead longer than he lived. Let that sink in. We sat on his beautiful memorial bench. A memorial bench for a 3 yo. Let that sink in
@NianticHelp - my grandson & I both played during the steeled resolve event, hatched lots of eggs & no shiny Varoom. I see that encounters have been offered in compensation but there is nothing in either account. We are in UK. IGN's EzzieMc6 & Govanlass. Please help
When a child is facing something as cruel and unfair as a #DIPG diagnosis....when their parents have to hear that their child's disease is incurable, we are constantly reminded of the change which is so desperately needed , by so many.
@NianticHelp - I am trying to eevolve mt Amsterdam background Eevee into Sylveon. This is the 2nd one I have earned 75+ hearts with as my buddy but the Sylveon option has not shown up. Can you help?
@NianticHelp So, despite the response below & 3 follow up messages with details req'd, @NianticHelp aren't willing to resolve this on my grandson's acct
"Hi Fiona! Please share these details with us:
- Your grandson's Trainer Nickname
- Associated email address
We'll be keeping an eye out"
@NianticHelp Does this not apply to Niantic Kids accts - my grandson did similar amounts of raids on the relevant days - I got a shiny Dialga & a shiny ∆ Palkis, he got nothing. Doesn't seem fair..
New year...same mission!
We can't achieve anything without YOU and your support. if you want to get involved in 2025 for children with #DIPG then please come on in! https://t.co/ArfogVXfod
DIPG (Diffuse Intrinsic Pontine Glioma) affects mainly children - average age at diagnosis is just 6 years...
My grandson, Logan, was not quite 3 years old on diagnosis...he never saw his 4th birthday 💔
Please be aware, support childhood cancer research & a cure 🎗️
🚨 End of life care has been overlooked and now the shortfall in support is at a critical level.
We can't let this crisis continue. Whoever wins the election must take action.
Agree? Sign our petition now.
URGENT! Pls share. The last chance to register to vote in the General Election is 11.59pm tomorrow Tue 18 June. Potentially 8m aren't registered at their current address. Here's 4 key facts...
1) You can do it online here https://t.co/i4FhJoAXfK
2) It's good for your finances. Not being on electoral roll can make it more difficult to be accepted for credit products like bank accounts or mortgages.
3) You can opt out of the 'Open Register' (which allows your info to be sold on) which will stop you getting junk mail marketing )
4) You'll need ID when you do vote (not to register) if you don't have it, you can get it free until Wed 26 June https://t.co/9bfL3hw3CV
Seems fitting that our editorial "Diffuse midline glioma, H3K27-altered: Illuminating the dark side of the moon" discussing DMG's lack of treatment vs the pioneering discoveries of Sidney Faber is published while @PNOC_kids meeting @DanaFarber in Boston
https://t.co/GyqltUzGVt
Please read this thread the stark and sad facts of a #DIPG diagnosis that only affected families can truly comprehend ...they are brutal and shouldn't be a reality. We're trying ,a brighter outlook cannot come soon enough 💗 #billythebrave